Have tumor on tonsil

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RE: Have tumor on tonsil

by reissens on Thu Jun 29, 2017 08:58 AM

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Had surgey yesgerday...As i got more alert yesterday and i looked inside my mouth to see what he did... i told my wife i have a huge hole in back of my throat. She didnt want to upset me jyst yet.  Wanted to let me heal before she told me what doctor said.... a big mess is what dr. Said.  Huge tumor... could not get it all.. very deep...long surgery.... showed me pics.. terrible..very bad looking..he could not tell her 100% if its bad cancer....because needs lab diagnosis but.. if its not then its an infection he has never seen... he is a dr. Doing this for 30 years... i think i know whats coming... path report  comes back hopfully friday...he said probably Scc.  He dug into upper pallet...he said he had to stop because tumor too close to cartoid artery.....please pray

RE: Have tumor on tonsil

by reissens on Thu Jun 29, 2017 10:12 PM

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Just got biopsy results...squamous celll..  im crushed.. we tokd my children...wife is strong...very hard to take in..  will get PET  scan next and then onocolgist... 

RE: Have tumor on tonsil

by Bjkug on Sun Jul 02, 2017 02:39 PM

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Sorry to hear about your biopsy results. Don't  get discouraged,they will probably do radiation and/ chemotherapy. I hope that you have a feeding tube,you will need that for nourishment. I had the surgery 19 years ago,they took a big part of my tonsil area and soft palate out. I have a giant hole in my throat and the top of my mouth. After I healed,the doctors made me a new set of dentures with an Obturator to fill the hole. It worked and I can talk and eat soft food. It is a lot to go through but you have to ask the questions to get your information.Wishin g you great results! BJK

RE: Have tumor on tonsil

by Bjkug on Fri Aug 11, 2017 03:47 PM

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How are you doing? Let us know what you are going through. Best Wishes .

RE: Have tumor on tonsil

by reissens on Fri Aug 11, 2017 04:35 PM

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On Aug 11, 2017 3:47 PM Bjkug wrote:

How are you doing? Let us know what you are going through. Best Wishes .

So treatment starts 8/16/17. Next wed.   (Stage IVa SCC HPV+)  treatment was delayed because RO changed her plan.. my tumor has aggressivly grown.  My RO couldnt believe it. My ENT had to call her and say he needs treatment now!! All drs are on same page now and my next journey is here..  42 rads/7chemo.. trying to be ready for this

RE: Have tumor on tonsil

by maycon on Sat Aug 12, 2017 11:01 AM

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Hi, just a note to say keep the faith. Its a tough road but you can get through this and the sun will shine for you again,. I had tonsiillar cancer in January this year and had the surgery- removal of tumour tonsil, a bit of the base of my tongue and soft palate.I was terrified of eating for a month or so but in time everything settled down and I am back to normal. My taste buds were shot but this resolved very easily. Will stay thinking of you going through this,, it is an awful shock to the system. Listen to positive voices only and rest up,, m

RE: Have tumor on tonsil

by Bjkug on Sat Aug 12, 2017 02:02 PM

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Good to hear from you. Stay positive and rest as much as you can. Radiation can make you very tired. There is light at the end of the tunnel. I had tonsil cancer 19 years ago. Keep posting so we can follow your progress. Best Wishes,BJK

RE: Have tumor on tonsil

by Lilalove on Tue Oct 31, 2017 01:10 AM

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Hope you are doing well and that treatment is tolerable. Did you have a biopsy prior?
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