Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

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Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Bfly988 on Thu May 24, 2007 12:00 AM

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I had laser surgery done on my vulvar/labia area on February 7th of this year for Severe dysplasia.  The burns that the laser made healed fine, no infection... of course there was the usual really bad pain while urinating and other after effects but other than that things went well.

 

However now it's been 3 1/2 months since surgery and I get irritation and or itching sometimes....

 I'm wondering if other people who have had lasering done have gotten this AFTER the laser surgery?

I'm told my surgeon is well sought after and very good, and that lasering is done millimeter by millimeter... so it's not likely that any dysplasia was missed, but when I get an itch or irriation I PANIC REALLY BADLY!!!  That not all of the dysplasia was gotten.

 (I associate itching and irriation with dysplasia)..

 Please if anyone has had these symptoms after laser surgery let me know.

It may be possible too that since the area was burned... since that's what lasering is, burning off the cells... that the new skin is still sensitive... anyone think that's why it gets irritated so easily? 

 Thanks!

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Brensmom on Sat Jun 02, 2007 12:00 AM

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Hi I have found out recently that I have CIS/VIN III as well. I am actually getting an excision of those areas. I have been told by my doctor to see her every 3 months and to call with any concerns I have. Please call your doctor and if you need to get a second opinion. This is YOUR LIFE.

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Lisat40 on Thu Jun 28, 2007 12:00 AM

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On 5/24/2007 Bfly988 wrote:

I had laser surgery done on my vulvar/labia area on February 7th of this year for Severe dysplasia.  The burns that the laser made healed fine, no infection... of course there was the usual really bad pain while urinating and other after effects but other than that things went well.

 

However now it's been 3 1/2 months since surgery and I get irritation and or itching sometimes....

 I'm wondering if other people who have had lasering done have gotten this AFTER the laser surgery?

I'm told my surgeon is well sought after and very good, and that lasering is done millimeter by millimeter... so it's not likely that any dysplasia was missed, but when I get an itch or irriation I PANIC REALLY BADLY!!!  That not all of the dysplasia was gotten.

 (I associate itching and irriation with dysplasia)..

 Please if anyone has had these symptoms after laser surgery let me know.

It may be possible too that since the area was burned... since that's what lasering is, burning off the cells... that the new skin is still sensitive... anyone think that's why it gets irritated so easily? 

 Thanks!


Hi there.  I had laser surgery for CIS/VIN III about a year and a half ago.  Within 6 months there were new/recurring areas.  I am getting ready to have surgical excision on the 17th of July.  Like you, I associate itching with dysplasia.  I found the laser surgery to be extremely painful as far as recovery and honestly have no idea what to expect from my upcoming surgery, but was not willing to undergo the laser again.  Just be as proactive as you can.  Go in every three months for follow up and a good close examination of any suspicious areas.  Good luck!  Lisa

 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by snook on Tue Jul 31, 2007 12:00 AM

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I was diagnosed with VIN III 5 years ago and had a wide excision with laser on smaller infected areas.  It is extremely uncomfortable,  but not as painful as I thought (at least that is how I remember it). 

I have been going to my GYN/ONC Physician every 6 months ever since but I was just again diagnosed with VIN III and am having another wide excision in August on the same area.  I didn't really think there was much more to remove from the same spot but I have no alternative. 

I also have many smaller itchy areas that also concern me but have been told not to worry and that those areas are only "lichen schlerosis (sp?)" 

Mostly my disappointment is that I have been going on a very regular basis (every 6 months) but he felt a biopsy was not necessary every time even though my constant complaint is about the severe itch.  I don't mean to second guess my doctor but I do wonder is he had taken regular biopsies if I could have avoided another wide excision.

Is anyone else uncomfortable trying to explain what type of surgery you are having???  I know it is nobody's business but there are many close people in my life that deserves an answer but I find it difficult to describe what it is I am having done because of what they think?  I have just told most people it is a gyne surgery and leave it at that but I can tell they want more inf

 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Lisat40 on Tue Jul 31, 2007 12:00 AM

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On 7/31/2007 snook wrote:

I was diagnosed with VIN III 5 years ago and had a wide excision with laser on smaller infected areas.  It is extremely uncomfortable,  but not as painful as I thought (at least that is how I remember it). 

I have been going to my GYN/ONC Physician every 6 months ever since but I was just again diagnosed with VIN III and am having another wide excision in August on the same area.  I didn't really think there was much more to remove from the same spot but I have no alternative. 

I also have many smaller itchy areas that also concern me but have been told not to worry and that those areas are only "lichen schlerosis (sp?)" 

Mostly my disappointment is that I have been going on a very regular basis (every 6 months) but he felt a biopsy was not necessary every time even though my constant complaint is about the severe itch.  I don't mean to second guess my doctor but I do wonder is he had taken regular biopsies if I could have avoided another wide excision.

Is anyone else uncomfortable trying to explain what type of surgery you are having???  I know it is nobody's business but there are many close people in my life that deserves an answer but I find it difficult to describe what it is I am having done because of what they think?  I have just told most people it is a gyne surgery and leave it at that but I can tell they want more inf

 

Hey there.  I know some women may not have this problem, but I can totally relate with you about what to tell people.  I dont mean just everyone, but those closest to you.  Like you, I will tell them gyn surgery, but they just assume it is a leep, laser, or hysterectomy or something like that.  You wanna say, ah no, this is my VULVA (and then some will actually say what is that) and they are taking away chunks of it.  Even when you do try to explain it to people, most dont understand, so I dont even try!  I even had a very well educated nurse ask me to explain what I had done, so I told her in detail.  That my labia minora on both sides of my vaginal opening was where the vin III was.  It was cut out (wide excision) and now I have stitches (quite a few) on both side of my vaginal opening.  Honestly, with this being such an unknown type of precancerous (CIS) condition, people just dont understand.  I guess sometimes I dont want to take the time to explain, but then again, if those of us who have it, dont explain it, then there is going to continue to be ignorance about the condition.    lisa

 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Snowmom60 on Tue Jul 31, 2007 12:00 AM

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Lisa,  Those are very wise words.  I'm a registered nurse but nursing is very specialized and so I never heard of cancer there before either.  If I had itching there I would assume it was a yeast infection and go and by some Monostat.  If you at least explain it to women perhaps you can help someone to go in and get it checked out before it gets worse.  Knowledge is power.  I have rectal cancer, how would like to explain that one!  Believe me, you get some good jokes from that one.

Take care ladies and ask questions of your doctors and if you don't get the answers you need/want get a second opinion!

Terry

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by snook on Tue Aug 14, 2007 12:00 AM

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I just had another wide excision of the vulva yesterday...my second in 5 years.  when I went in, I wondered how much more was there left to cut away....I am only 51 years old and recently seperated and am wondering not only will I ever meet anyone but if I do, how will I explain this deformation to a new male partner?  Is this how mastectomy patients feel???  You will need to forgive me, because I have never had a mastectomy, I am very ignorant and need to be more informed but am thinking it could be similar...I feel mutilated!!!!  Like mastectomy  patients, I can still have intercourse, intimacy, sex, etc but it is my fear that my partner will somehow be turned off by my malformed/excised/removed female genitalia?  That is only a small part of what I am feeling....

Most importantily; reality is...Has is spread? Will it come back?  Did they get it all?  If I was being checked every 6 months, why didn't they find a problem before it became VIN III when I had already had a wide excision of the vulva for VIN III and having my vulva checked every 6 months????  Why wasn't it discovered earlier (VIN I, VIN II.....) before I had to have a second wide excision of the vulva??? 

It was also interesting that my post op nurse was very interested in my case, asking lots of questions, she had heard very little about this problem and had never taken care of a patient with this problem in her career but was a very experienced nurse...????  Is this such a rare disease that very few medical personnel know about it?  What causes it???  They seem to be looking at the PVC Virus??(the one they are talking about on TV...the vaccine they are claiming young women should have to prevent cervical/vulvar cancer.  They (TV/Medical practitioners) seem to be suggesting that active sexual women are at greater risk of CIN/VIN if they do not receive this vaccine. 

I have never heard of this vaccine until this past year...it is too late for me to get this vaccine now because it is a preventative vaccine and does nothing for those who have already been diagonosed with CIN/VIN.

I would consider myself to be average when it comes to sexual partners... nothing out of the normal...

 

 

 

 

 

 

 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by JJOH104011 on Fri Aug 24, 2007 12:00 AM

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Hi there.  I had laser surgery for CIS/VIN III about a year and a half ago.  Within 6 months there were new/recurring areas.  I am getting ready to have surgical excision on the 17th of July.  Like you, I associate itching with dysplasia.  I found the laser surgery to be extremely painful as far as recovery and honestly have no idea what to expect from my upcoming surgery, but was not willing to undergo the laser again.  Just be as proactive as you can.  Go in every three months for follow up and a good close examination of any suspicious areas.  Good luck!  Lisa

 

I've had two partial vulvectomies and now the doctor wwants to try laser surgery and I am scared. How painful is the laser surgery? I had Carcinoma insitu and stage 1 vulva cancer. Karen 

 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by snook on Fri Aug 24, 2007 12:00 AM

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What is the difference between a wide excision of the vulva and a vulvectomy???  I have had both wide excisions (2) and laser.  What I don't understand is that I go every 6 months to my gyn/onc and why wasn't VIN III diagnosed long before???  If he was examining/biopsy my lesions why was it not diagnosed earlier as VIN I or II??? Why was it only now found at VIN III???  How do I know if it has progressed into the lymph nodes etc.  I know they are supposed to look at the margins of clear skin but I would have thought they may have done that at the time of surgery and had my excision tested to make sure they had clear margins???  I go back for follow up in another 2 weeks and hopefully will get some results from what they removed. 

 When does radiation/chemo occur??  People on this board have had both and how does the doctor determine if/when/why you need either?

 Any help would be greatly appreciated!

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by luckyme on Sun Aug 26, 2007 12:00 AM

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Hello,

I am new to this website and have been trying to get a proper diagnosis for my condition for 1 1/2 years.  I am 63 years old, very active and have had a very normal life.  About June of last year I began having redness and itching and lots of pain.  I bought Monostat and every other product on the market, never having had used them before, but nothing worked.  I went to my primary doctor in August and was given antibiotics and had numberous blood tests.  They all turned out negative and I came back in a month and was worse.  My Fall trip to Arizoona was in October so I went to my doctor at Mayos and he treated me for yeast, seven days of pills, it seemed better for about a week, then back.  Home I went and went to my gynocologist and she started giving me creams, yeast pills, anything.  Noone biopsied me and every cream I was given made it redder and hurt more.  In January I went back to AZ for the winter months, saw my Mayo doctor again and he sent me to a gynocologist at Mayos and she did not do a biopsy, three months with her and no biopsy.  Came back home and went to a dermatologist who finally did a biopsy and it came back VIN II. 

 I've had five surgical procedures this summer and my last one consisted of dime size pieces from right, left and pernium area.  All have progressed to VIN III!  After the shock, I got my head on straight and am going to try to get into M.D. Anderson for their opinion.  From all I read here, noone seems to get better until they have a vulvectomy.  As frightening as that is, I am not as young as some of you and I need for this to be done!

 I will enjoy being connected with women going through this, as I know noone nor have I ever heard of this weird condition.  We must keep upbeat and ready to go forward, all of us.  If anyone has been treated at MD Anderson for this condition, I would love to hear from you.

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