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windymoose50's Recent CancerCompass Activity

  • Windymoose50 has replied to a post on the message board

    I had a stem cell transplant in 2009 and it worked for about 2 yrs.  I then did a clinical trial which nearly killed me. I was diagnosed with carcinoid (unrelated to MM) and after the treatment for that I went back on Rev and Dex and Vel. I had a reaction to Vel or Dex which turned me into a pretzel and it was hard to walk and move. We now know it was the Rev. I am now on my 5th cycle of Dex/Vel and am awaiting ...

    October 25 at 12:30 PM view post
    • Windymoose50 has replied to a post on the message board

      Mne totally failed after two years and I did a clinical trial, it nearly killed me.. I am now doing chemo to prepare for a back to back stem cell transplant starting in january 2013. No one knows if it will work or not.. Is kind of a crapshoot. Cancer treatment centers of america would be a great place to start but there are other places also with a great reputation. Good Luck to your friend...

      October 25 at 12:15 PM view post
      • Windymoose50 has replied to a post on the message board

        Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

        October 25 at 12:07 PM view post
        • Windymoose50 has replied to a post on the message board

          Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

          October 25 at 12:07 PM view post
          • Windymoose50 has replied to a post on the message board

            Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

            October 25 at 12:07 PM view post
            • Windymoose50 has replied to a post on the message board

              Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

              October 25 at 12:07 PM view post
              • Windymoose50 has replied to a post on the message board

                Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

                October 25 at 12:07 PM view post
                • Windymoose50 has replied to a post on the message board

                  Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

                  October 25 at 12:06 PM view post
                  • Windymoose50 has replied to a post on the message board

                    Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

                    October 25 at 12:06 PM view post
                    • Windymoose50 has replied to a post on the message board

                      Hop, Anna's Dad is on Hospice now, he has had a rough year. He is still getting up some and is still verbal... JuJu has had fractures that have slowed her down. We are on a link in facebook and you are welcome to join us.. You need to friend me and I can add u if u wish.. Gayle Homan Masserant...The Margaret sight you can be added to but I will have to get someone to add u as I don't have privledges on there...Th...

                      October 25 at 12:06 PM view post
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                      About windymoose50

                      Patient
                      Multiple Myeloma, Breast Cancer, Other Cancer
                      Cancer Nutrition, Clinical Trials and Research, Diet, Side Effects

                      I am 60 yrs old and getting ready to start chemo again, had stem cell transplant 9/11/09 I had breast cancer first 12/16/2004 and then MM diagnosed April 2009. Having breast cancer saved my life.They saw my blood work was odd, the numbers not quite right. This has been very quick and not a very big deal. They let us photograph my stem cell transplant, my daughter and hubby were in the room and everyone was jovial!I hope this is the beginning of my new life! Well lo and behold I become obstructed and undergo an open laparotomy on 8/31/11 and I was found to have a Carcinoid tumor. These are extremely rare but it was a little bigger than a plum and they removed 6" of colon and no chemo needed. But now my lambda light chains are climbing so chemo decisions need to be made. To be continued.......................

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