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teachoz's Recent CancerCompass Activity

  • teachoz has replied to a post on the message board

    Wow! When it rains, it pours!!! So sorry for your set-backs, but know you're a real fighter!!! Sending healing thoughts your way, and hoping for a quick recovery!! Mary Ann  

    November 26, 2012 view post
    • teachoz has replied to a post on the message board

      Sorry to hear about your misfortunes. I am sending prayers and positive thoughts that the rest of your activities will go much more smoothly!! Good luck! Mary Ann

      September 13, 2012 view post
      • teachoz has replied to a post on the message board

        Aw, geez, Amy!! I am so sorry you have to deal with yet ANOTHER issue!! Me, the biggest scaredy-cat of them all, agree with Eileen...one step at a time!  Good luck, and keep us informed!!! Saying prayers for you!! Love, Mary Ann

        August 31, 2012 view post
        • teachoz has created a new message board discussion

          Hi I've had MM for almost 4 years, with very few syptoms. I've been on Rev/Dex as my only treatment. I am now concerned about my creatinine level ... at one point this summer it had gone up to 2. something, but we attributed it to me being dehydrated from my trip up to NH from FL. The next blood test, the creatinine was normal again. Two weeks ago, it was 1.7.  They redid the test this week, and it had only dr...

          August 31, 2012 view discussion
          • teachoz has replied to a post on the message board

            Kristinemarie - Prayers are being said for Nelson as well as the rest of your family, that you will all find the strength to pull through this together.

            August 30, 2012 view post
            • teachoz has replied to a post on the message board

              Look up the  Chronic Disease Foundation...maybe they can help fund it. They helped me for quite awhile. Also, get in touch with Celgene. They award grants to help cover the expense. Good luck! Mary Ann

              August 14, 2012 view post
              • teachoz has replied to a post on the message board

                Good luck!!

                August 10, 2012 view post
                • teachoz has replied to a post on the message board

                  !!Great news, JuJu! Enjoy your shower!   Mary Ann

                  August 10, 2012 view post
                  • teachoz has replied to a post on the message board

                    I'm so glad you finally have some positive information. Good luck in your decision-making. You have a whole "family" here on CC standing behind you! Mary Ann

                    July 03, 2012 view post
                    • teachoz has replied to a post on the message board

                      Yay, Hop!! I love to hear good news!! Keep up the good work!! Mary Ann

                      June 20, 2012 view post
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                      About teachoz

                      Patient
                      Multiple Myeloma
                      Alternative Treatments, Conventional Treatments, Diet, Recipes

                      I was diagnosed with Multiple Myeloma in September of 2008, two years after I retired from teaching. Actually, it goes back much further than that. In 1986, during a routine physical, my regular dr. noticed a spike in my protein level in my blood. He sent me to a hematologist, who did a bone marrow test. It came out benign, but he told me I needed to have that protein test done EVERY YEAR, to make sure it did not go up. It didn't ---for 23 years!! After being diagnosed in Sept. 08, I was referred to Dr. Nikhil Munshi, a MM specialist at Dana Farber in Boston. He spent over an hour with me for the first two visits, explaining the disease, options for treatments, etc. I chose Revlimid, an oral chemo drug, which I have been on ever since. I also take dexamethasone, a steroid, once a week, which is supposed to "pulse" the chemo drug and make it work better. Actually, the dex almost did me in in April of 2010. I went out to get the mail from the mailbox one day, fell down, and could not get up again. My husband and a neighbor had to get me into the house. I fell down several more times, and had no strength in my arms or legs to help myself. At the same time, I came down with a respiratory infection, and my eyes developed a hazy fog over them. I was put on an antibiotic by my pulmonologist, and I was sick for about 6 weeks. I couldn't drive, read, or anything else that required the use of my eyesight. Finally, the dex left my system, and I slowly returned to normal. When I saw my oncologist again, I blasted him, telling him that he should have listened to me before, when I tried to tell him the dose of dex was too strong for me. He listened this time, and I am now on a half-dose of dex with the Revlimid. The good news is, in a year, my IGA protein has dropped from 6,600 to 1,800!! I feel great, and I have no bone lesions or any other symptoms. I don't feel like I have cancer at all, but I know how insidious this disease can be. I guess I want you all to know that if you have a positive attitude, let people pray for you, and do your treatment, you can function pretty normally. The dr. said we will continue with the treatment I'm on since it seems to be working so well. I will be seeing him again tomorrow. I am not interested in SCT at this time, nor do I want to be put on Zometa, which he has mentioned several times. I think it is very important that we stick up for ourselves and do what we think is best for our bodies.

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