Bone pain (Waldenstroom's macroglobulinemia)

5 Posts | Page(s): 1 

Bone pain (Waldenstroom's macroglobulinemia)

by Softie on Wed May 16, 2007 12:00 AM

Quote | Reply

Hi mark's my name,

I would like to hear from anyone with Waldestrom's macroglobulinemia, at the moment im pre treatment, but suffering severe pain in some of my bones, is this part of the disease.My Dr sent me to a consultant Rheumatologist,re my pain,today he agrees its bone pain but said you dont get bone pain with this cancer. the pain seems to be getitng worse day by day.

Thanking you in advance Mark Gough

Far North Cost N.S.W. Australia

RE: Bone pain (Waldenstroom's macroglobulinemia)

by Shopping_Lover on Tue May 29, 2007 12:00 AM

Quote | Reply
I was diagnosed with Waldenstroms in November 2006. I have bone pain. I had a bone marrow biopsy in April and they found cancer in my bone marrow. I started Chemo in the hospital 2 weeks ago. Last week I had chemo Monday - Friday. My oncologist was testing my blood every 3 weeks from November - March and my blood cells kept getting worse and I had pain in my feet, hands and knees the worst. Please ask your doctor about a bone marrow biopsy.

RE: Bone pain (Waldenstroom's macroglobulinemia)

by lacydia on Sat Jan 03, 2009 12:00 AM

Quote | Reply
Hrey, my brother was recently diagnosed with Waldenstroom's macroglobulinemia.  I can't find very much information on the net on this disease other than it can be genetic.  My brother had to have prostate surgery before they could begin his chemo for Waldenstrooms.  He is having pain in his lower abdomen but he is not sure if it is from the surgery or the cancer.  My grandmother died from bone cancer and now I'm wondering if maybe she had this disease too.  Any info you could give me would be very appreciate.  Thanks lacydia

RE: Bone pain (Waldenstroom's macroglobulinemia)

by jfrn1163 on Tue Feb 03, 2009 12:00 AM

Quote | Reply

 

On 5/16/2007 Softie wrote:

Hi mark's my name,

I would like to hear from anyone with Waldestrom's macroglobulinemia, at the moment im pre treatment, but suffering severe pain in some of my bones, is this part of the disease.My Dr sent me to a consultant Rheumatologist,re my pain,today he agrees its bone pain but said you dont get bone pain with this cancer. the pain seems to be getitng worse day by day.

Thanking you in advance Mark Gough

Far North Cost N.S.W. Australia


My dad has this and we dealt with this bone pain for months in and out of the hospital. They also kept saying bone pain does not come with this cancer. Yes it does!! The only thing that helped my dad with the pain was seroids. Hope this helps. Good Luck

Joan Ryan

Mass

 

RE: Bone pain (Waldenstroom's macroglobulinemia)

by r.francone on Tue Feb 20, 2018 04:18 PM

Quote | Reply

I have been dealing with Waldenstrooms since 1999.  I have done many different chemos, and a plasma pheresis.Since I was told of this diagnosis, through my Rh md who took an IMG blood test and my results were approx 4,000  I was told to visit a hemotologist who did a bone marrow test right there in his office   ouch!!! and confirmed non hodgins lymphoma/waldenstrooms, at that very first visit I complained of BONE pain, in addition to night sweats, and what they call syncope.. fatigue, weight loss, neuropathy  and  this wierd sensation  I felt as though I was burning up under my skin and as  mentioned these random bone pains all my symptoms except for two,  #1syncope which suddenly makes your eyelids heavy and  boom you pass out, fall asleep??? & #2 that original complaint BONE pain  mine feels like its inside the bone.... Go figure 20 years later and now they finally associate these two complaints as relative to Waldenstrooms.....Any info you can share re: IGM totals or new treatments, chemo versus inhibitors or ??? thanks  

5 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.