Loading...

vwxyz's Recent CancerCompass Activity

  • vwxyz has replied to a post on the message board

    All good advice.  Also stay out of the sun.  Drs. orders.

    Tuesday at 3:50 AM view post
    • vwxyz has replied to a post on the message board

      Matthew has two very good loving parents by his side.  Praying for more normal moments.  Jan

      June 11 at 10:53 PM view post
      • vwxyz has replied to a post on the message board

        Matthew is not this way because of anything you did.  I agree  he should have anything to help keep him comfortable.  Sit with him, tell him how much you love him, talk of fun times that have meaning to him and you when he is up to it, there is soothing in prayer if that has been part of his/your life, and even if it has not. I will be lifting you all up in prayer. 

        May 30 at 10:35 PM view post
        • vwxyz has replied to a post on the message board

          JON4156, MY SON IS ON multi vitamin, calcium, vitamin D and C, 20mg Lovenox shot/day for blood clots, metformin for medicine induced Diabeties 2, at this moment, 3 mg prednisone (will be knocked down to 2mg next month) for Endocrine issues, testosterone, simvastatin for cholesterol, metopolol tartrate to regulate his heartrate.   MGH hospital was there when his Primary Care Dr. blew him away countless...

          May 30 at 4:07 PM view post
          • vwxyz has created a new message board discussion

            How are the people that had just the radiation OR the Temodar, not together.  I was told that Dana Farber had started a study after the dx, starting patients with "either" Temodar or radiation.  And when it grew back, putting them on what they did not have them on the first round.  I believe its purpose is to prolong their livespan along with as much quality of life as possible.  I would lik...

            May 28 at 1:32 AM view discussion
            • vwxyz has replied to a post on the message board

              It has been 3 years this July 1, 2013 and still ringing.  How long did it take for you? 

              May 27 at 3:48 AM view post
              • vwxyz has replied to a post on the message board

                I am going to see if I can fight this with as much grace as possible. 

                May 27 at 3:46 AM view post
                • vwxyz has replied to a post on the message board

                  Thank you all.  I would have thought they would have wanted to continue his care since they know his case.  We were told they would give HOPE and they did a good job.  At this moment my son looks good and the MRI is the same.  But every time we are in the office we are told no more treatment by them from any of the N.O., Neuro-Endo., or any Dr. at their hospital; and they are a team...

                  May 27 at 3:44 AM view post
                  • vwxyz has replied to a post on the message board

                    Littlemo, It is my unmarried adult son.  He was caught at the end of college before he could get a decent job with decent health coverage with only government Mass Health, Neighborhood Health Plan which pays the Drs. 36 cents to each dollar.   He has gone through so much in the last 2 1/2 years to get where he is right now.  July 1, this year will make the 3 year mark which is when they thoug...

                    May 26 at 11:43 PM view post
                    • vwxyz has created a new message board discussion

                      We have been told that our son cannot have any care anymore, any time, ever again at Mass General Hospital when the c cell starts to grow back.  ?What? ?Do they want him to die?   That means not one on the team of N.O., not one of the professionals in other departments in the hospital, 9th floor Yawkee, 6th floor MRi, etc, will ever take care of my son once the c cell comes back. They di...

                      May 26 at 8:41 PM view discussion
                      Loading...
                      Load more activity
                      Loading more activity

                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.