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yankmom's Recent CancerCompass Activity

  • yankmom has replied to a post on the message board

    Debbie Had meeting with her oncologist. She is afraid cancer has spread to bone marrow because her platelets have stayed low all month. It is so rare for it to move from brain that there are only 30 cases. And, of those 30 cases all are a lot older and mostly male. She also believes that it is aggressively attacking the brain again. So if chest xray comes out ok in morning she will go home tomorrow with hospice car...

    June 26, 2012 view post
    • yankmom has replied to a post on the message board

      Thank you for your response. We are headed home with hospice. Psychologist is meeting with girls today. Hopefully they will find sone comfort from his words.

      June 25, 2012 view post
      • yankmom has replied to a post on the message board

        Our world just stopped. Amy is one of those rare cases where the cancer has spread. It is in her lungs. We are waiting on pathology report to confirm that it is sarcoma. They are researching clinical trials but it is so rare they don't even know if there are any. If nothing changes it looks like a few weeks or months before we reach the end of journey. How do you answer a 10 year old when she asks if she caused the c...

        June 23, 2012 view post
        • yankmom has replied to a post on the message board

          I read that on wikipedia before, but my daughter-in-law's oncologist told us that since it started in the brain that it would not go anywhere else.  Now, she is having trouble with her lungs.  One lung is 90% filled with fluid.  They drained over 1,000 ccs off and didnt' even get half.  They make comments that it could be infection, side affect of chemo or the cancer has spread.  I was j...

          June 21, 2012 view post
          • yankmom has created a new message board discussion

            can gliosarcoma spread from brain to other organs or does it only stay in the brain?

            June 21, 2012 view discussion
            • yankmom has replied to a post on the message board

              She had a follow-up MRI scheduled for next week anyway to determine if there was progression with the tumor and if the chemo and radiation had "done its job."  When this first occured six years ago she was 4 months pregnant.  She had two grand mal seizures.  So they weren't able to a lot at that time.  After the baby was born, the tests were inclusive.  They said they couldn't do more withou...

              March 16, 2012 view post
              • yankmom has replied to a post on the message board

                Should have said she has now completed chemo and radiation.  Sorry.

                March 14, 2012 view post
                • yankmom has created a new message board discussion

                  My daughter in law was diagnosed with Grade/Level 4 Gliosarcoma in December.  Six years ago they found what they called an abnormality, something they thought she had always had.  We were reassured that it was not cancer.  Then in November she started having difficulty with speech and thought process.  They did a brain biopsy which revealed the gliosarcoma.  They said that surgery was not an ...

                  March 14, 2012 view discussion
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