Cutting uterus into smaller fragments for minimally invasive removal can disperse undetected malignancy
We have so many differing opinions; one from MGH team of Dr.s say repeatedly, "no, do not have any operations" and "we do not see the fluid built up that the N.O, says she sees", and Your son will not come out of the operation the same IF he survived." Yet, The N.O. insists; " there IS fluid built up there and a shunt operation (serious brain surgery) will help his quality of life." Yet, she says...
I hear the grief in your words, Jon. I am so sorry this is happening to your wife and you. I hope the days you were told you have are stetched in stable health beyond what the Dr.s say. The love, care, and effort you have put into loving your wife is evident in all you have done and do.
Thinking and praying, Jan
There are so many conflicting opinions, it is making me distrustful. MGH N.O. says "yes, there is fluid in the brain", yet, the MGH Team of Neuro-Dr.s say "no, there is not any fluid, my son is not a candidate for anything, in their professional opinion do NOT let my son have the extensive biopsy operation because he will come out of it worse than before IF he survives."
Excuse the misspelling. MY computer jumps all over and iliminates letters.
I cant believe it is the end of July and in May Dr. Eichler introduced the idea of a shunt. Yet, we were told by the entire team of Dr.s my son is not a candidate for anything, so don't do the shunt because of too many infections and clogging. Yet my sons N.O. said it is very small amount of people that have this happen to them. Most are successful.
We went for second opinions becus...
RJ, what is royal rife? Is it okayed in the USA?
Cynthialynn, what have the Dr.s said regarding alternative treatment when it comes back?
My son has Anaplastic oligodendroglioma, grade 3.
Is it possible there is swelling, fluid, or pain she is not admitting to? The stress of being a patient with a brain tumor can drive a person into deep depression. I cannot imagine them being able to travel this journey alone. These symptoms you describe need to be reported to her Neuro-Oncologist, brain surgeon, PCP, etc.
It is hard. I send my heart out to you and your family. This is your mom who gave so much to you.
My strong advice is to stay close to her through this no matter what and tell her you love her every day. What the Dr.s say "timewise" is statistical documented estimate" only. There are people living so much longer with this and after second, third occurances. Get many more...
My son has had trouble swallowing food because the area of the brain affected by the cancer has to do with fine motor skills. He had a swollow test and passed with flying colors. I have tried Boost glucose control, GNC protein drinks, pureed(REAL food), etc. A drive out for ice cream has worked twice. His problem lies with tremendous mucus buildup and aspiration of his food/drink...
Fantastic news Nina.
family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,
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