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vedransaba's Message Board Messages

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where are you all?

merry Christmass to all..

i am finished 48 chemo 05.12 and i am free more thane ever..next will be 04.01.2013..  i celebrate 3 yrs my life with cancer and i feel NEVER STRONGER!!

on monday i will go for 48 chemo,but i have my blood results.CEA  is little higher  6,39 ,normal is 0-5 and   i dont know do you know formula for leukocite? neutorfiln granulociti x leukociti must be 1,5 in croatia ,but i have little neutropenia ,0,31 neutr ,granulociti and my leukociti is 4.2..

On stu 27, 2012 5:23 AnneLilja wrote:

Hi Allan71, I think some side-effects are the same but that there are some differences. The way I understand it, the platinum-based chemo have the potentially serious side-effect of neuropathy whereas Irinotecan affects the mucous membranes of the digestive tract which causes mouth sores (I felt like I had been scalded) and potentially severe diarrhea. There were days I couldn't eat, there were days I was in agony with stomach cramps and diarrhea. I got to try different stuff to reduce the side-effects and found that, for me, an old ulcer medication made a *big*difference. It's called Andapsin in Sweden where I am at, active ingredient sucralfate. It's a pretty disgusting goo, but worked for me. I would say that I got a couple of decent days in before the next treatment. I hope Folfiri works for you. I wish you the best of luck. Sincerely, Anne

you said exactly same side effects like me... but i go to toilet more than 10-20 times on day,bcs they cut 1 m small intestine and 20-30 cm my colon ascendis..

some people with me received folfox and i think that is much toxic than folfiri and side affects are  harder than folfiri..i have folfiri +avastin 47 time  in 30 months..i have diarrhea, loss of taste the first couple of days, a little nausea, and measuring your blood pressure, but my blood is so far, thankfully, was always good ..my next line if  my NEXT CT SCANS  shows progression will be folfox and i have litlle fear about that chemo bcs my doctor saide to me..the best munition for you is FOLFIRI +AVASTIN..

done chemo no 47 ..and i am stronger than before.. 07.12.2012.i do CT scan no.13 and i hope that will be stationary...who knows!??!

i have colon cancer ,dukes D. i I operated 05.01.2010.tumor was at the beginning of the large intestine and invaded the small intestine, peritoneum and lymph nodes .. my doctor gave me 6 months of life ..

today  I am here I am still alive and I am going on Monday to 47 chemo protocol folfiri + Avastin ..

HY, i am write for 1 st time.i am from croatia and i am 41 yrs old.. first sorry for my bad english,but in school we learn french ,bad choice :)

 i have colon cancer ,dukes D. i I operated 05.01.2010.tumor was at the beginning of the large intestine and invaded the small intestine, peritoneum and lymph nodes .. my doctor gave me 6 months of life ..

today  I am here I am stilla live and I am going on Monday to 47 chemo protocol folfiri + Avastin ..

but I am in fear, great fear, because for the first time this summer, my CT was performed, showing little progression .moj lymph nodes (metastases) in the peritoneum has grown from 6.1 mm to 6.5 x 11.1 x 14.6 mm I .. 2 months this summer I received chemo because I have to pull teeth .. now I am back on the horse again and I am receiving chemo and doing my 13 07.12.2012 CT.I I think and hope that it will be ok ..

If you have questions, please ask me.i  will try to help ..

I read on the forums, an American to be there for HIPEC is often the case as moj.u HIPEC Croatia also work, but I do not know if I can do and is it really so difficult operation to the story that the survival rate of only 50 percent??

Regards

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