Consultation and biopsy finally scheduled in 2 weeks

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Consultation and biopsy finally scheduled in 2 weeks

by Catlover3 on Tue Sep 26, 2017 11:25 PM

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Hello, so after seeing an ENT who barely looked at the multiple bumps on the back side of my tongue and said they were nothing, I have a consultation with a UT health clinic to do a consultation and biopsy if necessary which I'm sure it will be. In addition to white bumps it feels like something is under the tongue as well. I am glad I scheduled where I did because it is part of a teaching hospital with students supervised by teaching doctors. However I am extreemly nervous and I know I will be coming back and reaching out for support. I am only 26. Can any survivors/ warriors share their experiences with me? Thank you so much

RE: Consultation and biopsy finally scheduled in 2 weeks

by atcbugsy on Wed Sep 27, 2017 12:16 AM

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Hiya Catlover,

It's not Cancer until they say it's Cancer.  That was our philosophy.  I had no symptoms and no discomfort at all.  I presented with a swollen node that the ENT did a fine needle aspiration of, which came back negative.  A couple of months later the swelling was back and we decided to remove it.  Pathology of what they thought was a cyst contained Cancer cells.  After a tonsillectomy and several biopsies of my oral cavity, it was determined I had SCC HPV 16 Cancer at the left base of my tongue.  I was 54 years old and in excellent health.

Almost three years later, aside from some saliva issues, I'm doing great.

Try not to dwell on the unknown.  Easy to say.  Hard to do.  Post as often as you like with whatever questions you have.  The folks on these Boards are great and helped me more than they know or would believe.

Best of luck.

Bugsy

RE: Consultation and biopsy finally scheduled in 2 weeks

by JohnnyO on Thu Sep 28, 2017 03:01 PM

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While I don't doubt your fear, I think you will be better served by a mental health professional than an ENT.  THree weeks ago you were diagnosed with ulceratvie colitis which you thought was cancer.  With repsect to the bumps on your tongue,  the docs told you that you have strep throat and you refuse to believe them, again, thinking that you have cancer.  Your ulcerative colitis is indicative of your irrational thinking, even second guessing the docs and lab tests and the fact that the bumps on your tongue are a classic presentation for strep throat (or a fungus of some sort).

You are not being biopsied; the docs are going to see whether you have a different infection besides the strep.

You need to figure out why your mind automatically goes to thinking that you have cancer at an age where cancer of any sort is very rare.  Did you recently lose someone to cancer?

RE: Consultation and biopsy finally scheduled in 2 weeks

by Catlover3 on Thu Sep 28, 2017 03:34 PM

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I was grateful for my UC diagnosis. As far as the bumps on my tongue, they have not gone away. My strep has gone away. I lost my grandmother to cancer but she was very old. I was traumatized for a week before my colonoscopy thinking I have cancer because if you research symptoms of UC and colon cancer they are identical. Also, when I look at the side of my tongue at the bumps there also appears to be a lump underneath the tongue that is not on the other side of my tongue- it's all on the right. I just want peace of mind and I am worried but thanks. I went a whole week thinking I had colon cancer and my GI said they were seeing more of it in people in mid 20s so he wanted to rule it out. Thanks for your feedback

RE: Consultation and biopsy finally scheduled in 2 weeks

by Catlover3 on Thu Sep 28, 2017 03:39 PM

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And also, if a doctor tells me I have strep throat I do believe them. The strep test was positive. Not sure where that came from

RE: Consultation and biopsy finally scheduled in 2 weeks

by Catlover3 on Thu Sep 28, 2017 03:47 PM

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On Sep 27, 2017 12:16 AM atcbugsy wrote:

Hiya Catlover,

It's not Cancer until they say it's Cancer.  That was our philosophy.  I had no symptoms and no discomfort at all.  I presented with a swollen node that the ENT did a fine needle aspiration of, which came back negative.  A couple of months later the swelling was back and we decided to remove it.  Pathology of what they thought was a cyst contained Cancer cells.  After a tonsillectomy and several biopsies of my oral cavity, it was determined I had SCC HPV 16 Cancer at the left base of my tongue.  I was 54 years old and in excellent health.

Almost three years later, aside from some saliva issues, I'm doing great.

Try not to dwell on the unknown.  Easy to say.  Hard to do.  Post as often as you like with whatever questions you have.  The folks on these Boards are great and helped me more than they know or would believe.

Best of luck.

Bugsy

Thank you so much.

RE: Consultation and biopsy finally scheduled in 2 weeks

by Catlover3 on Thu Sep 28, 2017 09:08 PM

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On Sep 28, 2017 3:01 PM JohnnyO wrote:

While I don't doubt your fear, I think you will be better served by a mental health professional than an ENT.  THree weeks ago you were diagnosed with ulceratvie colitis which you thought was cancer.  With repsect to the bumps on your tongue,  the docs told you that you have strep throat and you refuse to believe them, again, thinking that you have cancer.  Your ulcerative colitis is indicative of your irrational thinking, even second guessing the docs and lab tests and the fact that the bumps on your tongue are a classic presentation for strep throat (or a fungus of some sort).

You are not being biopsied; the docs are going to see whether you have a different infection besides the strep.

You need to figure out why your mind automatically goes to thinking that you have cancer at an age where cancer of any sort is very rare.  Did you recently lose someone to cancer?

I thought I had cancer UNTIL they scoped me and was diagnosed with UC which was a relief. The strep throat was discovered before I even noticed the bumps on my tongue. You seem to misunderstand my posts and you are getting the chronological order incorrect. The bumps on my tongue are the only thing I wish to get a second opinion on so I have no idea why you are saying I am not believing my doctors and that I am disregarding test results that doesn't make any sense and it is not true. I no longer think I have colon cancer. I had a colonoscopy and biopsies that showed UC. I didn't realize there was anything wrong with getting a second opinion.

RE: Consultation and biopsy finally scheduled in 2 weeks

by Sdurnell on Thu Sep 28, 2017 10:10 PM

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Catlover,

I completely agree with Bugsy, as I so often do.  There is no indication that this is cancer.  The fact that you have had an infection could easily explain the bumps.  When my son was young he got strep infections on his tongue, with or without tonsil involvement, fairly often.

So don't jump the gun.  And in the meantime try to relax, perhaps with some purr therapy--it does wonders!

Susan

RE: Consultation and biopsy finally scheduled in 2 weeks

by Catlover3 on Thu Sep 28, 2017 10:57 PM

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On Sep 28, 2017 10:10 PM Sdurnell wrote:

Catlover,

I completely agree with Bugsy, as I so often do.  There is no indication that this is cancer.  The fact that you have had an infection could easily explain the bumps.  When my son was young he got strep infections on his tongue, with or without tonsil involvement, fairly often.

So don't jump the gun.  And in the meantime try to relax, perhaps with some purr therapy--it does wonders!

Susan

Thank you. It's just while the strep went away after antibiotics the multiple bumps that look like canker sores are still there. I do have really bad anxiety and I am doing my best to cope. I just want to get a biopsy/ get it looked at again to be sure. There is also what appears to be a lump under the tongue. Really trying to relax. It's just hard.

RE: Consultation and biopsy finally scheduled in 2 weeks

by Catlover3 on Fri Oct 13, 2017 11:34 PM

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Ok folks. Just thought I’d drop by. I still have my appointment scheduled with the oral medicinine department to get the ulcers/ lump under my tongue looked at. If they find it suspicious, they will do a small biopsy with a needle. This should be able to determine whether or not there is malignancy. If there is, obviously they will refer me to their oral surgery department (UTSA health science center) for a scalpel biopsy and so on. I hope they test it and all will be well and I’ll get some other explanation. I will post back with any results or anything they say.
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