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vwxyz's Recent CancerCompass Activity

  • vwxyz has replied to a post on the message board

    Clint,  Thank you for everything you have sent this way.  Your words and reminder of what the Bible has given us to reflect and depend on are comforting.  The graciousness and understanding of what it is to be human going through this as a patient and a caregiver is supportive to this site. You responded to everyone in the way God would have us all respond. It has done good.  Espec...

    July 23 at 4:02 PM view post
    • vwxyz has replied to a post on the message board

      My reports are finished.  My thoughts on what happened to my son are done.  It is all in "how" he was treated by the medical professionals. The dignity, respect, care, and constant communication needs to be first and formost towards the person going through this and their caregivers.  There are not many hospitals that have supportive groups for caregivers that are going th...

      July 23 at 3:38 PM view post
      • vwxyz has replied to a post on the message board

        Leslieluv29, Hello.  How are you?  I have reread all the "grief stricken remarks I made during the time just after my son died.  I appologize for any angry fragmented things I said.  I guess it was my way of keeping a record of facts and feelings.  i did not mean to drag anyone down.    Thank you for being there with your comforting words.  I would be interested in reading you...

        July 23 at 2:42 PM view post
        • vwxyz has replied to a post on the message board

          Oh, I almost forgot.  Sometimes Temodar and Avastin side effects can cause the brain to bleed.  You know him better than any Dr., so fight for your loved one and report everything to the Dr.s.  If anything happening continues, go to the E.R. or another facility.  Get second and third, etc. opinions. Keep all of your loved ones medical records and copies handy to bring/send to o...

          July 23 at 12:56 PM view post
          • vwxyz has replied to a post on the message board

            I was told to get as much protien into Jeff as possible because, towards the end, his weight went to 76 pounds from 125.  The Temodar weakened him and did not work the second time around.  The cancer builds up a resistence to prior chemotherapy.  I am a firm believer in putting the patient on Immune Therapy from the beginning before the human body is so weakened ...

            July 23 at 12:38 PM view post
            • vwxyz has replied to a post on the message board

              Get him to the Dr.s hospital any way you can.  Call an ambulance.     I would rather bring my son in our car than an ambulance.  Its a bit impersonal.   My son was better because of his 5 day stay in the hospital when I finally got him up and out to the hospital.  By that time my son was too weak to argue where we went.  He did ask why we weren't going to the local hospita...

              July 23 at 2:15 AM view post
              • vwxyz has replied to a post on the message board

                i agree with tumormanten.   But in the meantime, make that important phone call to a Dr. that will talk to him directly.  A person needs to feel in charge and connected to the Dr.'s advice.  It might be enough to get him to be seen.  I know my son stopped all eating many times and was admitted many times for "failure to thrive."  This whole thing creates such devastation to a person...

                July 23 at 12:33 AM view post
                • vwxyz has replied to a post on the message board

                  Daltman471,  You are right on the mark as for what you are experiencing, thinking, seeing.   I went through this with my son.  Weird spot to be in as a past boyfriend, but she needs you as a strong close friend. It is not a journey to go alone.  Keep all lines of communication open to family, friends, etc.  I have a friend who used to be my boyfriend, and I know he would be there a...

                  July 21 at 7:10 AM view post
                  • vwxyz has created a new message board discussion

                    I am looking for the longest surviving person on immune therapy.  Please tell us your story.  Thank you. 

                    July 01 at 1:37 PM view discussion
                    • vwxyz has created a new message board discussion

                      I am looking for the life expectency of people on Immune therapy.  I need to know how well it works and if there is a better way to discover the tumors much much sooner than they are now.  It is getting discusting to hear the short term thoughts of the Dr.s saying how short a time everyone has with diagnosis.  A constant headache is a huge red flag not to be ignored.  Yet my son was ignored for 6 ...

                      June 25 at 11:19 PM view discussion
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                      About vwxyz

                      Caregiver
                      Brain Cancer
                      Recipes

                      family member has grade3, anaplastic oligodendroglioma, I monitor his meds and symptoms, etc.,

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