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trishisintune's Recent CancerCompass Activity

  • trishisintune has replied to a post on the message board

    Dear Lisa, I know what it's like to know you only have a few months left.  I am in the same place.  I, too, have been pretty strong--so far--and take comfort in my faith.  But we all reach a point where it's just sad.  I know you're there and that you feel completely helpless.  This is going to sound harsh, but maybe it will help.  You are replaceable.  This is a very freeing th...

    November 15, 2011 view post
    • trishisintune has replied to a post on the message board

      If the lymph nodes are not attacked (which is excellent!), liver metastasis can be an isolated occurence.  If the tumor(s) are operable, your husband has a decent shot at a complete cure.  Your 5% is wrong.  If he has the tumor cut out with clear margins, the 5 year survival rate is currently 25% and rising.  Some places, such as MD Anderson, put it closer to 50-60%.  Those who make it to 5 y...

      September 04, 2011 view post
      • trishisintune has replied to a post on the message board

        Sorry about your mom.

        Capecitabine/Xeloda is supposed to work just as well as the 5FU pump, according to many studies that I've read.  I've done both.

        I'd go ahead and try it. 

        Your mom might want to consider getting a port so that chemo infusions are easier for her.  I'm very glad I have one.  Unlike IV's, there is no pain. 

        September 04, 2011 view post
        • trishisintune has replied to a post on the message board

          Hi Mz. Blither, I sure can appreciate your reluctance to get back on oxaliplatin.  Breathing seems pretty basic; it would not be good to stop.  Personally, I had lots of problems with oxaliplatin:  5 bowel obstructions, an MRI for a suspected brain tumor, lots and lots of neuropathy, and finally a diagnosis of interstitial lung disease caused by the Folfox.  So I stopped after 6 treatments and we...

          September 04, 2011 view post
          • trishisintune has created a new message board discussion

            Hi All, I've just been diagnosed with peritoneal carcinomatosis (metastasized from my rectal cancer, which was excised in May 2010).  So far, I'm pretty symptom-free, though struggling a bit with the chemo (FOLFIRI + avastin).  HIPEC is not an option as I also have tumors in my lung, chest wall and liver.  Anyway, I know the prognosis is poor and that I will succumb eventually, probably in the next 5-...

            August 05, 2011 view discussion
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            About trishisintune

            I was diagnosed with stage 3 rectal cancer in January of 2010. I had 25 rounds of radiation with a 5FU pump to shrink the 6 cm tumor before it was removed in May 2010. As part of the rectal surgery, I had a temporary ileostomy put in that was reversed in July 2010 at the same time that I had surgery to remove 2 tumors in my liver (at that point I became stage 4). Then I had 6 rounds of FOLFOX, which we stopped because the FOLFOX was giving me interstitial lung disease, which is rapidly fatal. Stopping the FOLFOX reversed the interstitial lung disease (thank goodness!). Then I went on maintenance Xeloda for 6 months and had progression. I was diagnosed with peritoneal cancer in May 2011. I also have tumors in my lung, liver and chest wall. I am currently on palliative chemo (FOLFIRI + avastin). I stopped working in May 2011 and am feeling pretty good despite the chemo. Hopefully the chemo will hold off the peritoneal cancer for several months, but the overall prognosis is poor.

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