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zookeeper's Recent CancerCompass Activity

  • zookeeper has replied to a post on the message board

    My mom was told 2 years with the same kind of tumor.  That's been almost 5 years ago!!  Yes, she's a different person and she gets so frustrated with her limitations at times but she's still with us and able to enjoy life for the most part.  I can totally relate!!

    July 06 at 9:39 PM view post
    • zookeeper has replied to a post on the message board

      My mother is 4.5 years out from her diagnosis.  I remember her weaning off the steroids and it was difficult for her but she was determined.  It took a bit but with perseverence she made it and was much happier because of it.  Recognize that the symptoms it causes are very real but will pass with some time.  I'm sorry that both of you are going through this roller coaster ride!!

      April 26 at 11:52 PM view post
      • brief

        brief I have not been on here in a long time due to problems in the home concerning depression from doctors. They had said so many horrible things to mom that she is really scared for her life. ).

        May 28 at 10:08 PM
    • zookeeper has replied to a post on the message board

      My mom is now a little more than 4 years out from her diagnosis. She's really doing very well.  She was even able to stop her seizure meds for about 1.5 years but had to restart them recently due to seizures.  She gets tired more easily and has trouble with recalling words at times but overall is active and mobile and very high functioning.  Her MRI and CT in August looked very good and we just keep li...

      November 29, 2013 view post
      • zookeeper has created a new message board discussion

        I know I haven't been on here in a long time. Life circumstances have just made me extremely busy. In the beginning of my mom's diagnosis more than THREE YEARS ago, this place was my lifeline! My mom had an MRI the end of January and everything looked good! Great in fact! There's wasn't even any scar tissue visible. Her energy level isn't what it once was and her thinking gets cloudy as the day goes on. The dr said ...

        February 25, 2013 view discussion
        • gbmsurvivor52

          gbmsurvivor52 I find I get tired at 1:00 everyday and have to lay down
          For a nap everyday

          December 02, 2013
      • zookeeper has replied to a post on the message board

        My mom is now 3 years out from her diagnoses and doing great!  Janice

        October 30, 2012 view post
        • zookeeper has replied to a post on the message board

          My mom was diagnosed with an AA 3 a little more than three years ago. (yay!!) Her initial symptom was also a seizure. She was also told she would need to be on the seizure med (keppra) for the rest of her life. Well, she's stubborn. lol.  She found an epilepsy neurologist who did and eeg and said everything looked fine. She could wean off the meds, but not drive for 6 months. That was over a year ago. She's not ...

          October 27, 2012 view post
          • zookeeper has replied to a post on the message board

            I'm not sure what kind of infection my mother had after her surgery, but she had to have the bone plate removed 3 months after resection. She chose not to have it replaced. I don't think it's caused any issues other than having to be careful that she doesn't bump her head there. So sorry to hear about your experiences, as if brain cancer isn't bad enough by itself!! Janice

            July 04, 2012 view post
            • zookeeper has replied to a post on the message board

              Suz, My mother was diagnosed with a grade 3 glioma in Oct 2009 at the age of 57. She is doing GREAT today! If you were to meet her, you'd never know she's dealt with brain cancer. In all the research I've done over the last 2.5 years, young patients with low grade gliomas fare the best, on average. It's still a great idea to be completely on top of things, but I so remember the initial terror and panic of my mom's d...

              June 25, 2012 view post
              • zookeeper has replied to a post on the message board

                Not just those dealing with C, but EVERYONE should have thier vit D levels checked! It could change your life! Janice

                May 11, 2012 view post
                • zookeeper has replied to a post on the message board

                  This has been a very beautiful, moving post! Thank you, all of you, for being so REAL! Janice

                  May 11, 2012 view post
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                  About zookeeper

                  Caregiver
                  Brain Cancer
                  Alternative Treatments, Cancer Nutrition, Cancer Treatments, Chemotherapy, Conventional Treatments, Diet, Emotional Support, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                  Homeschooling Mom to 7, caregiver of a wonderful woman, my mom, at age 57, diagnosed 11/09 Anaplastic Astrocytoma, haven't started treatment as of 1/10 because of a small part of incision that hasn't healed properly, still haven't started as of 3/10. FINALLY, started treatment 3/17/10. Going ok so far. Better than anticipated. Still hanging in there. Dealing with fatigue, but trying to not let it get in the way of life. 10/2010 Getting a break from treatment

                  . Stable MRI. Enjoying some quieter days.

                  MRI due 7/11. Starting to feel a little antsy! Praise the Lord - still stable!

                  7/13 Wow! Has it really been almost 4 years?? I can't believe it. Mom is doing very well and cancer rarely enters our minds at this point. We're living life and finding joy in all we do :)

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