Loading...

vwxyz's Recent CancerCompass Activity

  • vwxyz has replied to a post on the message board

    germany is far far away.  But good to know if you live there. 

    March 29 at 3:35 AM view post
    • vwxyz has replied to a post on the message board

      Hyperthermic chambers are known to heal a body faster. It makes complete sense.   I do not understand why they do not do it here in the USA. They must be too engrossed in looking for and being "the one for the cure."   The insurance companies are running the Dr.s and brain cancer patients are assumed by the Dr.s to die anyway so why run up the bills e4xcept with the chemo drugs which t...

      March 24 at 3:56 PM view post
      • vwxyz has replied to a post on the message board

        David 8735, I have had the experience of Efudex on basel cell carcinoma.  The Dermatologist said to keep applying it for 4-5 months.  The pharmacist said to apply it only up to 14 days.  I stopped it somewhere between the two professionals opinions.  I am happy with the results.  The spots are gone and new skin remains.  However, I noticed my knees would pop and give out on me wit...

        March 13 at 10:20 PM view post
        • vwxyz has replied to a post on the message board

          David 8735, I have had the experience of Efudex on basel cell carcinoma.  The Dermatologist said to keep applying it for 4-5 months.  The pharmacist said to apply it only up to 14 days.  I stopped it somewhere between the two professionals opinions.  I am happy with the results.  The spots are gone and new skin remains.  However, I noticed my knees would pop and give out on me wit...

          March 13 at 10:20 PM view post
          • vwxyz has replied to a post on the message board

            Yes, the side effects are hard to deal with, but it cleared up my sons carcinoma all over his head.    I applied the cream form to my sons head without gloves and I ended up with constant knee problems and my leg would give out from under me also.   It is a powerful drug, not to be fooled with or, as I was told by the Pharmacist, not taken more than 2 months. J.

            January 31 at 5:53 PM view post
            • vwxyz has replied to a post on the message board

              I agree with you entirely.  My son was unable to stand or walk without his legs giving out from under him after taking this drug.  Whether it be in pill form or cream, it has horrible side effects. 

              January 28 at 10:27 PM view post
              • vwxyz has replied to a post on the message board

                Dear Houstonwife,  You have come to the right site.  Many have been told it is inoperable.  Many have found other opinions elsewhere before it grows out of control.  Keep trying.  Do not take just one facility's opinion.  Search and keep all appointments with reputable Dr.s at reputable facilties  to find a way to help your husband, if possible.  My son was...

                January 03 at 3:36 PM view post
                • vwxyz has replied to a post on the message board

                  John, I am sorry this is happening.  I was hoping to hear things were still as well as it had been in strength.  I am glad for the wheelchair and the trusted team of Dr.s you continue to have.  The security of caring Dr.s that do not write you off and walk away after they let the cancer grow too far out of control, and the custom wheelchair giving you some independence instead ...

                  January 03 at 3:18 PM view post
                  • vwxyz has replied to a post on the message board

                    Dr. Clark Chen (brain surgeon) did my sons cerebellum surgery at Boston Beth Isreal Deaconess Hospital just before he moved to California.  It was not the ablasion surgery he presently speaks of in the video.  My son was better after his surgery compared to after the 6 weeks of radiation and chemo.    J.L.

                    January 03 at 2:44 PM view post
                    • vwxyz has replied to a post on the message board

                      every time my loved one tried to forget, he would try to walk on his own when i left his place to clean snow off car or warm it up.  he would keep trying to walk and always fell once hitting his head, another time cracking a rib.  his vestibular issues were awful for him, and yet, he still wanted to live right up to the very end.  My God, I miss him. 

                      December 24 at 3:32 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.