singinglady

singinglady's Recent CancerCompass Activity

• singinglady has replied to a post on the message board

  dont know why the first part of my reply was cut out of the posting, but in essence what i was writing is that steroid withdrawal can cause the symptoms you're describing all the way to full blown       temporary         psychosis      but it must be treated if this is what he's suffering    sounds a bit like paranoia to me   see and addictions expert b...

  May 02 at 9:37 AM view post

• singinglady has replied to a post on the message board

  ycribe all the way to the extreme of psychosis       see an expert on addictions and talk about 'protracted drug withdrawal syndrome'   but be sure the expert is really well informed; you might contact your local affiliate of the National Council on Alcoholism/Drug Addiction       good luck     this can be treated

  May 02 at 9:33 AM view post

• singinglady has replied to a post on the message board

  most post whipple patients experience horrific spasms; if you go to the site post whipple pain you will see fellow sufferers and their remedies; i had a full whipple and liver resection and used hyoscyamine for a short period then switched to large doses of pepto bismol and then to extra strength tylenol which has daily safety limits because if effects liver enzymes    i live mostly pain free and drug ...

  November 21 at 11:18 PM view post

• singinglady has replied to a post on the message board

  i had 2 learn not to drink fluids with or for some time after my meals, to take creon (a Rx) with my meals, to eat small meals slowly so that i eat more frequently; i could never eat what others consider 2 be a 'normal' meal     good luck; i, btw, am 5 years post

  May 10, 2012 view post

• singinglady has replied to a post on the message board

  my gallium 68 showed bowel -- bowel -- as a tumor  i've kept it because the leading radiologist who premiered it here in nyc at the time conducted and interpreted it so be careful who you believe in addition, my octreoscans     3 of them        have all been negative and yet richard warner, the 'father' of carcinoid/net's supervised the very complex staini...

  March 31, 2012 view post

• singinglady has replied to a post on the message board

  clicked reply to respond but just in case u did not receive it, what i said, essentially is altho u did not say, it sounds as tho u had an adenocarcinoma and mine is the rarest of the neuroendocrine cancers, somatostatinoma if i'm correct and you had adenocarcinoma, these 2 cancers behave differently mine kills with hormone and steroid secretions while adenocarcinoma destroys organs   mine can do that bu...

  March 29, 2012 view post

• singinglady has replied to a post on the message board

  if it's carcinoid it is; it is often a difficult to make diagnosis; if you're near nyc you could see richard warner, md at mt sinai who knows how to spot it; down south it would be eugene woltering, md in new orleans; in the midwest tom odorisio in iowa should know how;  if you want direct communication, Message edited by CancerCompass staff. For personal protection,email address removed. Consider private reply...

  March 28, 2012 view post

• singinglady has replied to a post on the message board

  i had a total oophorectomy 22 years ago when i was past child bearing age but i have not ever forgotten the early symptoms of pregnancy years ago which included sore & swollen breasts as well as fluid oozing from my nipples and some late night nausea and revulsion at the smell of alcohol and tobacco -- all within the first few weeks of pregnancy   good luck

  January 26, 2012 view post

• singinglady has created a new message board discussion

  have seen the top gastroenterologists and cancer surgeons & oncologists in nyc & the guesses as to the souce of my post whipple pain range from gas to nerve damage to scar tissue to emanating from the tumors left behind in my superior mesenteric artery the pain has been unbearable and i have resisted pain meds because i am one who builds a very rapid tolerance to any kind of med and once the tolerance has se...

  January 19, 2012 view discussion

• singinglady has replied to a post on the message board

  well thank you for that        i am so fed up with pharmaceuticals that i will not try any more      like you i ask the universe (as a recovered catcholic, that vernacular works best for me, but we are referring to the same source) for guidance and, i, too, have not been led astray        am most interested in non pain med cure for the daily agonizing pain i've h...

  January 14, 2012 view post