Loading...

shelby1's Recent CancerCompass Activity

  • shelby1 has replied to a post on the message board

    This is a difficult question. We went to StonyBrook, had a lot of confidence in Dr. Watkins. We had "open" surgery.  10 days total  in hospital. Both Drs' Watkins and Dr. Martin have probably the most experience. I think Dr. Martin is the most agressive in his approach with Nanoknife as he does perform Nanoknife differently as regards metastatic disease. Our recurrence elsewhere was not StonyBrook approved ...

    April 16 at 1:04 PM view post
    • shelby1 has replied to a post on the message board

      CA19-9 levels go up for other reasons too which is why it's not used primarily for chemo success. How much did it go up and does your mother have a cold or anything?  

      April 06 at 1:25 AM view post
      • shelby1 has replied to a post on the message board

        Does your wife have her spleen? I thought fatty liver was from high cholesterol. We had the Nanoknife and had similiar problems  and we're still here three years later!  God luck

        April 06 at 1:05 AM view post
        • shelby1 has replied to a post on the message board

          Hi  I thought the creon was to help absorb the nutrients and the probiotic is to help digest food. Two different things. There are other enzyme brands but they are  also prescrition drugs and some are cheaper than others. The probiotic is to help with diarrhea only.via digestion.  I wouldn't mess with absorption drugs because of the importance they play. If the insurance companies could find a cheaper/...

          February 28 at 9:38 PM view post
          • shelby1 has replied to a post on the message board

            Sloan has a new way of thinking as how to save money on cost effective treatment. One year is too long. Don't be bullied!!!!

            February 28 at 5:18 AM view post
            • shelby1 has replied to a post on the message board

              My husband was on full Gemzar alone- lost no hair. Now he is on half Gemzar with full Abraxane- no hair loss! Depends on the person I think. Other than being tired this is a mild chemo for him. Good Luck

              February 26 at 4:55 PM view post
              • shelby1 has replied to a post on the message board

                Try Hopkins, they have a clinic on Tuesdays and you can make your own appointment. It's a team approach and the team specializes in Pancreatic cancer. Be sure to bring any and all CD's  of CT scans etc. with you. Yale should give them to you free. Any medical reports are helpful. We live in CT and go there often. Takes about 5-6 hours by car. To fly you have to get to Baltimore by Taxi  because it's 11 mile...

                February 12 at 10:49 PM view post
                • shelby1 has replied to a post on the message board

                  There are people on the Hopkins Pancreatic board who have metastisized lung nodules for over two years. One on the board today! Ask there. Best cancer websites/pancreatic or  via the Johns Hopkins Pancreatic cancer site under patient discussions-blog. Good Luck.

                  February 12 at 10:33 PM view post
                  • shelby1 has replied to a post on the message board

                    treatment is an individual choice but death is permenent and you can't take it back. Money should never be an issue, sounds like English medicine! This is a board of help and hope. We strive to survive and help others with treatment ideas. We are over 5 years past "3 months max"  and learned much from this board.. No guaraantees in life, but " yes Virginia there is a Santa Claus" and we're trying to help others ...

                    February 10 at 2:03 PM view post
                    • shelby1 has replied to a post on the message board

                      Sometimes  the tumor marker can go up because of inflamation at the site  from chemo working.. Sometimes because of reasons other than PC. Enjoy your trip! . 

                      January 31 at 1:37 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About shelby1

                      Caregiver
                      Pancreatic Cancer
                      Alternative Treatments, Cancer Treatments, Clinical Trials and Research, Radiation

                      Wife, mother, spouse of husband with pancreatic cancer, 60's Gemzar, Xelox, Nanoknife,

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.