Loading...

taylors13's Recent CancerCompass Activity

  • taylors13 has replied to a post on the message board

    Cathy, please keep me posted on your mother's progress. Where was pancreas tumor located? My mothers was in the top near bile duct. the bile duct was blocked so she became jaundice. They could have put stent in and done chemo since tumor had not spread. I believe whipple surgery caused spread even though surgeon would never admit that. I know she would still be with us. Tears!!!!! God Bless you and your mothe...

    Monday at 3:58 PM view post
    • taylors13 has replied to a post on the message board

      My 69 year old mother was dx with PC last summer. Stage 2b. But she was excellent candidate for whipple surgery. She did surgery without any complications. She did pretty well recovering and during five weeks of radiation and xeloda chemo. But when she did first routine MRI it has spread to liver and bones. She passed away seven months after diagnosis. If we had to do over again, we would not have done surgery...

      June 13 at 3:50 PM view post
      • taylors13 has replied to a post on the message board

        My husband too was diagnosed with AA3, August 2008. Five year survivorship very close. One surgery, 6 weeks radiation, 10 weeks Temador, one CPT-11 treatment, and 60 Avastin treatments, two recurrences later he is stable and tumor site is barely visible on latest MRI. Avastin treatments were done in two (1) year intervals and this last interval lasted nine months every 3 weeks. He is currently off treatment. It has...

        May 17 at 1:43 PM view post
        • taylors13 has replied to a post on the message board

          Thank you EM. She did surprisingly well after surgery 9-13-12 and then thru treatments. She complained of soreness and nausea. She did get depressed so she was put on antidepressants and Xanax for sleep. This was too be expected. By Christmas she was on her week 4 of treatments and still doing pretty well considering. By this I mean she was able to do for herself and get around house. Her quality of life was Pretty ...

          May 03 at 1:20 PM view post
          • taylors13 has replied to a post on the message board

            This story is amazing. Would love to know where and who her doctor is for future reference. God Bless your wife! I know it hasn't been easy. I lost my 70 year old mother one month ago after an eight month battle. She had successful and non complicating whipple surgery. She did 5 weeks radiation and 5 weeks xeloda. Cancer came back strong and fast. I am extremely saddened and wonder why her cancer was so fierce....

            May 03 at 3:52 AM view post
            • taylors13 has replied to a post on the message board

              Yes for my husband that has been the case. It has happened 3 times after being off Avastin treatments for six months. It has been two months and so far ok. Next scan is May 1,2013. The sinus problem is not that bad. Its more of a chronic condition. Good luck to you and keep us posted. Stacey

              March 27 at 6:46 PM view post
              • taylors13 has replied to a post on the message board

                Avastin is not for everyone. In fact I had a friend with GBM who had a colon dissection and had to have a colostomy for the rest of her life. But for my husband it has been a miracle. He began with treatments every 2 weeks, then 3 weeks, and 4 weeks. But his last 9 months of treatments were every 3 weeks. He never had any side effects with maybe exception of chronic sinusitis. If and when his grade 3 GBM returns (u...

                March 24 at 4:17 PM view post
                • taylors13 has replied to a post on the message board

                  Saw this old post of mine.  Wanted to update.  My husband just hit 5 year survival status.  He has done approx 60 Avastin treatments in the last 4 years.  He is stable and currently off treatment.  With exception of bipolar symptoms he is physically doing well and last scans in Feb. 2013 looked better than ever.  Never give up HOPE!!! 

                  March 22 at 2:38 PM view post
                  • taylors13 has replied to a post on the message board

                    Saw this old post of mine.  Wanted to update.  My husband just hit 5 year survival status.  He has done approx 60 Avastin treatments in the last 4 years.  He is stable and currently off treatment.  With exception of bipolar symptoms he is physically doing well and last scans in Feb. 2013 looked better than ever.  Never give up HOPE!!! 

                    March 22 at 2:38 PM view post
                    • taylors13 has replied to a post on the message board

                      I am not talking about dex for brain swelling.  All different forms of steroids like nose sprays, 5 day methyprednisolone for sinus problems, back injections for disk problems, ear drops for ear infection, cortisone shots. He must be sensitive to these meds.  Won't be using anymore!  Been going on for a couple of months with history of past manic behaviors.  (grand ideas, very arguementa...

                      March 05 at 3:26 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About taylors13

                      Caregiver
                      Brain Cancer, Pancreatic Cancer
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Emotional Support, Insurance, Lifestyle, Side Effects, Supplements, Surgery, After Treatment

                      MOM just dx with Pancreatic Cancer Aug 20, 2012.
                      Did whipple surgery. Doing well.
                      Nov 2012 - just began oral Xeloda chemo and radiation for 5 weeks. Week 1 - Doing well.
                      Did pretty well during treatments. UPDATE: Cancer came back strong. Mom lost her courageous eight month battle April 2, 2013.

                      HUSBAND - Anaplastic Astrocytoma grade 3
                      UPDATE: 2/2013 scans looked great. Going off Avastin treatments after being on last nine months.
                      UPDATE: 11/2012 "stable" and continuing Avastin every 3 weeks
                      UPDATE: 7/20/12 "Slightly better" scans noted on July MRI reading. Continuing Avastin only every 3 weeks. Husband is doing well with treatment. All labs look good. Avastin has been a lifesaver for him.
                      OUR STORY IN A GLANCE:
                      8/5/08 Surgery (6 weeks in Minneapolis hospital)
                      8/20/08 DX Anaplastic Astrocytoma Grade 3
                      10/2008 began 6 weeks Radiation
                      01/2009 Began Temador - 1 week on, 1 week off for total of 10 weeks.
                      03/2009 Residual tumor growing Began Avastin for 1 year
                      OFF Avastin for 6 moS
                      09/2010 Back on Avastin for 1 year
                      OFF Avastin for 7 mos
                      05/2012 Back on Avastin. SEE ABOVE FOR LATEST UPDATE
                      UPDATE: 5/2/12 Slight progression noted on lastest MRI reading of 4/5/12. Starting Avastin again every 3 weeks. Saddened!!

                      Hi, my 53 year old husband, Marc, has brain cancer (anaplastic astrocytoma grade 3) diagnosed Aug. 2008. Surgery, radiation, temador, CPT-11(1 treatment) and Avastin 1 year, then stopped treatments 6 mos, then cancer returned. Back on Avastin every 2 weeks since mid Sept. 2010. Just got MRI scan results and progression looks "better". Short term memory a big problem but other than that there is no pain and he is in great spirits. I just read the Tug McGraw Ya Gotta Believe book, Brain Surgeon by Keith Black and AntiCancer: A New Way of Life by David Servan Schreiber, MD, PHD. These are all very informative reads and I feel highly educated now on this subject. All is well for now, just curious how other survivors and caregivers are doing. Please feel free to visit our Caringbridge site.

                      http://www.caringbridge.org/visit/marctaylor

                      Update 7-9-11 My husband had an MRI last month and there is "slight robust enhancement" again in same problem area. Doctors are not in agreement that it is tumor surfacing again. So he will continue Avastin every 3 weeks until next MRI in Sept. 2011. He was asked to do interviews a few weeks ago with two ABC affiliate news channels in Louisiana regarding the controversial cancer drug Avastin. Below are the links.

                      http://www.wbrz.com/videoplayer/?video_id=7685

                      http://www.katc.com/videos/avastin-vote/

                      Update 10-5-11 (3 YEAR SURVIVOR) My husband had MRI last month and after being on Avastin a full year (this round) he was taken off treatment. His is stable with no new growth. Praying and will never give up HOPE that he will stay healthy and strong and able to fight this ugly GBM war.




                      We care about your feedback. Let us know how we can improve your CancerCompass experience.