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sue61's Recent CancerCompass Activity

  • sue61 has replied to a post on the message board

    Hi Bob,I too am suffering with mrcc,I used the mouth wash when I was on sutent my dentist told me about a tablet called Quantum Ora Moist,its a time released tablet that is put on the roof of the mouth and last about 4 hrs. I use it on a regular basis even now. If you come across another tablet that claims to do the same make sure the main ingredient is (xylitol) my dentist said its what causes the moisture in the ta...

    March 28, 2013 view post
    • sue61 has replied to a post on the message board

      I started Inlyta in October and so far have had only mild side effects,tired no energy mouth sensitivity to some foods. My tumors however have still continued to grow so we are looking for another chemo to try,we have all ready tried sutent and afinitor.I've been diagnosed with mrcc in July/10 and had right kidney removed and had radiation done then and just finished more radiation on left and right lung and upper ri...

      March 11, 2013 view post
      • sue61 has replied to a post on the message board

        Hi there, I have been on Inlyta since October and only side effects I feels are joint pain and no energy,my dose is 10,mg twice daily. so far no problems with hands or feet up to now.

        February 14, 2013 view post
        • sue61 has replied to a post on the message board

          My oncologist is ok with me taking the paw paw while on sutent. I find taking the sutent in the evening as close to bedtime as I tried taking it in the afternoon and it just made me feel sick all day. I take it around 8 pm and that way I don't feel sick all day. Good luck.  

          March 13, 2012 view post
          • sue61 has created a new message board discussion

            I was diagnosed with renal cell carcanoma metastasis and had my right kidney removed Sept. of 2010. I was told that pawpaw was a great treatment for killing cancer cells in your body. I did do some research and it sounds great. Is there anyone who is currently on it who could give me some advise? It doesn't interfere with chemo or other drugs . I will ask my oncologist about it and hope he supports me in this as I fe...

            February 11, 2012 view discussion
            • sue61 has created a new message board discussion

              Has anyone or is anyone on this LDN as part of their mrcc treatment? I have just heard about it and am very interested.

              January 25, 2012 view discussion
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              About sue61

              Patient
              Renal Cell Cancer
              Cancer Treatments, Emotional Support, Prevention Tips, Side Effects

              Hi everyone, I was just diagnosed with rcc this past august,It has spread in the left side of my sacrum. I was first diagnosed with fybromyalgia 5 yrs ago. Every time I went to the doctor with another pain and problem he always related it to fybro. I had my right kidyney removed in Sept. and had radiation for pain (with no relief). Now I'm waiting to get on sutent along with zometa. I'm so nervous and anxious about this drug,I don't know what to expect. Any tips and advice would be great. I'm 49, married ,mother of 2 and grandmother of 2.

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