MGUS referral advice.

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MGUS referral advice.

by DeForest on Sat Aug 05, 2017 12:47 AM

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I'd appreciate any advice as to which leading institutions --Sloan K, Dana Farber, Mayo or another --(I live north of Albany NY) are interested in evaluating and treating MGUS patients in order to monitor and PREVENT progression. Also, if you could give me the name of a specific physician. Many thanks.

RE: MGUS referral advice.

by ruedragon on Tue Oct 17, 2017 06:07 AM

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Just now saw your post! If I were you, I'd probably go to Dana Farber, probably not Sloan Kettering, just because I just don't see any articles coming out with that institution on them. I go to Mayo Rochester, see Morie Gertz for hematology, Michelle Mauermann for neuropathy, and beleive I'm getting top care. And I would very strongly urge you to join the MGUS Information and MGUS Support Facebook groups, much more active than this forum for us. If you have anti-MAG IgM, then there is a group just for us on Facebook.

RE: MGUS referral advice.

by Majolica on Tue Oct 17, 2017 12:45 PM

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Hello,

  I suggust you enter the Dana Faber Center for Prevention of Progression of Blood Cancers.  They mail a kit that you take to you regular hematology visit and get 3 extra vials of blood to overnight at there expense.  I have been doing it for 2 years.


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