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today i stopped all my line of chemo

49 folfiri avastin

8 folfox

18 erbitux campto

3 rd progression,,

all my peritoneum is full of meta.

12 cm . 8,4 x 4 cm , 2 x 3 cm .. i dont have any possibility for another line..

they send me home........

tramal 3 x 1

ibubrufen for pain..

i am waiting for death probably?
but i try to live.. i try to another solution..

 ANYOBODY WHO CAN HELP ME???? 

I

Today i am finished my 69 chemo

49 folfiri+avastin

8 folfox

12 campto +erbitux

i am going on

NEVET STRONHER

On lis 10, 2013 3:48 Grimsbynick wrote:

On Sep 30, 2013 2:15 AM AlysG wrote:

I was diagnosed with stage 3c Corectal cancer in March 2013- Syrgery to remove Timors in April with a Jpouch Temp Illiostomy. IV Chemo treatments started in May- 3 months of 5-Fu along with Oxi- the same cocktail everyone else is given. The third treatment so week 5 I developed extreme stomach pain and my stoma doubled in size was bright red and angry! So very painful. Dr dose reduced and continued dose reducing due to same horrible pain reaction each time I was treated. The pain was so bad it felt as if I was beaten up. He said it was basically shredding my intestines which was causing the severe pain. He stopped my treatments so I never recieved round 6 do to this reaction. He sent me to radiation for the following 6 weeks ong dude prescribed me xeloda. This did not work for me. On day 6 of xeloda I Experienced extreme chest pain and pressure. It felt as if I was also being choked. I could not even swallow water. I ended up in the emergency room and they diagnosed me with being allergic to his Xeloda. Apparently I do not have the proper enzymes DPD to metabolize the xeloda or 5FU. My symptoms are- Extreme Rapid weight gain Chest pain pressure Throat tightness Trouble swallowing Dizziness Itching all over Hives Extreme Diarrhea every hour dumping my bag Legs swelling Left hand pins & needles Left arm heaviness Night sweats Extreme stomach pain Has anyone else had these experiences? I have searched the Internet and am not finding enough information about this. I have been told I could have a heart attack at any moment. I do not feel I was sufficiently warned that this could happen. Tell me about your experiences with these drugs.
I take xeloda....I am terminal with colon cancer.....diagnosed in August 2013. I'm 49 and was fit and healthy with no symptoms. I have a tumour and many enlarged lymph nodes. The side effects from xeloda are pretty bad. I have had the following at various times. Nausea, tiredness, dry mouth, cold hands and feet. Tingling hands. Red bottoms of feet. Headaches, stomach pains, runny nose, dry hands, metallic mouth. No taste or little taste of food. I am on 500mg x 8 tablets x 14 days when I am on a chemo run. I have just finished my 3rd go round and need to go through one more before they Will see the progress. I am also on avastin and oxyiplatin when I'm on the chemo. There are really tough days and better days, I'm just hoping its doing something to the cancer! I'm positive most of the time, but it does wear you down.

i think that you arent terminal pacient,, you are stages 3 ,or dukes D,, NO metastazed in other organs ,and i know many ppl .. in croatia with meta on lymph nodes,after 10,12 cyclus fu5 +oxalipatin,they still alive in remission afret 10,15 yrs.. i think that is very good prognosys for you and everybody with dukes C...

look my post ,i  am  stages 4 with meta on peritoneum.. lokk my topic and if you have any question i will give to your answer,if i know.. sorry for my english ,this is not my native language.

On stu 27, 2012 5:28 vedransaba wrote:

On stu 27, 2012 5:23 AnneLilja wrote:

Hi Allan71, I think some side-effects are the same but that there are some differences. The way I understand it, the platinum-based chemo have the potentially serious side-effect of neuropathy whereas Irinotecan affects the mucous membranes of the digestive tract which causes mouth sores (I felt like I had been scalded) and potentially severe diarrhea. There were days I couldn't eat, there were days I was in agony with stomach cramps and diarrhea. I got to try different stuff to reduce the side-effects and found that, for me, an old ulcer medication made a *big*difference. It's called Andapsin in Sweden where I am at, active ingredient sucralfate. It's a pretty disgusting goo, but worked for me. I would say that I got a couple of decent days in before the next treatment. I hope Folfiri works for you. I wish you the best of luck. Sincerely, Anne

you said exactly same side effects like me... but i go to toilet more than 10-20 times on day,bcs they cut 1 m small intestine and 20-30 cm my colon ascendis..

hello everybody everywhere in the world ..

do you remember me, i am cancer warrior from croatia.. with colon cancer stages 4 ,dukes D , FROM  first day before surgery 05.01.2010.. after 1 st protocol  fu5+avastin 49 chemo cyclus , my cancer start grown progression,,

2 nd protocol . only 8 chemo ,and again progression  in 07.2013.

3 rd protocol ERBITUX +CAMPTO , every week or 3 week 11 cycle

49+8+11-68 chemo 

and  ct shows stationary situation for now, my ascites stopped and dont see anymore, meta in lung 3 mm was killed.. meta in liver it is not meta,, just only liver damage bcs too many chemo, i have reduction in my colon now 16 mm and so many meta i n peritoneum.

my CEA IS  BEFOR  MONTH 9,4, AFTER erbitux was 4,28 and last 4,78,, hm hm

i was written when constantly grow up, this is not good but i hope that wil be better next time,, normally CEA is 5,,

i am still alive and stronger than before and i am going figth for another day..

i am sure that i will live,., and beat the CANCER. 

I LOVE MY CANCER  bcs is part of me,part of my body and my still.but i love LIFE SOO MUCH and i want to live.. 

greetings from CROATIA!

where are you all?

merry Christmass to all..

i am finished 48 chemo 05.12 and i am free more thane ever..next will be 04.01.2013..  i celebrate 3 yrs my life with cancer and i feel NEVER STRONGER!!

on monday i will go for 48 chemo,but i have my blood results.CEA  is little higher  6,39 ,normal is 0-5 and   i dont know do you know formula for leukocite? neutorfiln granulociti x leukociti must be 1,5 in croatia ,but i have little neutropenia ,0,31 neutr ,granulociti and my leukociti is 4.2..

On stu 27, 2012 5:23 AnneLilja wrote:

Hi Allan71, I think some side-effects are the same but that there are some differences. The way I understand it, the platinum-based chemo have the potentially serious side-effect of neuropathy whereas Irinotecan affects the mucous membranes of the digestive tract which causes mouth sores (I felt like I had been scalded) and potentially severe diarrhea. There were days I couldn't eat, there were days I was in agony with stomach cramps and diarrhea. I got to try different stuff to reduce the side-effects and found that, for me, an old ulcer medication made a *big*difference. It's called Andapsin in Sweden where I am at, active ingredient sucralfate. It's a pretty disgusting goo, but worked for me. I would say that I got a couple of decent days in before the next treatment. I hope Folfiri works for you. I wish you the best of luck. Sincerely, Anne

you said exactly same side effects like me... but i go to toilet more than 10-20 times on day,bcs they cut 1 m small intestine and 20-30 cm my colon ascendis..

some people with me received folfox and i think that is much toxic than folfiri and side affects are  harder than folfiri..i have folfiri +avastin 47 time  in 30 months..i have diarrhea, loss of taste the first couple of days, a little nausea, and measuring your blood pressure, but my blood is so far, thankfully, was always good ..my next line if  my NEXT CT SCANS  shows progression will be folfox and i have litlle fear about that chemo bcs my doctor saide to me..the best munition for you is FOLFIRI +AVASTIN..

done chemo no 47 ..and i am stronger than before.. 07.12.2012.i do CT scan no.13 and i hope that will be stationary...who knows!??!

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