Loading...

wallgev's Message Board Messages

Loading...
Showing 1 - 10 of 3

Page 1 of 1

I jsut reread my message, and want to correct that I am on 800 mg...i must have chemo brain!!!!!

just wanted to let my fellow Kidney Ca buddies that I have had good results with using probiotics with votrient. It seems to be helping with the GI side effects, especially vomitin and the diarrhea. I have been on 1200mg of Votrient for approx 2 years and over that time have had quite a lot of trouble with the "poison pill" as I call it. Although it is not too pleasant to take it is doing the trick shrinking the lesions that  were found in my lungs when first diagnosed, I also had my R kidney removed when these were found. I tried numerous remedies to help this situation. Presently I take my votrient early am, approx 6-7 am to make sure it is on an empty stomach.  I take the rest of my morning meds at about 9-10 including 1  probiotic capsule. I use the "one a day" brand, just because I am familiar with that company. I am not indorsing it but it seems to work for me. I tried myself off of the probiotic the first of the year and all my old complaints came back with avengence, but once I went back on it they again quieted down. Now I still have times when I feel crappy and some GI complaints  but over all I think it has made a difference and I have very little voming which was a big problem before. I do have the whole white hair thing,( it hasn't changed that) which is kind of freaky even though I am orginally blond..... anyway if you are having problems tolerating this med, try a probiotic, it works for me.......

Sise effects from votrient

by wallgev - July 21, 2013

Does anyone have a magic cure for the horrible GI side effects of this drug??? It is working but I am almost at the end of my rope with it.....I feel like my bathroon is now my  full time job, with no pay!!!!!....I have lost about 50# which I had to lose but now I am hearing if you lose any more we may need to lower the dose. And I m not skin and bones by any means but I do look good...but just feel like crap, I am on 800mg a day for about 1 year. I have been off of it a couple times for a few weeks due to abnormal blood tests and a cardiac issue and it was like heaven. It continues to work with shrinkage of the mets in my R lung. Any sugguestions on modalities that I might try or things that have helped others.....The Bathroom Queen!!!!!

Showing 1 - 10 of 3

Page 1 of 1

Loading...

About wallgev

Nurse, Patient
Kidney Cancer
Side Effects, Cancer Treatments, Chemotherapy

I am a 62 yr old female with stage 4 clear cell kidney cancer with mets to my R lung, Diagnosed in 3/2012. I am on Votrient 800mg and have been since 6/2012, after a nephrectomy and lung biopsy and referral to Sloan Kettering in NYC. I am doing well over all and my last scan showed my lung almost cleared of the areas that were involved.

We care about your feedback. Let us know how we can improve your CancerCompass experience.