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tromda's Recent CancerCompass Activity

  • tromda has replied to a post on the message board

    Yes....I am learning to do things I never thought I would be doing. In just the last week, i replaced a light fixture and fixed a leaky toilet. I have to admit that YouTube is now my best friend. My husband was a farmer and loved Fall and harvest time....it makes me miss him all the more. But, I think he would be proud of the things I've learned to do.

    Yesterday at 6:05 PM view post
    • tromda has replied to a post on the message board

      I had kind of a hard time reading this story. I am in awe of her courage and grace. At first I struggled with how her family will feel after she is gone. We were so blessed in that in the 31 months that my loved one survived, we were able to make many memories and as a survivor I am deeply grateful for that. But this young woman appeared to have lived an unusually full and joyful life in her short time on earth...

      October 24 at 5:10 PM view post
      • tromda has replied to a post on the message board

        As hard as this is for all of us, it must be especially hard for you. You didn't even get a chance to adjust to the disease when her rapid decline began. Hang in there Buddy...know that you did everything possible.

        October 24 at 5:02 PM view post
        • tromda has replied to a post on the message board

          Mollie This needs to be monitored. The aggression probably will not get better until the dose goes down. Do you have someone there with you? Please call your doc and let them know of the aggression. Good luck

          October 05 at 2:49 PM view post
          • tromda has replied to a post on the message board

            Hello It totally sucks about your brother and all the run around you have been getting. I kind of hate to offer an opinion because everyone's circumstances are just so different, but if your brother is willing and able, I would stick to a medical center that is rated high in Neuro Oncology and I think you were wise in asking for a new doctor at MD. Maybe request a psych consult to help with the depression (to...

            October 04 at 6:23 PM view post
            • tromda has replied to a post on the message board

              Hello, Maria I, too, feel bad that you still carry such anger. When you get the gut punch of a Glioblastoma diagnosis, the days following are such a blur and it is true you have to put your trust into someone else to guide you through those first few days. The truth is that we just don't know what we don't know, so we look to others. I believe it is true that every patient is different and a physician just doe...

              October 04 at 6:07 PM view post
              • tromda has replied to a post on the message board

                Wow! Your post made me smile. Good on you!

                September 12 at 2:34 AM view post
                • tromda has replied to a post on the message board

                  Hello, Jon I was so sorry to see your post. I have been following your posts since 4/11 as your wife was diagnosed just shortly before my husband. It is true that you reach a kind of peace about not fighting any more. The next weeks and months will be lonely but I hope the fact that you did all you could and honored her with your loving care will help you through the really hard days and nights. Take c...

                  September 03 at 10:58 PM view post
                  • tromda has replied to a post on the message board

                    So very very sorry for you, Joey Unfortunately, with great love comes a great loss, it seems. Peace to you these next weeks, months

                    August 22 at 2:46 AM view post
                    • tromda has replied to a post on the message board

                      Hi Shane My heart goes out to you as it is clear you are feeling overwhelmed...most caregivers justifiably feel that way most of the time. I'm not sure if this is any help, but when things got hard, we contacted the social worker at the clinic and she put us in touch with some helpful services. Perhaps they could even advocate for a scooter for your dad. Blessings on you. Hang in there

                      August 22 at 1:29 AM view post
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                      About tromda

                      Caregiver
                      Brain Cancer
                      Cancer Diagnosis, Support

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