Afraid

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Afraid

by Lilalove on Wed Oct 25, 2017 03:46 AM

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I had surgery for melanoma stage 2 over a year ago. Long story short...follow up pet scan showed activity on left tonsil and a lymph node....saw Ent. Surgery to follow. Suspicious mass anticipated to be tonsil cancer. Am overwhelmed

RE: Afraid

by JohnnyO on Wed Oct 25, 2017 02:47 PM

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Surgery without a biopsy?  Talk to someone else.  Sounds like the cart before the horse to me.

RE: Afraid

by Sdurnell on Sun Oct 29, 2017 08:45 AM

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Surgery without a biopsy confirmation of cancer is not unheard of.  I had surgery without a biopsy.  Actually my biopsy was inconclusive, so my ENT did a modified radical neck dissection, removing 20+ nodes, and as a result of the pathology I got my diagnosis.

Susan

RE: Afraid

by Lilalove on Fri Nov 03, 2017 03:12 AM

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Thank you. I will have a surgical biopsy in two weeks. Doctors, from scope results plus pet scan results, feel certain it is either squamous cell or lymphoma. I am feeling very anxious and afraid.

RE: Afraid

by Sdurnell on Fri Nov 03, 2017 06:49 AM

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My ENT told me the same two types--SCC or lymphoma--and said if I were lucky it would be lymphoma.  Not sure why he said that, but the pathology came back SCC.

Both of these cancers are treatable and survivable in many cases.  Try to look at your upcoming biopsy as an opportunity.  Either it will be negative, which it sounds like is unlikely, or it will reveal the type of tumor, in which case you can then make a plan for treatment in a timely way.  My surgery was a modified radical neck dissection, after which I didn't even need a pain pill.  Hope yours goes well too.

Susan

RE: Afraid

by Lilalove on Fri Nov 03, 2017 03:32 PM

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Thank you Susan. Are you having further treatment? I think one biopsy is completed, I will be more "sane". I was with the melanoma. I just feel very anxious right now. Brenda

RE: Afraid

by Sdurnell on Mon Nov 06, 2017 06:10 AM

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Brenda,

After my neck dissection, in Nov., my doctors let me have the month of December off to visit my elderly parents in AZ.  It was the last time I was able to see them in good health (and they me).  Then in late Dec. I had my teeth all pulled and two weeks later I began radiation.  Then never found my primary cancer.  I had radiation only, 25 days, no chemo. I was diagnosed 7 years ago this month and declared cured two years ago.  I have had my problems, some of which I'll always have, as the treatment is brutal and damaging.  But I am happy to say my life is good and it was all worth it.

I recommend sanity if at all possible.  I was never overly worried myself, not sure why, especially since I have a history of depressions.  To me it seems a stroke of good luck, if you are able to see it that way, that you found out by PET scan before you had observable symptoms.

Wishing you well with all you are going through.

Susan

RE: Afraid

by Lilalove on Mon Nov 06, 2017 03:28 PM

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Susan. Thank you so much for the info! I am grateful that the pet scan picked this up! I am trying to remain optimistic. However, I am nervous, anxious and afraid. I will know more after the surgical biopsy next week. I am curious as to why you had to have all your teeth pulled? I have an elder,y mother in another state. Depending on treatment plans, I hope to go visit her before it all begins. Your story gives me encouragement thank you. Brenda

RE: Afraid

by reissens on Mon Nov 06, 2017 08:19 PM

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On Oct 25, 2017 3:46 AM Lilalove wrote:

I had surgery for melanoma stage 2 over a year ago. Long story short...follow up pet scan showed activity on left tonsil and a lymph node....saw Ent. Surgery to follow. Suspicious mass anticipated to be tonsil cancer. Am overwhelmed

I also had tonsilectomy when ENT  told me it was cancer, biopsy the tonsil, ENT knew it was cancer though,  next day confirmed,  SCC .  PET scan showed another tumor with lymphnodes.  onocologist said Stage 4a T2N2MO,  good news is ENT was right.  I'm 1 month from last treatment.  33 rads/7 chemo,  you are in the right place.  It is easy to be overwhelmed. I was, I guess I still am.  But  take one step at a time.  

RE: Afraid

by Sdurnell on Mon Nov 06, 2017 10:59 PM

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Brenda,

I decided to have my teeth pulled because I had gum disease and there was no way to tell how the radiation would affect them, other than it would destroy some blood vessels.  My oral surgeons recommended it, as did my ENT, who does a lot of neck surgery and has a lot of H&N patients and has seen the ravages of radiation.  It was my choice, but after hearing and reading of the potential for infection if I needed any extraction or implant, I chose the easier route.  Both of my parents had gum disease;  my mom had her teeth out in her 30's.  And although my dad didn't have a cavity in his head, he eventually lost all his teeth too.  So I grieved for my teeth for 24 hours and then decided to have them out.  The night before I went out with friends and had my first, and last, T-bone steak--I loved gnawing on bones.  and I never looked back.

I didn't want my parents to see me when I was going through treatment.  I did visit them about 6 months after finishing, but was looking better by then, just very thin.  I  hope you can get your visit in before you begin.  My doctors were very understanding and accommodating about that.

Best of luck to you!

Ssuan

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