sbahmed

sbahmed's Recent CancerCompass Activity

• sbahmed has replied to a post on the message board

  Jules,  Thanks for the comment. My mother passed away recently and I can understand the desire to look back and wonder what could have been if we had access or known about this treatment. Please don't do that to yourself. I know you did everything you could to give your husband the best care and opportunity for survival following his diagnosis. And prior to that, you should comfort yourself kn knowing that yo...

  February 08 at 2:03 PM view post

• sbahmed has replied to a post on the message board

  Dear J., Your dad is a couragous and blessed man. I'm grateful that you took the time to share his story. You've given me inspiration and a sense of hope that in this time of trial and despair, my father will continue on and find a new life with his family and in promoting good works. It'll never be the same without mom at his side but that's okay, he has to live for himself. Thank you again and I wish your family ...

  February 08 at 1:18 AM view post

• sbahmed has created a new message board discussion

  I noticed messagers here about Novocure and NovoTTF. For those of you who aren't familiar with the treatment, I would recommend that you watch this TED talk that was recently posted: http://www.ted.com/talks/bill_doyle_treating_cancer_with_electric_fields.html If you or a loved one is looking for treatment or dealing with a recurrance, ask the oncologist about Novocure. By the way, I recently lost my mother to GBM...

  February 06 at 7:55 PM view discussion

• sbahmed has replied to a post on the message board

  I really appreciate it. God bless you for your kindness and dedication to your family. I'll keep punting and we'll slowly find peace in our new reality. Sending you peace and prayers, Bilaal

  January 25 at 9:39 PM view post

• sbahmed has replied to a post on the message board

  Thanks for the detailed, thoughtful response. I want to take your advice but I feel such great anxiety in allowing my father to sit idly and then become depressed. I also need to understand that this is part of a difficult process and that it's natural for him to reflect on his 40 years of marriage. I was hoping that some kind of vocation or hobby -- whether it's volunteering, teaching, or crafts -- would give him ...

  January 24 at 7:01 PM view post

• sbahmed has created a new message board discussion

  My father is 65, lives in Austin, and recently retired after his wife (my mother) passed away following a year-long battle with brain cancer. I am trying hard to encourage my father to seek out an encore career and seek out new passions. I feel like there are many others in his position who can offer advice and friendship. Are there any caregivers out there in a similar position?  I'd appreciate any suggestio...

  January 24 at 6:24 PM view discussion

• sbahmed has created a new message board discussion

  Pasquale Bruno was a freelance critic for the Chicago Sun-Times. In this recent Washington Post article he describes his experience with GBM since being diagnosed in Dec 2009. http://www.washingtonpost.com/national/health-science/brain- I'm amazed at how well he's doing given how long he has been on treatment and his age. Your thoughts?...

  October 12 at 9:18 PM view discussion

• sbahmed has replied to a post on the message board

  Thanks so much!

  September 15 at 10:01 PM view post

• sbahmed has created a new message board discussion

  For all those in the Houston area:

  I'm really interested in setting up a casual face-to-face gathering for many of you that are local. I'd love to meet you in person and hear about your experiences.

  I was thinking of setting up something in early October.  

  Post your thoughts or message me directly if you're interested in helping coordinate this.

  Thanks!
  Bilaal 

  September 15 at 9:09 PM view discussion

• sbahmed has created a new message board discussion

  I've found a couple of helpful websites of people documenting their (or a loved one's) experience with GBM online: http://www.jerrykline.net/ http://www.brainhospice.com/ I would be interested to know if there are any personal websites you've checked for inspiration and guidance....

  August 29 at 8:45 PM view discussion