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tjw60's Recent CancerCompass Activity

  • TJW60 has created a new message board discussion

    Hi to all.... I'm a MM patient and have been since 09'   Our world was just rocked today when we found out that my brother has been dx with lung cancer that has metacized to his brain....not sure of all the particulars as far as treatment schedule and prognosis....just reaching out to this group for any info .... I found out early in my dx with MM that knowledge is power and starting to gather all the inf...

    September 10 at 12:33 AM view discussion
    • TJW60 has replied to a post on the message board

      Hey cmolinaro my onc told me that if my kappa #'s rose above 100 then we will do a bmb.....that kind of gave me some relief due they rise and then fall quite regularly... take care

      May 30, 2013 view post
      • TJW60 has replied to a post on the message board

        Hi OL55 Having cancer is getting dealt a bad hand.....we have two choices,  fight or flight....... There are many support groups and MM groups that can be found on the net or get in touch with American Cancer Society and they can point you in the right direction...A support group with fellow MM patients is a good place where you can compare notes and understand each other.....our local cancer connection gave a...

        May 28, 2013 view post
        • TJW60 has replied to a post on the message board

          I got all worried about some rises in my lite chains and then researched and found that as long as they rise and the ratio is the same another health issue is the cause....then the next test they were down then up again and then down........kappa 28 was the highest now down to 22....my onc told me that if it got over 100 then he would do a BMB and not to worry that I was fine.....It's hard not to worry when the numbe...

          January 31, 2013 view post
          • TJW60 has replied to a post on the message board

            Hi cmolinaro true fiction is correct.....your lite chains can rise for various reasons.....as long as the ratio rises the same it can be other health issues how is your m-spike? have you had any other tests..... going on 3 yrs in CR! good for you Terry

            January 22, 2013 view post
            • TJW60 has replied to a post on the message board

              she was a very charming, funny, witty and courageous woman.....I followed her on FB and she had an amazing support group of family and friends.......I never heard her complain about her declining,  always upbeat and positive...a true warrior in the battle she will be missed... Terry

              January 16, 2013 view post
              • TJW60 has replied to a post on the message board

                Hey Hop.....hope you are doing well.......have you been to MDA yet?  take care Terry

                January 16, 2013 view post
                • TJW60 has replied to a post on the message board

                  Hello....good for you that you are two years out from your SCT and shame on your onc for quoting you percentages.....I learned this one from a brain cancer survivor not long after I was dx.....don't pay attention to percentages as they are for groups of people and you are an individual........If you do have a relapse there are lots more ammunition available today than there was back when some of the percentages you r...

                  January 16, 2013 view post
                  • TJW60 has replied to a post on the message board

                    Hello.....I'm afraid at his age they would not but depending on his overall health there are other treatment options available.  I think the SCT cutoff is around 70 with overall good health.... Terry

                    January 16, 2013 view post
                    • TJW60 has replied to a post on the message board

                      hey fritz....how have  you been?  I don't stop by here very much.....its good to see your posts.....how are things in your camp?

                      December 29, 2012 view post
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                      About tjw60

                      Survivor
                      Multiple Myeloma
                      Alternative Treatments, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Naturopathic Medicine, Prevention Tips, Radiation, Side Effects, Spiritual Support, Supplements, After Treatment

                      I just turned 50 in April, diagnosed with MM in May 09, two cycles of radiation and currently on 25 mg of Rev/ 40 mg of Dex. Have a consult with Dr on 7/1 at Fred Hutchinson Research in Seattle Wa about stem cell transplant. I just found this site and have read some great posts....I live in Alaska and spent the weekend fishing on my boat, we caught king salmon, halibut and spot prawns.....life is GOOD!

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