Radical Prostatectomy Operation

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Radical Prostatectomy Operation

by Debabrata on Fri Jun 08, 2007 12:00 AM

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Like  to  exchange  notes/views  with  people  who  has  had  Radical

Prostatectomy . I'm  72  years  old  and  underwent  surgery  in

Devcember, 2005.

RE: Radical Prostatectomy Operation

by Westerville on Fri Jun 08, 2007 12:00 AM

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hi. i just had the operation in march still having to wear the diaper, but other than that energy level is returning. start radiation treatment in a few weeks ,had my treatment planning this week. they made a body bag for me or of me, (ohh body bag brings back memories of viet nam.) oh, i'm 59 with a gleason of 9. been on the computer everyday trying to find more information. taking supplements and changed my diet in hope of some changes. you say your operation was in 2005 how are you doing now? thanks for chatting , john 

RE: Radical Prostatectomy Operation

by Orionskye on Fri Jun 08, 2007 12:00 AM

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I had RP in May 2003. Virtually no side effects. Continence and potency returned to normal. PSA dropped to O and then had very very small amount (less than .1) at which time I decided to do radiation. Anyone reading this needs to trust me on what I am going to say. ONLY undergo radiation with the Tomotherapy system. This is a targeted system that is far superior to the existing technology. There are well over 100 systems deployed in the US and radiation oncologists who have used them say that within 5 years it will be by far the most prevalent system in hospitals. Any doctor who tells you that this is either investigational or that current technology is good enough doesn't know what they are talking about. I underwent Tomo and have had virtually no side effects at all. So now I am 4 years out, PSA still <0.01, and I actually don't think much about what I went through. I'm happy to give you the benefit of my experiences if they are helpful. Best wishes to you as you go through this journey.

RE: Radical Prostatectomy Operation

by Debabrata on Fri Jun 08, 2007 12:00 AM

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Thanx. You  forgot  to  mention  how  old  you  are  and  what  was your PSA  and  Gleason  readings  prior  to  your  operation.

Debu.

RE: Radical Prostatectomy Operation

by Debabrata on Fri Jun 08, 2007 12:00 AM

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Hi  John,

i,m  in  good  health, as  my  doctor  says.  I've  no  complains, restrictions  except  that  I've  been  prescribed  some  medicinal supplement. My  PSA  is  0.17  at  the  moment  and  rising  very slowly.(.03 in  4  months). I  met  the  doctor  only  yesterday  and  he  made  no  changes/ addition  in  my  treatment  and  asked  me  to  visit  him   4  months  later  with  SPSA, CBC,ESR & Liver Function Test  reports. From  my  side I,ve  turned  almost  vegetarian,  incresed  my  exercise, reduced  alcohol  intake  a  lot  &  taking  a  glass  of  fresh  Pomegranate  juice  daily. And  keeping  my  fingers  crossed.

Like  to  hear  from  you  again  about  progress  in  Radiation.

Debu.

RE: Radical Prostatectomy Operation

by Witchdoctor on Sat Jun 09, 2007 12:00 AM

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Orionskye,

   Tomotherapy is just IMRT and the results are NO better than other IMRT capable machines.  This is the third or fouth time you say Tomo is the only way to go are you part of it or planning to be a stockholder when they go public?

RE: Radical Prostatectomy Operation

by Orionskye on Sat Jun 09, 2007 12:00 AM

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Actually, Witchdoctor, Tomotherapy is already publicly traded and I am not a shareholder. So that has nothing to do with my comments. As I am sure you are aware Tomo is IGRT (image guided radiation therapy) that involves giving the patient a scan immediately prior to each treatment session. By doing so, and by using 360 degrees of beams, Tomo's technology can target the radiation field in a much more precise manner than traditional technology. I am a true believer in Tomotherapy and my radonc used that technology over existing technology (which he also had available to him) because he was convinced that Tomo was a superior technology. I am not a doctor but I've met with numerous radiation oncologists who use Tomotherapy and spoken with many patients who have undergone Tomotherapy treatment. If you'd like to discuss it with doctors for whom I am sure you must have respect then I'd suggest that you speak with Dr. Patrick Kuplelian (MD Anderson). I believe that you've commented here that you have respect for him. I believe he is a strong proponent of Tomotherapy vs traditional technology. Also, you might contact Dr. Carlos Perez whose text book is probably on every bookshelf of every radonc. He is on the board of Tomotherapy but he is viewed as a true expert in the field which I am sure is the reason that he chose to sit on Tomo's board. I don't want to engage in argument on this board with you about the various radiation technologies and I respect your opinion despite my belief that patients might be better served if you would really identify yourself so that we could all understand from what background you come (just a suggestion and perhaps you've already done this). I read on here over and over about patients who had serious side effects from radiation treatment. I can only share my experiences and my beliefs and I truly believe that Tomo's system results in minimizing side effects. Cheers and keep giving folks good advice.

 Orion

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