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tlgoldilocks's Recent CancerCompass Activity

  • tlgoldilocks has replied to a post on the message board

    To Best Friend Mom, I so feel your pain, frustration and fear. I can relate to you, as I did everything for my dad and had to put on the brave face when I saw him detiorating before my very eyes...Was the hardest thing I ever had to do...well almost. I would leave the hospital and cry all the way home. I stayed positive, focused, and would do everything and anything for him. This cancer is a beast, and you are damne...

    January 31, 2013 view post
    • tlgoldilocks has replied to a post on the message board

      Hello, I am so sorry to hear of your husband's diagnosis and vigorous treatment regime. What a trooper he must be and I know how hard it is for you as a care giver feeling so hopeful and at the same time in such pain as well watching all of this.......I truly have so much empathy for you all. I'm crying as I write this, as my pain is still so raw. I lost my sweet dad, my best friend, and a my hero on Oct 14th o...

      January 28, 2013 view post
      • tlgoldilocks has replied to a post on the message board

        Yes I totally understand...I was in that very same place this past March 2012. I feel everyone's pain, their fear, their denial, and their grief & losses.....I have been there too most recently. I lost my dad this October after a valiant battle, and part of me went with him, as I have fought so hard with him. I posted what I did...because time does not wait in case of this horrific disease, and you have to ...

        November 21, 2012 view post
        • tlgoldilocks has replied to a post on the message board

          Yes Dave, you are correct...There is an absolute laundry list of variables that determine a diagnosis of pancreatic cancer. My post was not specific to your post. I have been an advocate for others and last night I referred them to this board and wanted to highlight to those that have received such a diagnosis and to those families searching for answers not to jump on everyone's post in search for answers that j...

          November 14, 2012 view post
          • tlgoldilocks has created a new message board discussion

            Hi Everyone, I have researched more about this disease; pancreatic cancer than anything else in my life. I have been an advocate for my dad, got him compassionate use of chemo drugs when an oncologist could not and then some.....I have referred many others; patients & families to this site for reference & support. However, this may not be a good thing? Why? Because there are 2 kinds of PC- Endocrine, and Exo...

            November 14, 2012 view discussion
            • tlgoldilocks has replied to a post on the message board

              Hi Dave, Great news..I know it is a tough battle. I am assuming that your tumor was located at or near the head of the pancreas, and not the tail portion....As many here have vein & artery involvement with a tumor location near the tail or body of the pancreas rather the head portion and is not operable at least with clear margins, and typically has metastisized, which I assume yours hasn't. I am clarifying as ...

              November 14, 2012 view post
              • tlgoldilocks has replied to a post on the message board

                Hello Ashley, I am so very sorry that you are battling this disease! You sound like you have an amazing fighting spirit and are quite the warrior young lady. I join in your fight and sending you lots of strength. My dad had stage 4 with mets to the lungs and then out of the blue, it spread to the sacrum & L5. I had read that it rarely spreads to the bone, and was quite shocked when we all got the diagnosis that...

                November 03, 2012 view post
                • tlgoldilocks has created a new message board discussion

                  Please say some prayers for my dad- Ken. I am devestated to just find out that the source of my dad's back pain, which I recently contributed to sciatica, has now been diagnosed as a mets to the spine. One of the lower vertabrae, and he is on heavy duty meds to relieve the associated pain. So my question is what now? The doctors are saying radiation to relieve the pain in the spine. He just finally fin...

                  September 06, 2012 view discussion
                  • tlgoldilocks has created a new message board discussion

                    Hello Everyone. I am just wondering if anyone has experienced sciatica? A lower lumbar nerve pain that is very painful, sharp shooting and is difficult to walk or sit, from either chemo treatments or as a result of significant weight loss? If so, what did you do to remedy the effects?....This post is for my dad, who is 72, and is now on his second treatment of Abraxane with Gemcitibine. Thank yo...

                    September 03, 2012 view discussion
                    • tlgoldilocks has replied to a post on the message board

                      Thanks Kindly for your reply. May I ask who the oncologist is at that clinic? How is your husband tolerating the combined effects of Gemcitibine/Abraxane? I am specifically wondering about the sideeffects and toxicity of the Abraxane? I am assuming his routine of therapy is weekly? Is this his second line of treatment? Sorry for all the questions.....Trying to determine right now if this is going to be the ...

                      August 04, 2012 view post
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