tjw60

tjw60's Recent CancerCompass Activity

• TJW60 has replied to a post on the message board

  I got all worried about some rises in my lite chains and then researched and found that as long as they rise and the ratio is the same another health issue is the cause....then the next test they were down then up again and then down........kappa 28 was the highest now down to 22....my onc told me that if it got over 100 then he would do a BMB and not to worry that I was fine.....It's hard not to worry when the numbe...

  January 31 at 12:40 AM view post

• TJW60 has replied to a post on the message board

  Hi cmolinaro true fiction is correct.....your lite chains can rise for various reasons.....as long as the ratio rises the same it can be other health issues how is your m-spike? have you had any other tests..... going on 3 yrs in CR! good for you Terry

  January 22 at 2:05 AM view post

• TJW60 has replied to a post on the message board

  she was a very charming, funny, witty and courageous woman.....I followed her on FB and she had an amazing support group of family and friends.......I never heard her complain about her declining,  always upbeat and positive...a true warrior in the battle she will be missed... Terry

  January 16 at 1:28 AM view post

• TJW60 has replied to a post on the message board

  Hey Hop.....hope you are doing well.......have you been to MDA yet?  take care Terry

  January 16 at 1:24 AM view post

• TJW60 has replied to a post on the message board

  Hello....good for you that you are two years out from your SCT and shame on your onc for quoting you percentages.....I learned this one from a brain cancer survivor not long after I was dx.....don't pay attention to percentages as they are for groups of people and you are an individual........If you do have a relapse there are lots more ammunition available today than there was back when some of the percentages you r...

  January 16 at 1:21 AM view post

• TJW60 has replied to a post on the message board

  Hello.....I'm afraid at his age they would not but depending on his overall health there are other treatment options available.  I think the SCT cutoff is around 70 with overall good health.... Terry

  January 16 at 1:15 AM view post

• TJW60 has replied to a post on the message board

  hey fritz....how have  you been?  I don't stop by here very much.....its good to see your posts.....how are things in your camp?

  December 29 at 6:15 PM view post

• TJW60 has replied to a post on the message board

  hey Hop.....good to see you up and around again....from the posts I read you've had to much quality time in the  hospital....here's to a better '13 .... take care Terry

  December 29 at 6:14 PM view post

• TJW60 has replied to a post on the message board

  sorry to hear about that....good for you for supporting your wife....what do the dr.s say?  why has she decided to stop treatment after only 3 mo?  do they offer the opportunity for another sct?  other drug therapy....etc......my first regimen of rev/dex was 4 months before achieving any results and then the month later I was in CR.....was it just rev alone?.....where do you go for treatment?  hav...

  December 29 at 6:06 PM view post

• TJW60 has replied to a post on the message board

  There are many great cancer treatment centers all over the country.....there is also many different approaches depending on where you go.....do your research.... I live in Alaska and go to SCCA (Seattle Cancer Care Alliance) which is Fred Hutchinson/Seatte Childrens Hospital/UW Medicine  located in Seattle......I am very pleased with the specialists there.... good luck in your research Terry

  November 14 at 3:22 AM view post