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shariv's Recent CancerCompass Activity

  • shariv has replied to a post on the message board

    This is just my opinion. Your dad needs to decide for himself. I think the most important thing is finding a good surgeon at a good hospital with a brain tumor board. You can find out which hospitals are top for neurology at this website:  http://health.usnews.com/best-hospitals/rankings/neurology-and-neurosurgery  Johns Hopkins is listed as #1.  Which hospital is your dad going to now? How does the ...

    March 25 at 1:54 PM view post
    • shariv has replied to a post on the message board

      I'm sorry your dad's tumor came back and that it's a higher grade now. The good news is that they got all of it out! That is a great thing and really helps with surviving this thing. I know someone who had the same tumor, had 100% removal and is still alive and has had no growth. I think she had surgery in 2008. Everyone is different and there's really no way anyone can tell you how long he will live or if it will ev...

      February 20 at 7:42 PM view post
      • shariv has replied to a post on the message board

        The diet is basically fruits and vegetables (juiced or whole), nuts, and whole grains. No animal products, no sugar, no processed foods.  If you watch the movie 'Forks Over Knives', it will explain this diet and how it helps everyone stay healthy. Everyone needs to watch this movie, not just cancer patients. I watched it on www.hulu.com for free.  You can also read Joel Fuhrman's books (Super Immunity and...

        December 02 at 5:02 AM view post
        • shariv has replied to a post on the message board

          Sorry, I am answering Sherry's post. I tried to add it, but it didn't work.

          December 02 at 4:41 AM view post
          • shariv has replied to a post on the message board

            I have a grade 3 oligodendroglioma. I've seen Dr. Stevens, but now I am seeing Dr. Peereboom. I can't remember my surgeon's name, but she was good. I've heard Dr. Barnett is really good. All of my doctors are great. They all spend as much time with me as I need, answer all of my questions etc. The first appointment was with Dr. Stevens and he spent a lot of time with us explaining everything that I had spent searchin...

            December 02 at 4:40 AM view post
            • shariv has replied to a post on the message board

              Sorry to hear about your mom. I don't have a GBM, but I have a grade 3 oligodendroglioma with no deletions. I've had 2 surgeries, chemo and radiation. The tumor kept growing. I take a lot of supplements too. The only thing that has kept my tumor from growing is eating a whole food, plant based diet. My tumor hasn't changed since I started eating this way and it's been stable since August 2011. Watch the Forks over Kn...

              November 28 at 3:17 AM view post
              • shariv has replied to a post on the message board

                I tried a lot of alternative treatments and the only thing that has worked to keep my oligodendroglioma stable is eating a whole food, plant based diet. Diagnosed in 2008, had 2 surgeries, chemo/radiation and it didn't stop growing until I started eating this way. It hasn't grown or changed since August 2011. You can watch the Forks Over Knives movie free on hulu. It will give you a lot of information about this diet...

                November 28 at 3:06 AM view post
                • shariv has replied to a post on the message board

                  That's great news! So happy for you! Have a great Thanksgiving!

                  November 28 at 2:41 AM view post
                  • shariv has replied to a post on the message board

                    I go to Cleveland Clinic. I wrote about it on the oligo story post a few minutes ago. I asked why you weren't happy with your doctors. I went to a local hospital and it was the worst experience. I got a 2nd opinion at Univ of Michigan Hospitals and wasn't happy with her either. She was referred by the original local neurosurgeon. When I asked him about Cleveland, he told me he didn't know anyone there and wouldn't kn...

                    November 28 at 2:39 AM view post
                    • shariv has replied to a post on the message board

                      Doctors and the internet can tell you how long you have to live, but no one really knows. Everyone is different. They say if you have the deletions, you will live longer.  I was diagnosed with a grade 2 oligo in 2008. Had surgery then. It grew slowly and had another surgery in 2009. Neither surgery got all of the tumor. After the 2nd surgery, it was upgraded to a 3 and had no deletions. I had temodar/radiation ...

                      November 28 at 2:35 AM view post
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                      About shariv

                      Patient
                      Brain Cancer

                      I was diagnosed with a grade 2 oligodendroglioma in August 2008. It was the size of a softball. I had surgery, but it was a partial resection. I switched to Cleveland Clinic and had MRIs every 3 months. It grew slowly so I had another surgery in July 2009. It was a partial resection because there was some functional brain in the middle of the tumor. The pathology report showed some of it was grade 3 with no deletions. I had 6 1/2 weeks of radiation and temodar. Then I took temodar from January 2010 through June 2010. I had no side effects from the temodar, but did have some hair loss from the radiation. Stable MRIs until May 2011 when it showed the cancer was growing slowly again and there was a spot of fast growing tumor cells. God gave me lots of signs to eat a vegan diet. I started eating vegan (whole foods, plant based) in early June. The MRI 3 months later showed no growth and no enhanced spot! All MRIs through October 2013 have shown no growth or enhancement! :)

                      Watch the Forks Over Knives movie for information about how diet can help you.

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