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shelby1's Recent CancerCompass Activity

  • shelby1 has replied to a post on the message board

    Hi Ask if Cyberknife eliminates future surgery and success rate. Chemo can shrink things to operable stage. Find "specialist" in PC. Good luck!!!

    April 22 at 1:13 PM view post
    • shelby1 has replied to a post on the message board

      Hi Karen, Glad to see you're still here! never got that Gemzar/Abraxane combo last November. Blood levels too low??? Went with just Gemzar but insurance finally approving combo after results published. Now low do your platelets go? White cells here are O.K. but platelets way too low. Still pushing though!!!   Pat

      April 17 at 5:21 AM view post
      • shelby1 has replied to a post on the message board

        I'm surprised about the pse as it's a surgical procedure and hard to get.. The purpose is to allow chemo again. Why become restaint to two chemos at one time? GAX and GA are different from Folfiri so why use them now?   

        April 06 at 1:06 PM view post
        • shelby1 has replied to a post on the message board

          Hi We had the same experience but from golf ball to baseball. Radiation damage too. But, we had other chemo choices after all that.  No other chemo choices????

          April 03 at 2:38 PM view post
          • shelby1 has replied to a post on the message board

              We had nanoknife 2 years ago. We did our research and found the best surgeon within our allowalbe distance.  Only point here was that there are nanoknife doctors-surgeons and interventional radiologist across the country now as opposed to the past ,that are well qualified. There are many people (friends of ours included) who cannot afford to travel far and feel frustrated who don't realize that there is h...

            April 02 at 2:04 PM view post
            • shelby1 has replied to a post on the message board

              There are many places that have been doing I.R.R for years! Distance may not be such an issue as debt. Not all people can afford to fly, stay away.Nanoknife is a 7 to 10 day, if not more recovery time.  There are well qualified doctors across the country that are well versed with the Nanoknife. Don't let distance stop you from looking locally also! This is an expensive cancer ride with many options.

              April 02 at 12:36 PM view post
              • shelby1 has replied to a post on the message board

                Hi, We had Nanoknife two years ago, so yes it's worth the trip but there are other places that do it too if it's a distance or financial problem. Google Nanoknife locations

                March 31 at 8:16 PM view post
                • shelby1 has replied to a post on the message board

                  I would still recommend nanoknife. MY issue was to tell people not to ignore CA19-9 levels if they start climbing.  Our original tumor is dead. It's been almost two years since our Nanoknife. The new tumor is somewhere else. Tumeric is not an option because of clotting issues and cannot be tolerated by everyone.  Dr. Martin was our first choice but logisitics were a problem for the whole family.  Good ...

                  March 30 at 2:21 PM view post
                  • shelby1 has replied to a post on the message board

                    Hello everyone! Doctor was wrong.  We were off chemo for six months which is why we insisted on CA19-9.  Our doctor never did one! We then insisted on PET/CT scan, biggest obstacle is insurance. Found new tumor!!! Found new doctor! (Oncologist) Notified Nanoknife doctor too!!!

                    March 26 at 1:56 PM view post
                    • shelby1 has replied to a post on the message board

                      Hi I thought I read that the hospital in Toronto had a big pancreatic cancer research grant. They would sure know of GTX and/or GAX  

                      March 20 at 12:29 PM view post
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                      About shelby1

                      Caregiver
                      Pancreatic Cancer
                      Alternative Treatments, Cancer Treatments, Clinical Trials and Research, Radiation

                      Wife, mother, spouse of husband with pancreatic cancer, 60's Gemzar, Xelox, Nanoknife,

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