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vwxyz's Recent CancerCompass Activity

  • vwxyz has replied to a post on the message board

    To everyone who replied.  Thank you.  It all sounds so uplifting in black and white. They are just thoughts/plans.  All I have accomplished is rummaging through some boxes to find certain neccesary items.    I am left with too much and wish my son was alive to answer some very very very important questions I should have asked when he was alive.    I go to the cemetery...

    October 02 at 6:33 PM view post
    • vwxyz has created a new message board discussion

      my house is full of his belongings and furniture for me to distribute and.......... Is it me, or has anyone else gained weight through all this?  I saw pictures of me recently taken by caring family members and I did not recognise myself.  I have to work on this and plan a garden next spring.  I walked through the peaceful cemetery my son is in and found a gravestone that is shaped...

      September 29 at 7:34 PM view discussion
      • vwxyz has replied to a post on the message board

        Patti,  I am sorry for your great loss. You both had such a loving bond.   Jan     

        September 12 at 9:57 PM view post
        • vwxyz has replied to a post on the message board

          Proton radiation therapy is best=  less side effects.  People bounce back sooner wih this Proton radiation.  It is the most direct of out patient radiation therapies. People are living longer because of less tissue damage in surrounding area of tumor.  Better than IMRT, however, IMRT might be a second option if none other.    As for any newer form of treatment...

          September 12 at 2:37 PM view post
          • vwxyz has created a new message board discussion

            I find it hard to believe so much time went by (10 & 1/2 days) with him on just saline, glucose, 2 applications of calcium and potassium, and antibiotics weakening him beyond repair.  I can't believe they did not start feeding him with the ngtube right away consistently with an antacid or whatever to help stop the regergitation into his throat, so h would not drown.  He had aspirated pneumonia and his...

            September 12 at 2:08 PM view discussion
            • vwxyz has created a new message board discussion

              To help the immune system to fight the cancer  

              September 12 at 12:33 AM view discussion
              • vwxyz has replied to a post on the message board

                Jeane, it does not take much to aspirate the tiniest bit of food or fluid.  Just one, miniscule, teeny residue that does not all go down with swallowing can give us all pneumonia by staying on top of the muscle that covers the windpipe.  When the windpipe muscle relaxes, the little bit of residue fluid/food goes in the lungs.  I was told we can aspirate our own saliva  or it can come up ...

                September 08 at 1:54 PM view post
                • vwxyz has replied to a post on the message board

                  Best of luck.  You are in good hands.  Dr. Clark Chen did my sons emergency surgery in Boston Beth Israel Deaconess February, 2010.  He is unbelievably prompt in getting back to you, informative, and on top of things.  He was known to be an inteligent, aggressive surgeon on the eastern side of USA.  I was in touch with him within the last year for my sons possible extensive biopsy...

                  September 06 at 10:04 AM view post
                  • vwxyz has replied to a post on the message board

                    JoeyK, I know what you are feeling.  Everywhere I go I expect him to be there. My son and I had a good relationship and we always went places together, especially the last 2 years when his driving was taken from him.   I visit the cemetery and pray and talk while there.  I could live there it is so peaceful.  I even bought a cemetery plot next to his for myself and 2 others fo...

                    September 04 at 11:29 PM view post
                    • vwxyz has replied to a post on the message board

                      JG,   Dr. Clark Chen is one of the best neuro-surgeons.  He is very supportive, inteligent, and really knows his area of expertise.   He did my sons surgery back in 2010.  I wish we could have followed him to CA for 2nd surgery.  He did recommend a very good skull base neuro-surgeon for us at Brighams in Boston when I touched base with him.   He responded i...

                      September 04 at 3:10 AM view post
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                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

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