Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

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RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by lauralou on Sat Sep 08, 2007 12:00 AM

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I am curious did any of you see a gynecological oncologist? I was just diagnosed with VIN II.  It was recommended that I see a specialist.  I go to the oncologist on wed.

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by luckyme on Sat Sep 08, 2007 12:00 AM

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I am on my way to M.D. Anderson in Houston next week.  Let me know how you are doing and I'll do the same.

 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by luckyme on Thu Sep 13, 2007 12:00 AM

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Hey Lauralin,

  I did not hear back from you, how did your appointment go.  I am 63 and am the one on there way to M.D. Cancer Center in Houston.  I would love to have someone who is going thru this at the same time.  If you respond, I'll let you know what the experts at M.D. tell me.  I am Level III, but was II in May when I began my four months of surgeryies.  Just worse with each process. 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Jenniflower on Sun Sep 14, 2008 12:00 AM

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On 9/8/2007 lauralou wrote:

I am curious did any of you see a gynecological oncologist? I was just diagnosed with VIN II.  It was recommended that I see a specialist.  I go to the oncologist on wed.

Hi - I am going through a similar situation as all of these women I am reading about.  10 years ago I had 2 laser surgeries for precancerous cells and hpv on my labia, vulva and perinium areas. It took me 3 years to get diagnosed properly since I was treated from everything to yeast  infections and pin worms - my paps were always normal- VERY frustrating.  I was finally biopsied and that was when they decided I needed the surgery. The surgery and recovery were not so bad as far as pain - but emotionally, I was a wreck.  Inded up on anti-depressants.  I had to have interferon shots in my vulva/labia area every friday for 6 weeks and only went 4 out of the 6 times because the pain was so bad.  I have since had two children and now have been diagnosed with lichen schlerosis - which is very itchy and causes white patches and scarring - I am very uncomfortable - my gyno said I had skin changes and with my history referred me to an oncologist (my worst nightmare) and when I went and saw him - he sent me home with a steriod cream!  You can visually see the changes and he didn't feel I needed to be biopsied.  I don't understand it - why wouldn't he want to make sure that there was nothing else going on after knowing my histry - I am scared - and after what happened the last time - I am not going to wait three years to be told I have cancer now!  Be thorough and ask lots of questions, write them down so you don't forget while you are there - do not be afraid to ask questions - as all of the women say on this sight - this is your life- I have a 2 and 3 year old and a husband wh is being very supportive - I want to be around for a long time - we have to demand answers!!  Good luck to you and I Hope to hear from you and how your appointment went - I realize I am late in writing this to you - but I am saying a prayer for you and all the women on this sight.  God bless you :)

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by GLE123 on Sun Jan 31, 2010 10:10 AM

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I just had VIN III laser surgery last week. I haven't before and/or after the surgery experienced itching; however, I have severe burning when I urinate (for the past seven years).  I had a biopsy done a couple of months ago, and that is when I was diagnosed with VIN III. From what I read, VIN III is a precancerous condition and MAY result in cancer.  I was also told by a few doctor's that it will most likely come back.  That is why regular check ups are vital.  This is coming from a woman who hadn't been to an OBGYN in 16 years. Except for burning while urinating, I had no other symptoms - well except for pelvic pain. None of these issues has been addressed by many doctors and no one knows what is going on with me.  Hope this helps.

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by GLE123 on Sun Jan 31, 2010 10:21 AM

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Hi,

Please take my advise.  I was diagosed with VIN III and referred to an OBGYN/Oncologist.  I went, he practically through me out of his office, and said I did not have cancer.  Apparently VIN is precancerous and an oncologist will only treat you if it turns into cancer.  Since that time I had surgery to remove the VIN III lesions last week.  I have to return for a follow-up to see if the doctor removed all the lesions. 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Bianca12 on Wed Sep 21, 2011 06:57 AM

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Hi I just had laser and excision done last week, pain not so bad only used pain pills on day after. However I am still not comfortable wearing underwear yet and just glad we are at end of summer so can still wear dresses :-) I was originally diagnosed after I had a mole biopsy in that area that came back positive for vinIII definitely wasn't expecting that seeing as I have only recently turned 40!! I am lucky to be a person that does not embarrass easily and most of my friends and acquaintances know I am pretty upfront about stuff so when they ask about my surgery I tell them that I had bits of my vagina burnt off, most women are intrigued as it's not a well known cancer and most men run as soon as they hear the word vagina lol I have been given two weeks off work so hoping I can get in some underwear soon as I'm at my 7 day mark. But again if I had to do it again I would pain was tolerable for me, but everyone has there own tolerance levels. My advice to anyone would be make sure you have plenty of supplies in the house before surgery, and don't expect to be out and about in ur first week. Although not painful I do tend to walk funny by avoiding any rubbing so looks kinda weird , best to just relax and chill on ur first week and see how things go! Good luck :-)

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by Ivylea on Mon May 20, 2013 03:38 PM

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On Sep 13, 2007 12:00 AM luckyme wrote:

Hey Lauralin,

  I did not hear back from you, how did your appointment go.  I am 63 and am the one on there way to M.D. Cancer Center in Houston.  I would love to have someone who is going thru this at the same time.  If you respond, I'll let you know what the experts at M.D. tell me.  I am Level III, but was II in May when I began my four months of surgeryies.  Just worse with each process. 

Hello Luckyme,  I am also 63 years old and recently dx with VIN stage 2-3.  I would appreciate if you shared what your experience has been.  

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by nonameplease on Tue Jan 21, 2014 02:17 AM

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I am 53 and am scheduled for laser surgery next week.  I'm frightened reading these posts.  I chose laser surgery because frankly, I enjoy sex, am single, and wasn't getting a warm, fuzzy feeling from the ob/oncologist about the disfigurement surgery would bring.  The ob/oncologist gave me a choice of treatment and at my request referred me to a specialist to do the laser surgery.  Before doing so, she indicated unseen/invisible areas of the vulvar that are compromised.  Does anyone have experience with this?  Is cream sufficient to ward off these undetected areas?  Is sex the same after laser surgery?  How about excision?  I hope I don't come across as shallow, but really....my decision to have laser surgery v. excision was based on my desire to continue to have good, uninhindered sex for as long as I can.  

 

RE: Itching/Irritation AFTER laser surgery of VIN III (severe)? Scared HELP!!!

by scaredtoo on Sat Apr 05, 2014 03:24 PM

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Thank you to everyone who have shared on this webpage, esp Jenniflower whom I can identify the 3 frustrating years, wrong diagnoses and normal pap smears. I'm so glad to find this archive of many years which are still helpful to people like me and hope some of you, if not all, have remained members and connected. It is good to keep each other and others informed and at the same time, find encouragement on this common platform as a community. Hope everyone is getting along somehow or rather despite our setbacks now and then. From reading the posts, it appears that we are having to live with this VIN condition throughout our lives and might us well share what we can. Hope some can find time to update how and where they are now in their lives.Jennif lower, I sincerely hope you are still as positive and good now as your post here 5.5 years ago :).

I'm 50 yrs old and mine was a strip excision cum biopsy at the ends of the vulva in mid february 2014; the test result has come back with VINIII. I only realised the severity of this after reading up from internet as the gyne simply checked my wound is healing and said to have a colposcopy follow up 3-4 months later. However, 1 month after the excision/surgery, I am experiencing itch here and there with some burning, several visible patches of discoloration and an itchy bump. Not sure whether I should see the gyne as he appeared not keen to see me til at least 3 month later! So on hindsight, I feel its worth to request for a colposcopy (eventhough the gyne may not suggest and you have to pay for it) to check the whole area out before simply going for a surgery to remove an obvious lesion and having to go through another surgery if more areas become apparent through a colposcopy. Hope this helps anyone in the same predicament. I just pray that God will give everyone the strength to get through eventhough sometimes it feels life is not fair... 

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