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roselvr's Message Board Messages

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We were pretty much alone too. Thankful for boards like these.

Still haven't read the Michael Douglas articles lol I heard there are a few more too.

On Jun 03, 2013 10:38 PM lullabell wrote:

On Jun 03, 2013 9:55 PM Roselvr wrote:

On Jun 03, 2013 9:38 PM lullabell wrote:

This means he had the hpv16 virus active in him yet as a wife of a survivor of this same virus that turned into cancer, I got tested ASAP at the time...i was negative, and we were only married 7 years, his 1st wife and him were married 11 years. Yet people are going to assume that I gave him this virus!

I don't know, i really think he should have kept his mouth shut! 

I still haven't read it; my hub has a bad case of thrush 3 years & 5 months after treatment ended. It was never this bad when he went thru treatment; which means his immune system is tanking.

I also tested negative. There are cases where it lays dormant for 50 years.

MD has done nothing for oral cancer :(

thanks for replying, so sorry for the thrush, believe that is a type of fungus? hubby had it also, this was years ago, they gave him some prescription mouth rinse that he had to go thru a never-ending ritual and it was gone, it took a long time though. 

my hubby's MD did nothing also..she missed all of the symtoms of stage IV cancer, i feel for you and your husband.

I spoke to his Philly ENT; they want to see him tomorrow. He's on 200mg Fluconazole since Friday & Nystatin since last Tuesday. He can barely "eat" liquids.

On Jun 03, 2013 9:38 PM lullabell wrote:

This means he had the hpv16 virus active in him yet as a wife of a survivor of this same virus that turned into cancer, I got tested ASAP at the time...i was negative, and we were only married 7 years, his 1st wife and him were married 11 years. Yet people are going to assume that I gave him this virus!

I don't know, i really think he should have kept his mouth shut! 

I still haven't read it; my hub has a bad case of thrush 3 years & 5 months after treatment ended. It was never this bad when he went thru treatment; which means his immune system is tanking.

I also tested negative. There are cases where it lays dormant for 50 years.

MD has done nothing for oral cancer :(

This is all I see on the Oral Cancer Foundations page

Michael Douglas: It took doctors nine months to figure out walnut-sized tumor at the back of my tongue was throat cancer

http://oralcancernews.org/wp/michael-douglas-it-took-doctors

CNN

 Did oral sex bring about Michael Douglas' cancer diagnosis? Not exactly

http://marquee.blogs.cnn.com/2013/06/03/did-oral-sex-bring-a

Haven't read it; wanted to post the link since I see no one did yet. It's also on CNN & TMZ; not sure if they still hold posts for links so will add them below

Michael Douglas: oral sex caused my cancer

http://www.guardian.co.uk/film/2013/jun/02/michael-douglas-o

Since you guys are talking about Medicare- For part B; if anyone is considering Humana; if your meds are not on formulary; don't waste your time because they don't care if you take the meds because you have medical necessity or allergies to meds on formulary. If the meds are not on formulary; they will not cover it- period. Even with an appeal.

RE: have a tooth problem

by Roselvr - October 09, 2012

See this link to order similar guides

http://www.cancercare.org/publications/order

Quote Broken- I couldn't stand the thought of tossing this most valuable little book that I acquired after the loss of my late husband in Aug. 2010 from tongue cancer.  It holds a wealth ofinformationwww.cancercare.org 1-800-813-HOPE (4673).  It's called A Helping Hand, The Resource Guide for People With Cancer.  In addition to the information others have provided for you, maybe one of the Foundations below can help you as well.

RE: have a tooth problem

by Roselvr - October 09, 2012

On Oct 03, 2012 11:41 AM wvleroyhayes wrote:

I had mine extracted after 2 years of Zometa bone treatments, they said I needed the hyperbaric treatments also. I didn't do that and mine healed up just fine. Lots of these procedures like hyperbaric treatments are to make sure the Doctor doesn't get sued if something goes wrong. He already said he doesn't have much money, extraction would be the way to go and since it is cancer related an oral surgeon is going to be his best bet, they don't do root canals and crowns.

Chances are he's going to have to really do his homework because A root canal & cap are not cheap; my daughter has delta dental; our price with insurance was $2,000 per tooth. My hubs insurancecovers a lot more per root canal & cap.

The only way for him to know if root canal & cap are an option is he has to make the call. Keep in mind that a root canal does not guarantee you get to save the tooth. Having a root canal at this point could go either way. My hub had one by a dentist that did not know oral cancer; they then wanted to do another reverse root canal. Turns out we saw the oral surgeon at the cancer center who told him he probably only needed antibiotics & after a round or 2 of antibiotics; his tooth is fine.

Joe; you've been around the board for a while; did you ever get the fluoride trays? If so; are you using them? My hubs teeth started hurting; he started using his trays & everything is fine. Amazing how much the trays stops the decay.

On Aug 05, 2009 12:00 AM mark5004 wrote:

I recently read a recent study of tonsil cancer patients with data from a ten year period on 45 patients with stage 4 diagnoses.  It portrayed a dismal prognosis over the ten year period with a 19 percent survival rate (over ten years).  I found the study on Google, and recall it seemed to have contained recent data, but I lost track of the exact search term that I used to find it.  With provocation from another member of this board I am asking the question,  "Do we even have any five year survivors that can be counted here?" 

It might be interesting to others to indicate what your treatment methodology was rad+ chemo, primary surgery + neck dissection, or without dissection as applicable.

Mark; are you a member of the oral cancer board? May be a good question to ask there too

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About roselvr

Caregiver
Head and Neck Cancer, Leukemia - (AML), Oral Cancer, Pharyngeal Cancer, Squamous Cell Cancer, Throat Cancer, Tonsils Cancer
Acupuncture, After Treatment, Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Genetics, Insurance, Massage Therapy, Naturopathic Medicine, Side Effects, Supplements

Why a Top Cancer Center Could Save Your Life : Newsweek Health

The right doctors can make all the difference when it comes to treating cancer. So why don't we know who they are?

Published Oct 17, 2009
From the magazine issue dated Oct 26, 2009

What You Don’t Know Might Kill You

Very interesting article on how not all cancer centers are the same. Long article but worth the read.

It also says to check if a center follows National Comprehensive Cancer Network (NCCN) guidelines....... .................


http://tinyurl.com/NewsweekCancer .............................................Find the best specialist for your type of cancer for the best treatment options & outcome. An oncologist whose life is dedicated to treating nothing but one cancer will have seen many more and very diverse cases than an oncologist who maybe has treated a few cases of the same cancer during his entire career.

It is also true that an oncologist who devotes his entire career to patients with your cancer, will usually have better results than an oncologist who doesn't, just because he has more knowledge.

Cancer tips - how to get help
http://www.cancercompass.com/message-board/message/all,52152,0.htm

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