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vwxyz's Recent CancerCompass Activity

  • vwxyz has created a new message board discussion

    We have so many differing opinions; one from MGH team of Dr.s say repeatedly, "no, do not have any operations" and "we do not see the fluid built up that the N.O, says she sees", and Your son will not come out of the operation the same IF he survived."  Yet, The N.O. insists; " there IS fluid built up there and a shunt operation (serious brain surgery) will help his quality of life." Yet, she says...

    Wednesday at 9:13 PM view discussion
    • vwxyz has replied to a post on the message board

      I hear the grief in your words, Jon.  I am so sorry this is happening to your wife and you.  I hope the days you were told you have are stetched in stable health beyond what the Dr.s say.  The love, care, and effort you have put into loving your wife is evident in all you have done and do.     Thinking and praying, Jan 

      Wednesday at 9:03 PM view post
      • vwxyz has replied to a post on the message board

        There are so many conflicting opinions, it is making me distrustful.  MGH N.O. says "yes, there is fluid in the brain", yet, the MGH Team of Neuro-Dr.s say "no, there is not any fluid, my son is not a candidate for anything, in their professional opinion do NOT let my son have the extensive biopsy operation because he will come out of it worse than before IF he survives."   Brighams Neu...

        July 19 at 3:03 AM view post
        • vwxyz has replied to a post on the message board

          Excuse the misspelling.  MY computer jumps all over and iliminates letters.  

          July 18 at 6:25 AM view post
          • vwxyz has created a new message board discussion

            I cant believe it is the end of July and in May Dr. Eichler introduced the idea of a shunt.   Yet, we were told by the entire team of Dr.s my son is not a candidate for anything, so don't do the shunt because of too many infections and clogging.  Yet my sons N.O. said it is very small amount of people that have this happen to them. Most are successful.  We went for second opinions becus...

            July 18 at 6:23 AM view discussion
            • vwxyz has replied to a post on the message board

              RJ, what is royal rife?  Is it okayed in the USA? Cynthialynn, what have the Dr.s said regarding alternative treatment when it comes back? My son has Anaplastic oligodendroglioma, grade 3.  J.

              July 07 at 6:16 AM view post
              • vwxyz has replied to a post on the message board

                Is it possible there is swelling, fluid, or pain she is not admitting to?  The stress of being a patient with a brain tumor can drive a person into deep depression.  I cannot imagine them being able to travel this journey alone.  These symptoms you describe need to be reported to her Neuro-Oncologist, brain surgeon, PCP, etc.  

                July 07 at 6:09 AM view post
                • vwxyz has replied to a post on the message board

                  It is hard.  I send my heart out to you and your family.  This is your mom who gave so much to you.  My strong advice is to stay close to her through this no matter what and tell her you love her every day. What the Dr.s say "timewise" is statistical documented estimate" only.  There are people living so much longer with this and after second, third occurances.   Get many more...

                  July 07 at 1:02 AM view post
                  • vwxyz has replied to a post on the message board

                    Susan,  My son has had trouble swallowing food because the area of the brain affected by the cancer has to do with fine motor skills.  He had a swollow test and passed with flying colors.  I have tried Boost glucose control, GNC protein drinks, pureed(REAL food), etc.  A drive out for ice cream has worked twice.  His problem lies with tremendous mucus buildup and aspiration of his food/drink...

                    June 29 at 5:57 AM view post
                    • vwxyz has replied to a post on the message board

                      Fantastic news Nina. 

                      June 29 at 5:01 AM view post
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                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

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