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smylee's Recent CancerCompass Activity

  • smylee has created a new message board discussion

    Hi everyone. i'm not sure what its called but has anyone had the proceedure where they put a cathader in the groin and shoot something up to get the tumor on the liver?  i just want to know more about it and the outcome  i am facing it here real soon  please share if you can  thanks  vicki

    October 11, 2012 view discussion
    • smylee has replied to a post on the message board

      Hi Brenda, I was diagnoised 3 yrs ago with carcinoid cancer. the primary was in my small intestine and they removed it with my gallbladder. now i have several tumors on my liver one being the size of a grapefruit :(. we did the scan and watch for three yrs now i have to go do a thing where they shoot stuff right at the tumors to try and shrink them. so sorry to hear about yours  good luck and keep us posted.&nbs...

      October 11, 2012 view post
      • smylee has replied to a post on the message board

        Hi Millie,so your started in the liver huh? and its carcinoid? because they say chemo wont touch mine. yes i am still working but it can be a stuggle at times said the tumors feed off stress well i feed mine pretty good :(  please keep in touch  and let me know how work is. where abouts are you located at?  well have a wonderful eveing ttyl  vicki

        January 29, 2012 view post
        • smylee has replied to a post on the message board

          Hi Millie, Oh dont be sorry, Well my tumors i have one the size of a lg grapefruit, a few the size of an orange and several small ones, i dont do chemo at all they say chem dont touch the carcinoid cancer?? i take the sandastation for the tumors gave me hot flushing and also SEVERE diareah (?)  something i've never really experince ever :(  so i go for a scan every 3mths to check the size.   where...

          January 28, 2012 view post
          • smylee has replied to a post on the message board

            Hi Millie,  its not my dad its me with this.not for sure why nothing has been done besides the scanning every three months. not sure about radio ablation,, what do they actually do?  I know the size of my tumors are staying the same and they hope that the sandastation might even shrink them ?? thanks for your concerns and replies i truly appreciate them. 

            January 28, 2012 view post
            • smylee has replied to a post on the message board

              Hi Leonard,, I know i really feel i have a good dr and i have never felt like that with NO dr but i pray he is on top of it all . i go back again in march , I know some days are easier then others???    keep in touch .... take care Vicki

              January 22, 2012 view post
              • smylee has replied to a post on the message board

                Hi Leonard,, no problem,  i know you think the wait and see is a scarey deal but thats what i'm doing,   thank you  vicki

                January 19, 2012 view post
                • smylee has replied to a post on the message board

                  Hi Leonard, well i am going back and forth every 3mths to have a scan done to see how much or if any at all the tumors are growing. i do take the sandastatin shot every 28days. as of now we arent doing anything, i do feel like i got a great dr.though for he's real knowagable about the carcinoid. i have heard people say they're doing nothing??? which makes me wonder but not sure what all they can do for my liver is p...

                  January 19, 2012 view post
                  • smylee has replied to a post on the message board

                    Hi Pam,, I actually got several tumors on the liver, one is a size of a grapefruit and then one like a lg orange and several others :(   what a battle,   hope all goes well with your dad,  its like one day at a time ..  take care  will keep looking for updates,    vicki

                    January 17, 2012 view post
                    • smylee has replied to a post on the message board

                      hi i'm sorry i havent been on here in like forever and i popped on this morning i hope and pray the best for your mom the carcinoid is a bad thing but they say the shot is the only thing for me like chem or radiation wont touch the cancer they say ??? its a very rough road but pray someday they will have better meds or something i guess we can be thankful carcinoid is very slow moving but then hard to detect too. hap...

                      December 20, 2011 view post
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                      About smylee

                      Patient
                      Liver Cancer

                      My name is Vicki, I had surgery may of 2009 to remove the main primary tumor from my small intestine, also took several lympth noids out that had tumors, then with the sandastation shot i get every 28 days i had to have my gallbladder removed, i have two large tumors ( sz of grapefruits) on my liver along with several smaller ones but as of now we havent done anything to the ones on my liver, i go up and get a ct scan every 3 months to see if they have gotten bigger, not for sure what the next steps will be, would like to hear from anyone with my type of cancer (carcinoid cancer) or any info that i can use to help me understand this better, i am so scared, I just tell the good lord i am not ready to go yet, god bless you all....... vicki

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