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vwxyz's Recent CancerCompass Activity

  • vwxyz has replied to a post on the message board

    Yes, the side effects are hard to deal with, but it cleared up my sons carcinoma all over his head.    I applied the cream form to my sons head without gloves and I ended up with constant knee problems and my leg would give out from under me also.   It is a powerful drug, not to be fooled with or, as I was told by the Pharmacist, not taken more than 2 months. J.

    Yesterday at 5:53 PM view post
    • vwxyz has replied to a post on the message board

      I agree with you entirely.  My son was unable to stand or walk without his legs giving out from under him after taking this drug.  Whether it be in pill form or cream, it has horrible side effects. 

      January 28 at 10:27 PM view post
      • vwxyz has replied to a post on the message board

        Dear Houstonwife,  You have come to the right site.  Many have been told it is inoperable.  Many have found other opinions elsewhere before it grows out of control.  Keep trying.  Do not take just one facility's opinion.  Search and keep all appointments with reputable Dr.s at reputable facilties  to find a way to help your husband, if possible.  My son was...

        January 03 at 3:36 PM view post
        • vwxyz has replied to a post on the message board

          John, I am sorry this is happening.  I was hoping to hear things were still as well as it had been in strength.  I am glad for the wheelchair and the trusted team of Dr.s you continue to have.  The security of caring Dr.s that do not write you off and walk away after they let the cancer grow too far out of control, and the custom wheelchair giving you some independence instead ...

          January 03 at 3:18 PM view post
          • vwxyz has replied to a post on the message board

            Dr. Clark Chen (brain surgeon) did my sons cerebellum surgery at Boston Beth Isreal Deaconess Hospital just before he moved to California.  It was not the ablasion surgery he presently speaks of in the video.  My son was better after his surgery compared to after the 6 weeks of radiation and chemo.    J.L.

            January 03 at 2:44 PM view post
            • vwxyz has replied to a post on the message board

              every time my loved one tried to forget, he would try to walk on his own when i left his place to clean snow off car or warm it up.  he would keep trying to walk and always fell once hitting his head, another time cracking a rib.  his vestibular issues were awful for him, and yet, he still wanted to live right up to the very end.  My God, I miss him. 

              December 24 at 3:32 PM view post
              • vwxyz has replied to a post on the message board

                Mollie924,   I feel so bad about your husband passing.  Have you ever concidered suing any Dr. that did not do anything about your husbands symptoms in the 4 tyears before it was discovered?  My son complained of headaches for 6 years before the pcp decided to do anything about it.  We went to 2 other Dr.s at separate facilities and none of them told us about the small area in his cerebellum...

                November 25 at 1:02 AM view post
                • vwxyz has replied to a post on the message board

                  JG, thank you for sharing the genuine love, warmth, life, and care that is in your heart.  Sending prayers for as healthy and stable life and lifestyle possible. You did the right thing telling your children what is happening.    J.

                  November 10 at 8:59 PM view post
                  • vwxyz has replied to a post on the message board

                    Candy Hicks, how is your husband responding to Nova Cure? I am interested if it works and how long does it work and how inconspicuous us it to wear.

                    November 05 at 10:41 AM view post
                    • vwxyz has replied to a post on the message board

                      Thank you, all. Jan

                      November 02 at 3:39 PM view post
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                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

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