Anyone on LANREOTIDE 120 MG?

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Anyone on LANREOTIDE 120 MG?

by LanreotideNET on Fri Jun 30, 2017 08:58 PM

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Hello.
I have a poorly differentiated NET with no primary origin that was found and surgically removed from the small intestine 5 years ago.
Since then, I've been on chemo LANREOTIDE 120 MG every 4 weeks and surprisingly I've read almost all posts here but nobody mentions being on that same treatment.
I first had 29 rounds, then 10 months without it and lately I had 9 more rounds until my oncologist stopped it 6 months ago due to severe side effects.
We will re-consider treatment options in two weeks and will greatly appreciate any information to prepare for that discussion with my doctors.
Thank you and blessings to all.

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