thebyrdsfriend's Recent CancerCompass Activity

  • thebyrdsfriend has replied to a post on the message board

    Hi there.  You need to go to a university/teaching hospital.  They are on the up and up of all new treatments, can do clinical trials, and give personized treatment.  CTCA cannot do clinical trials, and they are a for profit center. You never hear of the rich and famous going to CTCA, they go to university/teaching hospitals. I was successfuly treated in Milwaukee at Froedert Cancer Center.  It ...

    June 28 at 5:00 PM view post
    • thebyrdsfriend has replied to a post on the message board

      Hi, winaward ~ if you click on my name it will take you to my profile and you can read my journey to find out what the "ground glass" was in my lung.  Mine is non small cell lung cancer, BAC with adenocarcinoma features.   They kept wanting to call it all kinds of other things, and kept telling me no signs of cancer.  I went to the doctor in the get go because I was getting winded going up stairs. &nb...

      June 28 at 4:55 PM view post
      • thebyrdsfriend is now friends with lrich
        May 28 at 3:59 PM
        • lrich

          lrich finally posted a pic,glad we became friends,of course not my hair but this pic was a new one with my pride and joy my grand daughter!!!

          June 01 at 6:57 AM
      • thebyrdsfriend has replied to a post on the message board

        You need to not bother with a GP, and get to a pulmonologist who will prescribe the propper treatment to get to the bottom of all this.  A low dose CT scan is now standard procedure.  An x-ray will not diagnose lung cancer.  That is why so many when diagnosed are in late stages.  There are no symptoms to lung cancer, until it is too late.  But, you may have something else going on, and a pulm...

        May 28 at 3:48 PM view post
        • thebyrdsfriend has replied to a post on the message board

          Hi Lesa,       I can't say what doctors should do, only what was done with me.  One of the best places to go would be a teaching/university hospital.  They are up to date with all the newest treatments, and they have the ability to put patients into clinical trials if needed.  I went to Foredtert Cancer Care Center in Milwaukee, affiliated with the University of Wisconsin there.  A...

          May 10 at 12:15 PM view post
          • thebyrdsfriend has replied to a post on the message board

            Click on my name, and it will take you to my profile.  You can read all I had to go through.  I had my upper right lung removed, no radiation, but I did have a 12 week course of chemo (once every three weeks).  I was stage 3a nscl BAC with adenocarcinoma features, and was diagnosed on May 26th, 2010.  I'm a survivor!

            May 10 at 11:59 AM view post
            • thebyrdsfriend has replied to a post on the message board

              A ct scan is your next step.  Tell your doctor about your smoking history, and insurance now covers low dose ct scan as a detector for lung cancer.  X-rays don't work.  If you've already had the ct scan and no cancer was detected, then your next step should be to find out if it's a spine problem like deterioration of the spine, or a pinched nerve, or arthritis.  Anyway it sounds like you've done a...

              May 04 at 1:42 PM view post
              • thebyrdsfriend has replied to a post on the message board

                I don't know why you didn't consult with the dr. who made the diagnosis before you left Tampa.  What treatment plan would they suggest, and explain to you everything in the report. Anyway I hope your appointment is with an oncologist, who is the one who will explain, and suggest treatment. You can also google squamous cell carcinoma and find a wealth of information that will help you understand more ~ or if yo...

                May 04 at 1:32 PM view post
                • thebyrdsfriend has replied to a post on the message board

                  I guess you jus want to share your feelings right now, even being a nurse, there is so much to learn about lung cancer.  The type (small cell and non-small cell ~ in this one, there are many sub types)  Then they need to stage it, probably going to give him a pet scan, seeing if it is anywhere else.  I'm probably telling you things you already know.   Waiting is so very hard.  As a patient, ...

                  May 04 at 1:23 PM view post
                  • thebyrdsfriend has replied to a post on the message board

                    Awe, KatieKay, hope you get some rest then.  Sleep is good for healing.  Take care, looks like you've made a good choice, you'll be in great hands. You are quite welcome, Byrd

                    March 31 at 8:32 PM view post
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                    About thebyrdsfriend

                    Lung Cancer - Non-Small Cell, Lung Cancer - Adenocarcinoma
                    Clinical Trials and Research, Diet, Emotional Support, Genetics, Insurance, Recipes, Supplements, Cancer Nutrition

                    I was diagnosed with BAC lung cancer on May 26, 2010, four days before my 56th birthday. Everything is so new right now, and I'm waiting to see an oncologist, but I do know that the "glass like particles" are in both lungs. I'm at the point I am very scared, and anxious. It is in my every moment of thought. I am just so sad.

                    Well that was written so shortly after my diagnosis. I went to another doctor at a teaching hospital and am so glad I did!! I urge anyone with a diagnosis of cancer to seek out the closest teaching hospital you can find, and get an opinion from them. I have had my upper right lung removed, all edges were clear of any cancer, and no lymph nodes had cancer. I have been diagnosed with stage IIIA T3 NO MO Adenocarcinoma with BAC features. I am so possitive I'm going to beat this cancer. I am going to my second dose of chemo this Thursday (Sept. 16th) and will have 4 does altogether. I don't know what treatment I'll have after that, but I am keeping a sense of humor, my faith, and possitive thinking at the top of my list. In my home town, the prognosis was so bad, they were ready to treat me with end stage drugs, saying cancer was in both lungs. It was not, I am so thankful for the knowledge of a teaching hospital being so close to my home, God Bless Froedtert Hospital in Milwaukee and all their kindness and knowledge.
                    Well, I was done with chemo the end of October. I finally felt better the week of New Years, so it was quite a while to get the good feelings back again. I am so blessed that my ct scans have shown nothing and I am NED!! I will have another one the end of July, and actually every 4 months for 2 years. If no cancer shows up in that amount of time, then I will have scans only once every 6 months. Praying God smiles down on us all!!

                    In my case, a chest x-ray sooner would have helped me. I was always getting those e-mails about women and heart disease, and I was getting winded when I went up and down stairs. So I told my dr. at my yearly check up. She put me ...through stress tests and heart tests and my heart was fine. She ordered an x-ray, and some "glass like particles" showed on the x-ray. I was given anti-biotics for pnuemonia, then another x-ray showed it was still there in two spots. Now I was refered to a pulmonologist. He ordered ct scan, breathing tests, and more TB tests. After ct scans, still "glass like particles" showing, and now thinking it is a lung fungus, no signs of cancer. Then, more tests for that, which included operation where he went through my nose blindly into my lungs, and it is negative. Now it's time for a biopsy, going through a cut in my throat because now the pullmonologist and pathologist and thoracic surgeon think it is sarcoidosis. Going through my throat to take a lymph node from my chest. Well, that turned out negative, so while on the table, they turn me over and go for a sample of my lung, a wedge resection with VATS surgery was performed. Chest tube hurts the most here. Well, then on May 26th, the next day, I was told it was non small cell lung cancer with BAC (brochoalvedar-sub type of adenocarcinoma) features. Well, in my home town they told me it was in both lungs, nothing they could do but put me on end stage treatment. I got a referal to Froedtert Hospital in Milwaukee (about 45 min. away from me) which is a teaching hospital. EVERYTHING CHANGED!! They found it was only in one lung, and I could have a lobectomy. On July 12th I had the upper right lobe of my lung removed. On Aug. 28th I started chemo. I get cisplatin and alimta. I have my 3rd treatment on Oct. 7th. I get one treatment every 3 weeks, for 12 weeks, so after next week I've got 3 down and 1 to go. They found I had 3 "glass like tumors" (this is a trait of BAC, and it does not "glow" with a pet scan) but they were all small. No lymph nodes were involved, and no mets. Also, all edges were clear. Still they staged me as IIIA, T3 NO MO. I thank God for the e-mails I got about women and heart disease. I found out that I've probably had this cancer more than 4-5 years or even longer. It started out as BAC only, then morphed, turned aggressive, and is now Adenocarcinoma. Soooooooo, I am one of those who believes in x-rays for former smokers. BAC is one of the lung cancers not usually caused by smoking, but I was a bartender my whole entire life (turned 56 4 days after finding out I had cancer) and second hand smoke for bartenders and waitresses is a problem. An x-ray years ago would have helped my cancer not turn aggressive. From what I've read, when found early, lung cancer was not what dr.s have been looking for. Anyway, sorry such a long post, but if this story of mine helps ANYONE, it was worth the typing. I also want to say that teaching hospitals are the way to go in my opinion rather than a small hometown dr. At a teaching hospital you get a dr. who is a specialist in your OWN cancer only, and they are in on the most newest technology, clinical trials, and are no more expensive than your home town docotors. Anywhere there is a VA hospital, there is a teaching hospital near by. Thanks to all who read this, I just wanted to get this story out there.

                    It is now November of 2011, and I will have a ct scan the end of the month. 2010 was a year with some bumps in it, but with God's guidance I was able to survive. I am a survivor and plan on being around for many more years.

                    Well, as of Dec. 2012 they are still saying I am NED. HURRAY!! God bless the doctors and all whom God's hands have touched to help me. AMEN

                    God Bless ~ Helen

                    On January 15, 2013 I lost my best friend, my soul mate, my love, my life, my husband. I am so sad. While I was making plans to make my passing easier on my husband, God had other plans. My wonderful caretaker, my strength, my support, my rock is no longer with me as I travel this painful journey. Jerry passed painlessly, and unexpectedly of an unsurvivible heart attack. I can't for the life of me help but wonder why God allowed me to survive all I've survived ~ only to not have my partner with me.
                    So, I only want to say, remember my friends, because we have cancer does not mean we are the ones to go. Life is moving on, and sometimes we forget that as we battle this disease. Take care of your caretaker, they are so precious, and can be gone in a flash, without us even realizing the needed us. Oh Lord, I sometimes wonder why my life has been so hard. But mostly I wonder why you gave me Jerry, but then took him away.
                    Life truly is what happens to you while you make other plans.

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