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shelby1's Recent CancerCompass Activity

  • shelby1 has replied to a post on the message board

    Get the Hospice now. You can always cancel. All medications are covered by Medicare if on Hospice too! You need help now. Hospice nurses can help with type of medications and you can get an aide immediately!! Call your doctor tomorrow he or she can arrange things by the end of the day!!!!!

    January 11 at 7:59 PM view post
    • shelby1 has replied to a post on the message board

      My husbaand had surgery for hernia three times. The third time by a doctor who specializes in gastro stuff. He did not use a mesh but a biodic patch. Held until my husband gained too much weight(which this doctor warned us about) but Oncologist wanted the weight back. Need doctors to work together better! Anyway, it held for almost 18 months and held until the pressure of the excess weight. We were off chemo and bloo...

      January 07 at 12:02 AM view post
      • shelby1 has replied to a post on the message board

        My husband had a hernia- very large but not troublesome. Our Oncologist insisted that it be removed in between chemos Looked like a basketball under his shirt. It came back. Fixed again but NOT with a mesh but a biologic something or other. Had to make sure he didn't gain too much weight.We called it Alien

        October 01 at 5:06 PM view post
        • shelby1 has replied to a post on the message board

          Hi, Just e-mail or call them. We did and heard from all of them that we contacted. P.S. make sure you have hard copies(disks) of ALL scans , tests and health history.

          July 31 at 12:29 PM view post
          • shelby1 has replied to a post on the message board

            Interesting problem. The Gemzar/Abraxane cocktail is more tolerable for some people than the Folfirinox. Both are for metastactic PC.  Why a clinical trial?  What are the side effects of the third medication compared to the Folfirinox?. You can Google OGX-427 for information as to the thinking around it. Would your mother be eligible for just the Gemzar/Abraxane if this trial doesn't agree with her or will ...

            July 28 at 2:43 PM view post
            • shelby1 has replied to a post on the message board

              This is exactly what happened to my husband  in 2012 but our doctor would not do a petscan  this year just CT scan only because of insurance. The tumor at the kidney site seems to be a "normal" progession of PC. as it's really in the middle of the body. We did SBRT but radiation didn't work in the past and not this time. The Hopkins site has people who went to Folfox for this type of tumor, we were too late...

              July 27 at 1:48 PM view post
              • shelby1 has replied to a post on the message board

                I know that the doctor there went to watch Dr. Martin in KY. Just call the pancreatic team at Hopkins they know.

                June 16 at 11:21 AM view post
                • shelby1 has replied to a post on the message board

                  We had C-Diff and just plain diarrhea. We watched what we ate- no rich food, fats, greasy food etc. but we also took Benefiber with each meal-per doctor's orders. Adds fiber to absorb extra water. Worked for us for years. Wrong food was always our problem. Won't hurt anything either.  C-Diff testing is good idea too!!!

                  June 14 at 2:47 PM view post
                  • shelby1 has replied to a post on the message board

                    I don't think so. I understand that PET Scans tell if there is cancer anywhere because the test "lights" up where there is lots of sugar where it shouldn't be. I don't think the scan could tell if the arteries or veins were involved. If it could many many aborted Whipples could be avoided. Our experience was that the PET Scans are more likely an insurance issue because they don't want to pay for it and push very hard...

                    June 10 at 1:23 PM view post
                    • shelby1 has replied to a post on the message board

                      Hi, Fatigue is normal and probably your mother's worst enemy that causes lots of what she's going through. Our doctor gave my husband Remeron to help him sleep at night. It's an anxiety drug but it was given for sleep so he told my husband. Many PC people need it. After a little while on this she may go to the grocery store for a short time!   The fatigue will improve IF she is willing to go.   Good l...

                      June 10 at 1:02 PM view post
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                      About shelby1

                      Caregiver
                      Pancreatic Cancer
                      Alternative Treatments, Cancer Treatments, Clinical Trials and Research, Radiation

                      Wife, mother, spouse of husband with pancreatic cancer, 60's Gemzar, Xelox, Nanoknife,

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