Chromogranin A

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Chromogranin A

by AMRROL on Mon Sep 25, 2017 11:09 AM

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I just got my results back form my test. 616 was the level.  Is this considered a high level.  I have several of the syndrome symptoms, including facial flushing and uncontrolable sweating.  Also suffering from constant oxalate kidney stones.  New to the forum and feeling terrified.

RE: Chromogranin A

by JCasey on Sat Jul 28, 2018 03:04 PM

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I'm new here as well, also terrified, my blood work was 1189 they did a 24 hour urine test he called yesterday and said that not all of the tests from the urine test were in but he had the 1st 2 and they were positive and I need some specialised scan that my normal imaging center can't do, I have to go to UK Hospital in order to determine where "they" are located! I feel terror collecting in my throat but am determined not to involve my grown daughters until I know what this is, and if it is as bad as I fear it is! I will pray for you in my prayers! 

What have your symptoms been Amrrol?

RE: Chromogranin A

by ankiwo on Fri Oct 05, 2018 07:26 AM

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Hi I am new and have not been diagnosed with carcinoid yet but got blood test results showing 502 CgA and high histamine level. My GP has a whole bunch of follow-up tests for me to do. Sounds like it is going to be quite a ride...

RE: Chromogranin A

by Peg541 on Tue Nov 06, 2018 03:54 PM

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I'm in the same position. I have symptoms and my CGA is elevated to 1300. Came down to 489 and all of the other tests are negative. I'm waiting for the endocrinologist to order a scan but he's in vacation. Imagine that? I'd like to know how your testing goes. I met someone who has Carcinoid and all of his labs are normal.
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