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taylors13's Recent CancerCompass Activity

  • taylors13 has replied to a post on the message board

    Yes, please don't give up hope. My husband is a six and half year AA3 survivor. During that first couple years it was tough. Lots of treatments and healing from surgery but today he is completely independent. He is 55 years young and although "medically" retired which he is mostly because of his short term memory loss, he lives a nearly normal life considering these changes. There were times that looked bleak. ...

    December 12 at 4:43 PM view post
    • taylors13 has replied to a post on the message board

      Hello Mike, so glad to hear your recurrence is under control. My husband is a six and a half year survivor of AA3 with no sign of tumor after having two small recurrences during this time. Avastin was his miracle. He is still being scanned every six months. He does have some battle scars. He has balance and memory issues and needs lots of sleep. But other than that he is living his life to the fullest. Thank you, Mi...

      October 12 at 9:13 PM view post
      • taylors13 has replied to a post on the message board

        Just had appt with husband's NO and MRI scan clear again. No treatments since Jan 2013. Truly amazing story of AA3 dx Aug 2008. Next scan scheduled for six month February 2015. Good luck all and God Bless. Never give up HOPE!

        August 22 at 4:04 PM view post
        • Fellinghelpless

          Fellinghelpless I'm so happy for you both!! God Bless!!

          September 18 at 12:39 AM
      • taylors13 has created a new message board discussion

        HUSBAND - Anaplastic Astrocytoma grade 3 - dx May 2008 UPDATE: 3/7/14. MRI miraculously showed NO enhancement or active tumor after being Avastin Treatment Free fourteen (14) months. It has been six years since the first brain cancer symptoms began. Just less than six months ago there was a small enhancement present and our Neuro Oncologist said he thought tumor was starting back up again. We watched it (no treat...

        March 08 at 1:40 AM view discussion
        • taylors13 has replied to a post on the message board

          Aaron13, I do not have any updates today.  But husband had an MRI last Wednesday and we see our Neuro Oncologist Monday, March 3.  I will update you then.  But as far as I can see he is doing very well. No changes.  He keeps moving on and living life well every day.  God Bless and best of luck to you.  

          February 25 at 3:52 PM view post
          • taylors13 has replied to a post on the message board

            Mollie, yes the memory is not good. His coordination is bad at times. He has fallen recently and he is clumsy. The only side effect he had from the Avastin treatments was nose bleeds early on in first year of treatments but it was not that bad. Yes everything will work out. You will adjust. God Bless the caregivers too! Stacey

            November 23, 2013 view post
            • taylors13 has replied to a post on the message board

              Sarah and mollie, my husband, five year survivor of AA3, just got results from a MR Spect scan after watching for two months with a small enhancement at original tumor site in Sept 2013.  Well what a great report we got! He has been off Avastin since Jan 2013.  The scan showed decrease in enhancement and the tumor graph showed NO tumor.  This is truly remarkable.  The enhancement is only 2 mm in s...

              November 22, 2013 view post
              • taylors13 has replied to a post on the message board

                Lots of hope here! My husband 54 years young was dx over five years ago with AA 3. He is doing well. He is very independent. Although he cannot work due to short term memory issues he is very happy and feeling blessed with each new day. Life has changed for us. We have three children ages 13, 14 and 27. He has been on and off Avastin treatments (approx 60 treatments) throughout these years. We are waiting on scan ...

                November 14, 2013 view post
                • taylors13 has replied to a post on the message board

                  Cathy, please keep me posted on your mother's progress. Where was pancreas tumor located? My mothers was in the top near bile duct. the bile duct was blocked so she became jaundice. They could have put stent in and done chemo since tumor had not spread. I believe whipple surgery caused spread even though surgeon would never admit that. I know she would still be with us. Tears!!!!! God Bless you and your mothe...

                  June 17, 2013 view post
                  • taylors13 has replied to a post on the message board

                    My 69 year old mother was dx with PC last summer. Stage 2b. But she was excellent candidate for whipple surgery. She did surgery without any complications. She did pretty well recovering and during five weeks of radiation and xeloda chemo. But when she did first routine MRI it has spread to liver and bones. She passed away seven months after diagnosis. If we had to do over again, we would not have done surgery...

                    June 13, 2013 view post
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                    About taylors13

                    Caregiver
                    Brain Cancer, Pancreatic Cancer
                    Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Emotional Support, Insurance, Lifestyle, Side Effects, Supplements, Surgery, After Treatment

                    HUSBAND - Anaplastic Astrocytoma grade 3

                    UPDATE: 8/17/14. MRI all clear again. So very blessed. Next MRI scheduled Feb 2015
                    UPDATE: 3/7/14. MRI miraculously showed NO enhancement or active tumor after being Avastin Free fourteen months. It has been six years since the first brain cancer symptoms began. Just less than six months ago there was a small enhancement present and our Neuro Oncologist said he thought tumor was starting back up again. We watched it (no treatment) and now it is completely gone. Could have been radiation damage.
                    UPDATE: 11/2013. MR Spect scan showed NO tumor activity. Also decreased in size to 2 mm which is size of a blood vessel or pin point. This is truly remarkable news. Has not had any cancer treatments since Jan 2013. Next MRI scan Feb 2014.
                    UPDATE: 9/2013 scans showed small enhancement and our Neuro Oncologist said, in his opinion, the tumor was starting back up. Will rescan with MR Spectroscopy in two months.
                    UPDATE: 5/2013 scans looked even better than last. Doing great!
                    UPDATE: 2/2013 scans looked great. Going off Avastin treatments after being on last nine months.
                    UPDATE: 11/2012 "stable" and continuing Avastin every 3 weeks
                    UPDATE: 7/20/12 "Slightly better" scans noted on July MRI reading. Continuing Avastin only every 3 weeks. Husband is doing well with treatment. All labs look good. Avastin has been a lifesaver for him.
                    OUR STORY IN A GLANCE:
                    8/5/08 Surgery (6 weeks in Minneapolis hospital)
                    8/20/08 DX Anaplastic Astrocytoma Grade 3
                    10/2008 began 6 weeks Radiation
                    01/2009 Began Temador - 1 week on, 1 week off for total of 10 weeks.
                    03/2009 Residual tumor growing Began Avastin for 1 year
                    OFF Avastin for 6 moS
                    09/2010 Back on Avastin for 1 year
                    OFF Avastin for 7 mos
                    05/2012 Back on Avastin. SEE ABOVE FOR LATEST UPDATE
                    UPDATE: 5/2/12 Slight progression noted on lastest MRI reading of 4/5/12. Starting Avastin again every 3 weeks. Saddened!!

                    Hi, my 53 year old husband, Marc, has brain cancer (anaplastic astrocytoma grade 3) diagnosed Aug. 2008. Surgery, radiation, temador, CPT-11(1 treatment) and Avastin 1 year, then stopped treatments 6 mos, then cancer returned. Back on Avastin every 2 weeks since mid Sept. 2010. Just got MRI scan results and progression looks "better". Short term memory a big problem but other than that there is no pain and he is in great spirits. I just read the Tug McGraw Ya Gotta Believe book, Brain Surgeon by Keith Black and AntiCancer: A New Way of Life by David Servan Schreiber, MD, PHD. These are all very informative reads and I feel highly educated now on this subject. All is well for now, just curious how other survivors and caregivers are doing. Please feel free to visit our Caringbridge site.

                    http://www.caringbridge.org/visit/marctaylor

                    Update 7-9-11 My husband had an MRI last month and there is "slight robust enhancement" again in same problem area. Doctors are not in agreement that it is tumor surfacing again. So he will continue Avastin every 3 weeks until next MRI in Sept. 2011. He was asked to do interviews a few weeks ago with two ABC affiliate news channels in Louisiana regarding the controversial cancer drug Avastin. Below are the links.

                    http://www.wbrz.com/videoplayer/?video_id=7685

                    http://www.katc.com/videos/avastin-vote/

                    Update 10-5-11 (3 YEAR SURVIVOR) My husband had MRI last month and after being on Avastin a full year (this round) he was taken off treatment. His is stable with no new growth. Praying and will never give up HOPE that he will stay healthy and strong and able to fight this ugly GBM war.

                    MOM
                    DX with Pancreatic Cancer Aug 20, 2012.
                    Did whipple surgery. Did very well. No complications from surgery. 
                    Nov 2012 - began oral Xeloda chemo and radiation for 5 weeks. Week 1 - Doing well. 
                    Did pretty well during treatments with exception of fatigue  UPDATE:: Cancer came back strong nine weeks after finishing treatments. Mom lost her courageous eight month battle April 2, 2013. 


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