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vwxyz's Recent CancerCompass Activity

  • vwxyz has replied to a post on the message board

    I am still not over it.  There are times I can't go further in my life without ending up at my sons gravesite.  Its because of the times I still have to catch myself in thinking of including Jeff in travels and fun outings, or asking his help and advice, and hearing the happy reports of how well he was doing in college and how much he loved the challenge of learning new things.  I will ...

    August 18 at 2:32 AM view post
    • vwxyz has replied to a post on the message board

      Natakazam, what did your friend do for the 3 occurances?  Did they operate or treat? 

      August 13 at 5:37 AM view post
      • vwxyz has replied to a post on the message board

        LoveJesusChrist, yes, you said it right.  "Jefuchs, in my opinion, the ones who survive around 20 years or more are grade 1 or 2 of AO, means benign, NOT malignant." 

        August 12 at 8:36 AM view post
        • vwxyz has replied to a post on the message board

          Continued good health, Kathleen.  It is nice to have met you online.  Janet

          August 06 at 4:11 AM view post
          • vwxyz has replied to a post on the message board

            It is not my style to do any harm or threaten anyone.  It is not my style to sue anyone either.  They did all they could and more on Medicare/Mass health which is 36 cents to a $1.00.  The human staff probably was stretched thin.   He lasted a bit longer than expected.  I need to focus on myself.  I do not want to be a victim of modern medicines success. (thank you Clint).  Rat...

            August 05 at 1:39 AM view post
            • vwxyz has replied to a post on the message board

              Clint,  Thank you for everything you have sent this way.  Your words and reminder of what the Bible has given us to reflect and depend on are comforting.  The graciousness and understanding of what it is to be human going through this as a patient and a caregiver is supportive to this site. You responded to everyone in the way God would have us all respond. It has done good.  Espec...

              July 23 at 4:02 PM view post
              • vwxyz has replied to a post on the message board

                My reports are finished.  My thoughts on what happened to my son are done.  It is all in "how" he was treated by the medical professionals. The dignity, respect, care, and constant communication needs to be first and formost towards the person going through this and their caregivers.  There are not many hospitals that have supportive groups for caregivers that are going th...

                July 23 at 3:38 PM view post
                • vwxyz has replied to a post on the message board

                  Leslieluv29, Hello.  How are you?  I have reread all the "grief stricken remarks I made during the time just after my son died.  I appologize for any angry fragmented things I said.  I guess it was my way of keeping a record of facts and feelings.  i did not mean to drag anyone down.    Thank you for being there with your comforting words.  I would be interested in reading you...

                  July 23 at 2:42 PM view post
                  • vwxyz has replied to a post on the message board

                    Oh, I almost forgot.  Sometimes Temodar and Avastin side effects can cause the brain to bleed.  You know him better than any Dr., so fight for your loved one and report everything to the Dr.s.  If anything happening continues, go to the E.R. or another facility.  Get second and third, etc. opinions. Keep all of your loved ones medical records and copies handy to bring/send to o...

                    July 23 at 12:56 PM view post
                    • vwxyz has replied to a post on the message board

                      I was told to get as much protien into Jeff as possible because, towards the end, his weight went to 76 pounds from 125.  The Temodar weakened him and did not work the second time around.  The cancer builds up a resistence to prior chemotherapy.  I am a firm believer in putting the patient on Immune Therapy from the beginning before the human body is so weakened ...

                      July 23 at 12:38 PM view post
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                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

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