roselvr

Since you guys are talking about Medicare- For part B; if anyone is considering Humana; if your meds are not on formulary; don't waste your time because they don't care if you take the meds because you have medical necessity or allergies to meds on formulary. If the meds are not on formulary; they will not cover it- period. Even with an appeal.

See this link to order similar guides

http://www.cancercare.org/publications/order

Quote Broken- I couldn't stand the thought of tossing this most valuable little book that I acquired after the loss of my late husband in Aug. 2010 from tongue cancer.  It holds a wealth ofinformationwww.cancercare.org 1-800-813-HOPE (4673).  It's called A Helping Hand, The Resource Guide for People With Cancer.  In addition to the information others have provided for you, maybe one of the Foundations below can help you as well.

On Oct 03, 2012 11:41 AM wvleroyhayes wrote:

I had mine extracted after 2 years of Zometa bone treatments, they said I needed the hyperbaric treatments also. I didn't do that and mine healed up just fine. Lots of these procedures like hyperbaric treatments are to make sure the Doctor doesn't get sued if something goes wrong. He already said he doesn't have much money, extraction would be the way to go and since it is cancer related an oral surgeon is going to be his best bet, they don't do root canals and crowns.

Chances are he's going to have to really do his homework because A root canal & cap are not cheap; my daughter has delta dental; our price with insurance was $2,000 per tooth. My hubs insurancecovers a lot more per root canal & cap.

The only way for him to know if root canal & cap are an option is he has to make the call. Keep in mind that a root canal does not guarantee you get to save the tooth. Having a root canal at this point could go either way. My hub had one by a dentist that did not know oral cancer; they then wanted to do another reverse root canal. Turns out we saw the oral surgeon at the cancer center who told him he probably only needed antibiotics & after a round or 2 of antibiotics; his tooth is fine.

Joe; you've been around the board for a while; did you ever get the fluoride trays? If so; are you using them? My hubs teeth started hurting; he started using his trays & everything is fine. Amazing how much the trays stops the decay.

On Aug 05, 2009 12:00 AM mark5004 wrote:

I recently read a recent study of tonsil cancer patients with data from a ten year period on 45 patients with stage 4 diagnoses.  It portrayed a dismal prognosis over the ten year period with a 19 percent survival rate (over ten years).  I found the study on Google, and recall it seemed to have contained recent data, but I lost track of the exact search term that I used to find it.  With provocation from another member of this board I am asking the question,  "Do we even have any five year survivors that can be counted here?" 

It might be interesting to others to indicate what your treatment methodology was rad+ chemo, primary surgery + neck dissection, or without dissection as applicable.

Mark; are you a member of the oral cancer board? May be a good question to ask there too

Newest update from Redrover-

On Aug 10, 2012 8:43 PM number9 wrote:

"there are so many times I've thought of something I want to tell her or ask her about and I'll reach for the phone.., then realize.., I can't."

I used to feel much like your above comment.  Until a moment when a friend told me that i could still tell her and ask her.  Why not!  Ever since that moment, i do it often.  Mom and i have conversations ... spoken and unspoken. I'll talk aloud to her so much.  And ... i'll talk silentely with her, in my thoughts and intuition where i feel her and just know what she telling me back.  It "is" how it was, in that unique connection between mother and child.  Much like when you and i were little with our Moms, and likely could say "oh my gosh my Mom would love this!"  Same connection to Mom... talk to her.

Invite your Mom along Lee ... for her to be part of everything.  Feel her, as she is part of you.  It's not the same, as before cancer, without the physicalness of her voice, her hug, her touch.  BUT, how we still connect with our Moms is all we have now ... it's all we have left in our options to either consume focus on the loss for what took our Moms ... OR!! ... or we can choose to move through our moments by feeling our Moms so close in heart and soul and keeping that energy going which is very much alive.

My Mom really loved life and living it.  She expereinced devasting losses of loved ones, in her lifetime.  It empowered her choices and living, to rise up and carry out on their behalf so very much that was cut short in their lives.

The heartache, loss, and missing is always there.  My Mom was my biggest encourager and support ... and still is, as i have come to learn how to feel her and hear her in the most amazing ways since her body passed away.  Her spirit and essence is firelight to all who know her.  So, i am thinking of you and your Mom, and how she is woven in YOUR life so beautifuly.  "That" never dies.  "THAT" is a forever connection.  Breathe it.  Feel it.  Live it.  Welcome her to still be part of all of it.  Talk to her ... you may find it incredibly healing over time. 

Be gentle with yourself Lee ... especially over this next month.

xoxoxoxox

De; I'm happy to see that you are still "seeing" your mom.. I know it brings me a lot of comfort to know he's here. He recently sent someone to me.. I switched away from cancer to help a gal I didn't know with her almost 3 yr old girl having a brain/spine surgery. Something was telling me to just jump in even though I knew nothing about upper spine (my back issues are lower).. I joined groups to post updates; one ended up kicking me out because it was not my child diagnosed.. I stuck around after the surgery; let doors open/close & one day it was like being smacked in the head.. things I was reading applied to my 19 year old daughter & the health issues we've been trying to figure out since before hubs diagnosis. It also eventually hit me that it also applied to me.. & I know it was my beloved dad answering my prayers to please help me get my life back together.

Have you had the greeting card experience yet? Where you're missing your mom & go to do something & a greeting card will be there either from your mom or one you gave your mom or one that fits to make you feel like she left it there to cheer you up?

My electronics also freak out. Some days I feel like someone is touching my hair. Another day a section of my long hair moved.

I've been watching Long Island Medium; such an amazing show for someone like us.

~Hugs

Also; copy your post & put it straight into the main section of Gynecologic Cancers. With most of the boards here; the main heading gets the most hits. Some of these sub-headings are worthless for quick advice.

~Hugs

On Aug 01, 2012 10:51 PM nwwoman wrote:

Or we could teach the important life lesson of self-control, as well as share with them the results of the study.  Encouraging sexual behavior among children by giving them shots to make sure it's easy and safe is not something I can advocate.

I don't know if I should even post.. The more I read about the vax the less I like it. To each their own; hopefully they will figure out how long the vax is actually in effect. I also read that some vaccines are not stored properly to begin with; so they're putting a lot of faith in that alone.

I've also heard that some kids think this is the "safe sex" vaccine. It is not; there are other STD's it does not protect against. If they're going to have sex; a condom is the only protection from STD's.

We get cancer from HPV because our immune system can't contain it. I'm starting to believe that keeping the immune system healthy to begin with may be the way to go.

On Jul 25, 2012 10:14 PM mark5004 wrote:

I had the same thing for months. My ENT prescribed Fluconazole 100mg one per day in addition to magic mouthwash.  I acquired Leukemia, post treatment, so it makes me wonder about the strength of your husband's immune system.

Getting off that feeding tube will improve his health as well.  A persistent open wound has a toll on the immune response.

Mark

If my post is shown twice it's because they're holding it due to me giving a link to GNC. I just redid it without the link

This was true for my hub as well & within 24 hours of it being removed; a lot of symptoms cleared up. The peg was horrible no matter how much we cleaned it & when they pulled it out; it was black. I wanted them to culture it a few months before; the general surgeon refused. I don't want to discourage the peg because its needed for most; I think I've changed my tune on when it put it in & that's if a person has issues.

100mg Fluconazole did nothing for him; it had to be a course of 200mg.

They're talking about thrush on another board & I want to share what's being said there. Mark; I'm sure you'll be interested in some of the comments.

acidophilusis what is in yogurt (without having to eat so much) you can get it at any health food store or pharmacy even Walmart has it.

Rinse your mouth with theApple cyder vinegar a few times a day and take 2 capsules in am and 2 at night. Do this for 2 weeks even after the visible white goes away.

Thrush in the mouth is a yeast overgrowth and is very hard to get rid of, they usually Rx Nystatin, I've been trying to rid of it since March, Cut out all Sugars as it feeds the yeast, nothing white such as breads, grains etc

Get powdered probiotics from GNC and pour it into mouth and let it dissolve. It's called GNC Ultra Probiotic Complex 25 Packets

Hydrogen peroxide for mouth and toothbrush then lots and lots of quality probiotics. I prefer the refrigerated one with some bifido bacteria not just acidophilus. Do these for two or three months maybe longer. I also agree with the Apple Cider Vinegar but of the three - the probiotics will have to be done for months as it takes months for the gut to rebulid the colony of good bacteria. You can try a prescription medication but they only work in the short term - and they are not healthy to take long term. If you are suffering, take the prescription and start the ACV, H2O2 and quality probiotics then keep up the probiotics for months.

We have a Lyme specialist who advises (while on antibiotics) taking the refrigerated probiotic and sprinkling it in yogurt to eat it, so that it coats the entire GI tract from beginning to end. He had my son taking the probiotic about 2 hours after the antibiotic. It was about "100 billion/day".

On Jul 25, 2012 10:14 PM mark5004 wrote:

I had the same thing for months. My ENT prescribed Fluconazole 100mg one per day in addition to magic mouthwash.  I acquired Leukemia, post treatment, so it makes me wonder about the strength of your husband's immune system.

Getting off that feeding tube will improve his health as well.  A persistent open wound has a toll on the immune response.

Mark

This was true for my hub as well & within 24 hours of it being removed; a lot of symptoms cleared up. The peg was horrible no matter how much we cleaned it & when they pulled it out; it was black. I wanted them to culture it a few months before; the general surgeon refused. I don't want to discourage the peg because its needed for most; I think I've changed my tune on when it put it in & that's if a person has issues.

100mg Fluconazole did nothing for him; it had to be a course of 200mg.

They're talking about thrush on another board & I want to share what's being said there. Mark; I'm sure you'll be interested in some of the comments.

acidophilusis what is in yogurt (without having to eat so much) you can get it at any health food store or pharmacy even Walmart has it.

Rinse your mouth with theApple cyder vinegar a few times a day and take 2 capsules in am and 2 at night. Do this for 2 weeks even after the visible white goes away.

Thrush in the mouth is a yeast overgrowth and is very hard to get rid of, they usually Rx Nystatin, I've been trying to rid of it since March, Cut out all Sugars as it feeds the yeast, nothing white such as breads, grains etc

Get powdered probiotics from GNC and pour it into mouth and let it dissolve.
http://www.gnc.com/product/index.jsp?productId=3539842&c

Hydrogen peroxide for mouth and toothbrush then lots and lots of quality probiotics. I prefer the refrigerated one with some bifido bacteria not just acidophilus. Do these for two or three months maybe longer. I also agree with the Apple Cider Vinegar but of the three - the probiotics will have to be done for months as it takes months for the gut to rebulid the colony of good bacteria. You can try a prescription medication but they only work in the short term - and they are not healthy to take long term. If you are suffering, take the prescription and start the ACV, H2O2 and quality probiotics then keep up the probiotics for months.

We have a Lyme specialist who advises (while on antibiotics) taking the refrigerated probiotic and sprinkling it in yogurt to eat it, so that it coats the entire GI tract from beginning to end. He had my son taking the probiotic about 2 hours after the antibiotic. It was about "100 billion/day".