surf2kona's Recent CancerCompass Activity
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Thanks. Hope all is well out west...
Brian
April 21 at 6:57 PM
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I was reading the string about cholangio resistance to chemo. I just lost my brother about 3 months ago after a 3 year fight.
Our doctors were clear from the start that the chemo would not cure my brother and that it would stop working eventually. The fact that he lasted 3 years on gemzar + cisplatin is more than I expected. I think his anti-cancer diet, supplements and determination to ...
April 18 at 7:45 PM
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Anna and Leonard,
Thanks for the kind thoughts. This disease is definitely rough and hard to beat, but miracles happen every day.
I applaud Anna's effort on the "try everything" approach. If it's not toxic, why not try it?
I have read positive things about baking soda. It goes with the idea that cancer thrives in an "acid" environment. I monitor my pool chemistry every week gets easil...
March 04 at 3:14 AM
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Anna,
I am so sorry to hear about your Mom. I just lost brother to cholangio after 3 1/2 years. It was pretty rough, but we learned a lot along the way. Here are a couple of thoughts for you:
1) Diet is very important (wheat grass, cruciferous vegetables, turmerica, mushroom extracts, just to name a few items). Buy Anti-cancer: A new way of life for more details. I also have my brother...
March 03 at 3:09 AM
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Thanks. Glad to see you that are still out here. I think of your story and Karen's story sometimes when I am talking with my brother and his family. They are getting a little battle weary, but still hanging in there. He is more than hallf way to his goal of seeing his daughter graudate from high school, though.
December 30 at 12:17 PM
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Why is she not qualified for resection? 3cm is not that big. Is it in a bad location?
My brother was not eligible for resection at first since it was too close to teh vena cava. A few rounds of gemzar + cisplatin and his diet changes helped to shrink the tumor. Sloan Kettering (best in the country some say) declined to do it, but Dr. March at UPMC performed some "herioc" surgery for my b...
December 29 at 7:03 PM
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Stanford,
M brother was diagnosed over three years ago and is still hanging in there. We have done a lot research. The best treatment is still resection. Dr. Wallis Marsh at UPMC did my brother's when many other doctors said that they would not do it.
I also read a study lately where they gave patients the MUC-1 vaccine following resection. 4 out of 12 patients were alive and cancer-free 5 y...
December 28 at 5:11 PM
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Scientist accidentally find two genes that cause cholangio.
http://www.news-medical.net/news/20120717/Activating-NOTCH-and-AKT-gene-may-trigger-cholangiocarcinoma.aspx
It may take a while, but sounds like it could eventually lead to helpful treatment.
Brian
July 18 at 5:47 PM
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Not sure why the links won't come out right, but here are the two links from my last post:
http://www.brucehaney.org
http://health.groups.yahoo.com/group/Bile_Duct_Cancer/
Hope they will help you and others...
Brian
June 21 at 2:22 AM
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My brother, Bruce, was diagnosed with Cholangio in October, 2009. He is my hero, since he has fought and awesome battle with this disease. Bruce is a Type A real estate investor, so we were not surprised at how he approached this challenge.
Almost 3 years into the fight, his tumors continue to come back. Half his liver was removed, tumors moved to the lungs and spine, more chemo, more supplements, ...
June 21 at 2:20 AM
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About surf2kona
Caregiver
Bile Duct Cancer
Alternative Treatments, Cancer Treatments, Chemotherapy, Radiation, Spiritual Support