My husband was diagnosed with a Glioblastoma at the age of 35. We have been married for 17 years and have 4 kids. Lauren 16, Austin 13, Spencer 6, and Ryan 5.Our battle has been going on for 19 months. My husband is now 37.
March 11, 2011-tumor found at ER in Mercy Fairfield. Symptoms..headache, left arm numb, useless. coordination terrible.
March 12, 2011- transfered to UC hospital in cincinnati
March 14, 2011- Tumor resection-Right parietal lobe. 98-99% tumor removed but ended up with left hemiplegia.
March 17, 2011-transferred to Drake Center for inpatient rehab.
March 23, 2011-acuted out at Drake, back to University with hydrocephalus. Almost died. Started to have blurred/double vision by the time he finally came around. Left hemiplegia worse.
March 30-April 28, 2011 Inpatient rehab, radiation, chemo at Good Samaritan hospital. Home in wheelchair with a little walking with quad cane. Turned 36 on the rehab unit.
May 2011-tolerated chemo/radiation well. Walking with a single point cane. No more eye patch...vision better!
June 2011- 1st Mri after chemo /radiation. STABLE! walking without any assistive device. Leg moving well. Arm is moving but sensation and coordination poor. Still in OT/PT will be on the road again soon (scary..lol)
July 4, 2011-starting temodar 440mg 5/28 cycle.
July 18, 2011- temodar 440mg-severe fatigue but no sickness.
August 4, 2011- temodar 340mg-tolerating chemo much better on decreased dose. Next MRI on August 23rd
August 20, 2011- Trip to ER for Left facial droop and had been sick x 3 days. CT was stable. Bad sinus infection. (whew!)
August 23rd- MRI stable!
Nov 21st-MRI stable EEG Normal. Tumor is methylated
Feb 15th 2012-MRI stable!
May 9th 2012-MRI stable and all areas of enhancement nearly resolved. Best one yet!
JULY 2012-MRI STABLE
AUGUST 2012-MRI showed an area of concern. mri with spec in september
SEPTEMBER 2012-2 new tumors growing in tumor bed. got a port-a-cath and started avastin.
OCTOBER 2012-Got a 2nd opinion in georgia..tumors are inoperable..on the motor strip. We will be getting gamma knife soon.
NOVEMBER 2012-gamma knife not an option. Mri this month showed extensive enhancement beyond the tumor bed. Avastin not working. Trying carboplatin next week and a trip to the cleveland clinic.
CANCER SUCKS BUT GOD IS GOOD!
"But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed."
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