scootie45

My husband Alan was diagnosed with SNUC-sinus nasal undifferentiated carcinoma of the (R) maxillary sinus in Jan. of 2008. He underwent 3 rounds of chemo with 5FU and Cisplatin as well as 39 IMRT treatments. He had bilateral pulmonary emboli from his PICC line and spent nearly a month in the hospital for that. Had horrible mouth sores, lost nearly 40# before he got his PEG tube-that is why we encourage anyone who is undergoing treatment for any head and neck cancer to get a PEG tube-you may not need it, but better to err on the side of caution. I have been an RN for 35 years, but worked mostly with cardiac patients, so cancer was a whole new world. I have found this site to be so helpful-you find people who are going through the same things you and your loved ones are. It has been 18 months since he completed treatment and scans are clean so far, but I still come here-we hope our experiances can be of help to others just starting this journey.