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willem's Recent CancerCompass Activity

  • willem has replied to a post on the message board

    Hi Susan, I found the Website whith the protocal of the research programme: http://www.sunesis.com/data-pdf/595/sunesis-vosaroxin-20101110-Stuart.pdf Hope to hear from you soon. willem

    December 19, 2012 view post
    • willem has replied to a post on the message board

      I am 66, born february 1946

      December 18, 2012 view post
      • willem has replied to a post on the message board

        Hi Susan, Donot know about the blasts and I don't think they will do a transplant at the age of 66.

        December 18, 2012 view post
        • willem has created a new message board discussion

          I was diagnosed with AML on May 6th 2011 and was hospitalised on the 8th of May. My AML was too far for undergoing conventional treatment and the hospital invited me to join a French research programme "Chemotherapy  induction type LIA,LAMSA maintenance REV 5AZA" Now some 20 months later, the treatment failed and the Medical team here in France proposes an other research programme, based on Vosaroxin, a study o...

          November 30, 2012 view discussion
          • willem has replied to a post on the message board

            Hi David, Strange that all that can happen in a country like the USA. I live in France and am 66 years old. I must agree with Jenny who said " I have learnt you must take your health problems into your own hands and keep pushing along for answers.", but more important is a good relationship with your family doctor, who can undertake all the steps necessary for any treatment you need. Before being diagnosed with a ful...

            September 21, 2012 view post
            • willem has replied to a post on the message board

              Hello there! Yes you can. I was diagnosed with AML on May 6th 2011 and was hospitalized on the 8th of May. My AML was too far for undergoing conventional treatment and the hospital invited me to join a research programme, which I obviously did. Now I am in a good condition with a 3 monthly physical or hospital control. So far so good and I am feeling fine. So, hope there is. Message edited by CancerCompass staff....

              August 16, 2012 view post
              • willem has replied to a post on the message board

                Hello! I just read your message. I know I am somewhat late. I am recovering from AML and underwent treatment within a research programme. Any thing I can do for you??? william wist64@orange.fr

                August 09, 2012 view post
                • willem has created a new message board discussion

                  The way Jeff Samoray describes the insurance issue of a cancer treatment might be real in certain countries, but when I was diagnosed with a leukaemia I did not even have time to talk to an insurance company. Within two days I was hospitalised and locked up in a sterile room. If financial aspects would have been an issue I would have worried so much, that I would not even have survived the first week of the treatment...

                  August 09, 2012 view discussion
                  • willem has replied to a post on the message board

                    Yes, actually they recommend a clinical trial if convential treatment is not helping anymore. I just finished a clinical trial for a leukemia (LAM) (succesfully) br william   Message edited by CancerCompass staff. For personal protection,email address removed. Consider private reply. Please review CancerCompass Member Guidelines athttp://www.cancercompass.com/common/guidelines.html 

                    July 26, 2012 view post
                    • willem has created a new message board discussion

                      Hello, just to share I was diagnosed with acute leukaemia myeloblasts ALM on May 6th 2011 and according to the doctor I was somewhat too late for a conventual treatment, so they proposed me to join a research programme. I could go home for two days to sort out my family affairs and on May 9th 2011 they closed the door of the sterile room and the treatment which was registered in France as LAMSA-MAINTENANCE REV-5 AZA...

                      July 26, 2012 view discussion
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                      About willem

                      Patient, Survivor
                      Leukemia - (AML)
                      Cancer Prevention, Clinical Trials and Research, Insurance

                      Covering the Cost of Cancer Care


                      The way Jeff Samoray describes the insurance issue of a cancer treatment might be real in certain countries, but when I was diagnosed with a leukaemia I did not even have time to talk to an insurance company. Within two days I was hospitalised and locked up in a sterile room. If financial aspects would have been an issue I would have worried so much, that I would not even have survived the first week of the treatment.

                      In Europe and in this case France you have a basic obligatory insurance and a complimentary insurance. The basic insurance, obliged for all regular citizens, pays about 70% of all medical cost and the complimentary insurance pays the remainder. In case you have a "long term or serious and costly" disease you will be covered 100% by the basic insurance. I live some 80 kilometres from the destination hospital that treats my leukaemia problem and I am not able to travel independently to the hospital. In this case a taxi drives me to and from the hospital, all expenses covered by the insurance. No advance payments are needed for medication or treatments either. But, this is the luxury living in the western world and in this case, living in France.

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