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vwxyz's Recent CancerCompass Activity

  • vwxyz has created a new message board discussion

    I am looking for the life expectency of people on Immune therapy.  I need to know how well it works and if there is a better way to discover the tumors much much sooner than they are now.  It is getting discusting to hear the short term thoughts of the Dr.s saying how short a time everyone has with diagnosis.  A constant headache is a huge red flag not to be ignored.  Yet my son was ignored for 6 ...

    June 25 at 11:19 PM view discussion
    • vwxyz has replied to a post on the message board

      Jon, I just checked out the "faces of brain cancer.org" site.  It is going to happen close to where my other son lives.  He would like to be part of it and, at least, see you get into the submarine and get out 24 hours later.  We both would like to raise money for this event.  Jan

      June 20 at 8:17 PM view post
      • vwxyz has replied to a post on the message board

        I hear the Proton radiation has less side and after affects.  It is targeted to the area and more direct than all others so the nuecrosis may be less and the areas around it will not be so affected.  My son had 8 straight hours from a bone marrow transplant at the age of 11 on top of other radiation and many chemo programs from the age of 5.   As an adult, his headaches started when he was ...

        June 20 at 6:38 PM view post
        • vwxyz has replied to a post on the message board

          To drain the fluid will help him heal and feel better. It took awhile with my son too.  Any operation will weaken your son so soon after the first one.   A lot of times the Dr team does not want to put a child/adult through another operation so soon for something that will eventually drain on its own.  It is worthy enough a question to ask the Neuro-Oncologist or Dr. in charge of yo...

          June 20 at 6:18 PM view post
          • vwxyz has created a new message board discussion

            and what did they do for prolonged life?  

            June 09 at 8:53 AM view discussion
            • vwxyz has created a new message board discussion

              how can anyone catch it in early stages>??? J. 

              June 09 at 8:50 AM view discussion
              • vwxyz has replied to a post on the message board

                I know its a documented medical fact that no level of antibiotic will take away the entire infection if you have metal in your body.  A few of the cells from the infection always hide behind the metal. 

                June 04 at 3:21 PM view post
                • vwxyz has replied to a post on the message board

                  Jon, Who are the people contributing the money for this project and where is the research being done? Is it a new direction for research or contributing to a focus you think might be already promising?  J

                  June 04 at 3:04 PM view post
                  • vwxyz has created a new message board discussion

                    I have been away from campus compass since last year.  It has been hard without my son. 

                    June 03 at 2:53 PM view discussion
                    • vwxyz has replied to a post on the message board

                      germany is far far away.  But good to know if you live there. 

                      March 29 at 3:35 AM view post
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                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

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