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vwxyz's Recent CancerCompass Activity

  • vwxyz has replied to a post on the message board

    There are so many conflicting opinions, it is making me distrustful.  MGH N.O. says "yes, there is fluid in the brain", yet, the MGH Team of Neuro-Dr.s say "no, there is not any fluid, my son is not a candidate for anything, in their professional opinion do NOT let my son have the extensive biopsy operation because he will come out of it worse than before IF he survives."   Brighams Neu...

    July 19 at 3:03 AM view post
    • vwxyz has replied to a post on the message board

      Excuse the misspelling.  MY computer jumps all over and iliminates letters.  

      July 18 at 6:25 AM view post
      • vwxyz has created a new message board discussion

        I cant believe it is the end of July and in May Dr. Eichler introduced the idea of a shunt.   Yet, we were told by the entire team of Dr.s my son is not a candidate for anything, so don't do the shunt because of too many infections and clogging.  Yet my sons N.O. said it is very small amount of people that have this happen to them. Most are successful.  We went for second opinions becus...

        July 18 at 6:23 AM view discussion
        • vwxyz has replied to a post on the message board

          RJ, what is royal rife?  Is it okayed in the USA? Cynthialynn, what have the Dr.s said regarding alternative treatment when it comes back? My son has Anaplastic oligodendroglioma, grade 3.  J.

          July 07 at 6:16 AM view post
          • vwxyz has replied to a post on the message board

            Is it possible there is swelling, fluid, or pain she is not admitting to?  The stress of being a patient with a brain tumor can drive a person into deep depression.  I cannot imagine them being able to travel this journey alone.  These symptoms you describe need to be reported to her Neuro-Oncologist, brain surgeon, PCP, etc.  

            July 07 at 6:09 AM view post
            • vwxyz has replied to a post on the message board

              It is hard.  I send my heart out to you and your family.  This is your mom who gave so much to you.  My strong advice is to stay close to her through this no matter what and tell her you love her every day. What the Dr.s say "timewise" is statistical documented estimate" only.  There are people living so much longer with this and after second, third occurances.   Get many more...

              July 07 at 1:02 AM view post
              • vwxyz has replied to a post on the message board

                Susan,  My son has had trouble swallowing food because the area of the brain affected by the cancer has to do with fine motor skills.  He had a swollow test and passed with flying colors.  I have tried Boost glucose control, GNC protein drinks, pureed(REAL food), etc.  A drive out for ice cream has worked twice.  His problem lies with tremendous mucus buildup and aspiration of his food/drink...

                June 29 at 5:57 AM view post
                • vwxyz has replied to a post on the message board

                  Fantastic news Nina. 

                  June 29 at 5:01 AM view post
                  • vwxyz has replied to a post on the message board

                    phylscircus2, Congratulation on your son surviving to age 15 after all that was done to him at age 2 & 1/2.   Unbelievable factual miracle your son survived all they did to save his life at age 2 1/2.  There is not one Dr. that will give any child radiation under age 3 around here.   In fact your sons life story is the first I have heard.  I would like to hear how yo...

                    June 29 at 4:53 AM view post
                    • vwxyz has created a new message board discussion

                      The "amount" of food just is too much for him to eat.  Is there a smaller amount of higher form concentrate of protein that does not taste nasty I could be giving him?  Like a tablespoon size administered once or twice for complete daily intake/day?   I wish they could invent a protein pill or protein injection.   He won't eat "greek" yogurt, real meat, milky suppliment drinks (ma...

                      June 29 at 3:48 AM view discussion
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                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

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