Pancreatic Cancer Metastatic To Liver

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Pancreatic Cancer Metastatic To Liver

by Margie-WashPa on Fri Aug 04, 2017 05:50 PM

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My brother was diagnosed with adenocarcinoma pancreatic cancer metastatic to the liver 2 days ago at UPMC Hillman in Pittsburgh. The prognosis is very gloomy and they are saying there is very little they can do. They have inserted a stint into his bile duct (although he was not showing signs of Jaundice yet) and a port to begin a chemotherapy regimen. I do not have any other details at this point. Just wondering if anyone has had any luck with alternative methods of treatment or can recommend a chemo regimen.

RE: Pancreatic Cancer Metastatic To Liver

by lizbugft16 on Mon Aug 07, 2017 12:12 AM

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Hello,

First off I am so sorry to hear about your brother, my father was diagnosed in March. His has now met to the liver as well. We did 3 weeks and an "alt clinic" in Mexico first, thinking that he would be stronger before chemo and would accept the treatments much better. But there was no effect. We are now going to try Chemo and have an appt tomorrow with oncology. We are going to try CBD oil as well.

RE: Pancreatic Cancer Metastatic To Liver

by bobss396 on Tue Aug 08, 2017 06:53 PM

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If I had the disease, I would be looking at alternate treatments, some can be done along with chemo. CBD oil is one thing I would try as well as getting the pH of the body corrected.

RE: Pancreatic Cancer Metastatic To Liver

by smyrnalover on Tue Aug 08, 2017 07:02 PM

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Margie, The prognosis is always "gloomy", but progress is being made all the time. My wife is still with us after 28 months since her Stage IV diagnosis, but is now having to switch treatments. She was on Gemzar. It's all a matter of how hard your brother wants to fight. I don't favor alternative treatments, because they have not been demonstrated to have statistically meaningful outcomes, but YMMV.

RE: Pancreatic Cancer Metastatic To Liver

by Margie-WashPa on Tue Aug 08, 2017 07:16 PM

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Thank you for your response! It does give us some hope to hear of stories of some measure of success at this point in time. My brother is struggling right now with the diagnosis and needs a lot of encouragement. I will be sure to pass along your story this evening when I see him. Good Luck to you and your wife for continued success in treating this dreadful disease...Please keep me posted if you are able. Margie

RE: Pancreatic Cancer Metastatic To Liver

by IVT-BKNY on Wed Aug 09, 2017 06:09 PM

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I'm so sorry that your brother, you, and the rest of your family have had to join the fraternity of people dealing with this terrible disease. The early days and weeks were the hardest for me and mine, but I hope things will improve for all of you as they have for us.

Anyway, I'd echo what smyrnalover said, but from the perspective of being a patient myself. I'm 50, and I'm now 18 months post-diagnosis with the same thing your brother has -- stage 4 PC with liver mets. My prognosis was certainly gloomy at the start, too, but I'm still here, and my quality of life is high enough to want to keep on surviving. (I personally don't like the war metaphor for cancer, so I don't say "keep fighting," but that's basically what I mean.) All of which is to say, there is a very real chance that your brother can get a reprieve like I have and like smyrnalover's wife has, even if a cure is beyond reasonable hope at present. Really.

As for alternative treatments, I'm again with smyrnalover. I don't believe the arguments I've heard for "alternative" approaches to actual cancer control. I'm the son of an engineer and a deep believer in the scientific method, and I just don't see credible evidence for alternative/integrative approaches as alternatives to chemotherapy. But as adjuncts? Sure. And as ways to handle the terrible symptoms of the cancer and of the mainstream treatments? Absolutely.

As for chemo, I had the standard-of-care FOLFIRNIOX, then the truncated FOLFIRI, and I'm now on the standard 2nd-line regimen, Gemzar+Abraxane. FOLFIRINOX was simply awful, but it saved my life, and if that's what the doctors are saying your brother should get, it means they think he's strong enough to handle it, and I'd listen to them. Gem+Abrax has turned out to be objectively just as effective for me as FOLFRINOX was, and it comes with vastly easier side effects, but I don't know for sure that it woud've worked just as well as a first-line treatment, so I'd say go with FOLFIRINOX first if that's what they're suggesting.

Happy to talk more with you or your brother if that would be helpful. I just lost my cancer buddy this past weekend -- he lived almost 5 years with same initial diagnosis -- but I can vouch for the value of finding one.

Good luck.

RE: Pancreatic Cancer Metastatic To Liver

by Margie-WashPa on Wed Aug 09, 2017 06:43 PM

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Dear IVT-BKNY...(I guess that's the protocol for addressing people by "name"!)

Thank you, Thank you, Thank you! What a lovely and generous email you have sent to me. You are about the 4th person to email me with relatively postive sentiments and, believe me, they all help quell this aweful feeling I have in the pit of my stomach.

My brother begins his treatments on Friday and my sister and I will accompany him. I don't know what they plan to give him as the first line treatment, but I will find out on Friday. He is in very good health otherwise, so I am assuming they will be aggressive at the start.

I am trying to think positively, as we lost our mother to this same dastardly disease 32 years ago! It may be that we will be entered into a study to determine if there is a genetic link that can be identified and used to help others in the future.

I know it will be a long and difficult road and I hope to remain strong enough to help my brother maintain a positive attitude. He is pretty depressed at the moment.

Thanks again for taking the time to share your experience with us.

Margie

RE: Pancreatic Cancer Metastatic To Liver

by pjhayden59 on Thu Aug 10, 2017 10:53 AM

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I have read all the post on this topic and I am confused as much now as I was before I read them. My husband has also been diagnosed with Stage IV Pancreatic Cancer and it has Metastatic to the Liver and at least 1 lymph node and stomach. 

He recieved his 1st Chemo treatment on Aug the 1st and ended up in the hospital due to high fever and throwing up even with meds for it. H recieved his 2nd treatment on the 8th and they told us it was the lowest dosages they could give him. He now running a fever for the past several hours of over 101.0 and his o2 went down to 80. He had not health issues before Jun 7th when the mass was found in the large end of the pancreases. The small end was blocked and they had to put in a stent to drain out infection.

I have no idea what to think about the Chemo treatment, other than it seems to make him worse. They used a combination of Gemzar and Abraxane.

RE: Pancreatic Cancer Metastatic To Liver

by Thomastonga on Fri Aug 11, 2017 02:42 AM

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My Mom also had Stage IV , but to the liver and lungs. She took the Gemzar/Abraxane and the only problem she would have would be the chills and some body aches on day 2 after treatment. We were always thankful for not having all of the other problems, she did lose her hair though. Her PO would run low, but it would be due to the places in her lungs. Have him takes deep breathes through his mouth. Good luck! Hugs, Love and Prayers!

RE: Pancreatic Cancer Metastatic To Liver

by Margie-WashPa on Fri Aug 11, 2017 11:14 AM

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Dear Thomastrong....Thank you for the information. We have our first chemo today. I don't know which regimen he is receiving, but I will know soon. This is so hard to watch. The unknown is heartwrenching...He is in so much pain, currently. I hope the chemo aleviates the pain and we are praying that he responds favorably to his treatment. Thanks for the prayers...We need all the prayers we can get...

Margie

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