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roccandy's Recent CancerCompass Activity

  • RocCandy has replied to a post on the message board

    Your partner needs to see a pain specialist.  The oncologist and GI doctors do very little in the way of pain management; that's where the pain specialist or pallative care doctor will help.  My husband had side to back pain and the pain specialist did a plexus nerve block to reduce the level of pain; it has helped a lot - pain is not gone, but reduced to a level where he can function/work and enjoy a littl...

    August 21, 2012 view post
    • RocCandy has replied to a post on the message board

      What a wonderful son you are!  As parents we all hope to raise our children to be their best and it sounds like your parents have done an excellent job!  Already thinking about how you can help is a parent's dream.  Good luck on this road, it's tough but with your attitude and your father's drive to do whatever it takes - chances are good.

      August 17, 2012 view post
      • RocCandy has replied to a post on the message board

        CEA are tumor marker levels and can (but not always) show a progression of the disease.  CEA levels - it is my understanding, can be affected in several ways such as inflammed colon or even slight infection.  There is no way to reduce these levels, it's the bodies way to say that something isn't quite right but it doesn't sound too distressing at this point.  Speak to the oncologist about these levels ...

        August 03, 2012 view post
        • RocCandy has replied to a post on the message board

          If you and your grandmother are up to it, you might consider finding a nutritionist who specializes in cancer.  Our nutritionist (I truely believe) saved my husband who was wasting away post-whipple.  They have much more knowledge than the oncologist or gi doctors have in metabolizing foods in your "new" system. Pam

          June 01, 2012 view post
          • RocCandy has replied to a post on the message board

            Janet:  My husband developed a small hernia while doing physical therapy after his whipple.  It was small then so onc and gi doc said "don't worry about this, it won't strangulate so it's OK" - next Wednesday, husband going in for hernia repair surgery to this hernia which is at least, the size of a softball now.  It's causing much pain and of course exhausts him due to the extreme use of his back musc...

            May 11, 2012 view post
            • RocCandy has replied to a post on the message board

              My husband had recurrence with a nodule in each lung.  Cyberknife treatments for both nodules.  Pam

              May 11, 2012 view post
              • RocCandy has replied to a post on the message board

                I highly recommend you see a nutritionist who specializes in cancer patients.  They have a world on information to share, assisting with weight issues and other supplements to keep other organs and muscles healthy.

                May 07, 2012 view post
                • RocCandy has replied to a post on the message board

                  I don't know how old your father is but my MIL at 87 had to have surgery on her hip.  At the time she showed a "little", maybe 15% dementia related symptoms - after surgery it has been more like 45% dementia symptoms.  I was told that older patients do not respond well to anesthisia and this is common but please go get a second opinion if you are concerned.

                  April 19, 2012 view post
                  • RocCandy has replied to a post on the message board

                    Sisteere:  Broth is easily made, you don't have to be a cook!  You need mostly bones from chicken or turkey or beef bones (the ones sold for soup).  You can even use the carcass of a rotisserie chicken like you buy at your local grocery store - enjoy the chicken for a meal or two then take the carcass and proceed as follows.  Put your broth bones in pot of water or slowcooker (the meat is not nece...

                    April 19, 2012 view post
                    • RocCandy has replied to a post on the message board

                      You might want to post on the pancreatic cancer side of this website - you will receive much more feedback there.  Also there is a very active forum on the Johns Hopkins website where questions and answers are abundant!  Good luck Pam

                      April 12, 2012 view post
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                      About roccandy

                      Caregiver
                      Pancreatic Cancer

                      My husband (age 58) is a one year survivor of pancreatic cancer. He had the whipple surgery on August 5, 2009 after 6 weeks of radiation and chemo. He is doing great considering. Still has digestive issues, but has gained back up to his normal weight and is working full time.

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