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slacy40's Recent CancerCompass Activity

  • slacy40 has created a new message board discussion

    I lost the love of my life and my best friend this morning.  He was diagnosed with GBM exactly one year ago tomorrow.  He fought hard and always kept a positive attitude.  I am so thankful that my husband is a child of the King and in the presence of our Savior!

    September 18, 2013 view discussion
    • Karat24

      Karat24 I'm so sorry for your loss, I lost my husband Ian on October 6 th after surgery, this is the first time I've been on this site for a long time. He was doing well after surgery and 6 days later, he had a seizure and it stopped his heart.,his was a stage 2 suspected glioma, I'm going to the hospital next week to talk with the doctors about what exactly he did have and get a start on moving forward...

      October 24 at 8:14 PM
  • slacy40 has replied to a post on the message board

    So sorry you are going through this Tessa. My husband has not been himself since his initial surgery Sept 19, 2012.  I have mourned the loss of "him" for a year now.  It really never gets easier; but thinking about the good times we've had does help. My husband had a recurrence in July.  It was in his right basal ganglia, and is very very aggressive. We received the diagnosis of recurrance July 26th....

    September 14, 2013 view post
    • slacy40 has replied to a post on the message board

      My husband finished radiation therapy in December, Temador in June.  There was a "spot" on his MRI in April, by July the spot had tripled in size; it was recurrence. I imagine they'll probably want to do an MRI just to be sure, but you never know.  I personally would insist on it.   In my husbands case I believe they weren't as worried because we had a diagnosis of AO, instead of GBM.  Unfor...

      August 26, 2013 view post
      • slacy40 has replied to a post on the message board

        Singing River Hospital System in Pascagoula, MS  

        August 26, 2013 view post
        • slacy40 has replied to a post on the message board

          Great suggestions. I hadn't thought about an adjustable bed.  I'll have to look into the cost, as money is tight right now.  That would be the perfect solution. I do have a "chuck".  It's large and heavy duty, our local healthcare distributor had one donated and gave it to me. I just can't imagine how Robert must feel to be going through this.  To watch him deteriorate is devestating, if I'm th...

          August 26, 2013 view post
          • slacy40 has replied to a post on the message board

            My husband had an enhancement on his MRI the 6th of July.  The Dr felt sure it was necrosis, because it was in the radiation treatment area.    My husband had a spectroscopy to help distinguish between recurrence and necrosis. Sadly, it was recurrence.

            August 26, 2013 view post
            • slacy40 has replied to a post on the message board

              Thank you for your response.  Our stories sound identical.  I am giving Robert sponge baths now as getting him into the bathroom has become way too difficult.  He also has the sores you've described. He fell again this morning, trying to get from the wheelchair into the recliner.  Fortunately my oldest son was able to pick him up and place him into the recliner.  I don't know what I would ha...

              August 26, 2013 view post
              • slacy40 has replied to a post on the message board

                Through this I have learned it's ok to ask for help from others, and when help is offered take it! That I'm stronger than I ever knew I could be. Never take a second for granted.

                August 24, 2013 view post
                • slacy40 has created a new message board discussion

                  In the last month my husband has deteriorated rapidly, and is now no longer able to walk.  He cannot use the left side of his body, and he is extremely weak.  He also has a constant need to urinate, but is rarely successful. We did our hospice intake Friday, and this has been very difficult for my husband.  He does not want to be moved into a bed, and most certainly does not want a catheter.  I c...

                  August 24, 2013 view discussion
                  • slacy40 has created a new message board discussion

                    We arrived this morning for our first appointment at MD Anderson.  Everyone was very friendly, and made us feel very comfortable. After speaking with a nurse and a resident, the Dr. came in and spoke with us.   She told us that they retested the bioposy sample from his craniotomy in Sept.  She said without a doubt it was glioblastoma ALL along.  We were told Robert had AO, and he received tr...

                    August 19, 2013 view discussion
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                    About slacy40

                    Caregiver
                    Brain Cancer

                    I've been married for 25 years to Robert. We have three grown children. My husband was diagnosed September 15th with Anaplastic Oligodendroglioma. To say it has changed our lives would be an understatement, but we're doing ok! My husband has a positive outlook, even though he feels terrible and isn't able to do lots of things he use to be able to do. I'm very thankful for a loving family and great extended support system.

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