We made it to the one-year mark!!!

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We made it to the one-year mark!!!

by AnnJohn on Tue Oct 31, 2017 03:35 PM

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John had his one year (actually 11 months) PET/CT scan last week. The doctor was kind enough to call at 7:30 the following night to let us know the results came back just as we wanted!!! The doctor knows it would have been another sleepless night waiting for results. He had just gave a brief description of the results as we have an appointment at the University of Miami in two weeks to discuss all aspects of the past year. I just feel more comfortablegoing to Miami in case any situation comes up again.  The local ENT sent John there because of his speech issue saying the Miami Team and himself have never heard of tongue paralysis during/after treatment.  It is not very noticeable just certain words.  Speech therapy really hasn’t helped.  Its just the right side of his tongue. He can move it but it interferes with swallowing a little on that side. I personally think it has gotten better but it could be because I am with him so often.  I find it hard to believe that no one has speech issues, slurring, lisp, etc. after surgery and/or radiation but…..

Anyway, John is doing fantastic. He says he feels better than he has ever felt in his life. He can eat anything (sometimes needs a little more water) and saliva is a small issue. He is back to eating faster than i do. He used to tease me about how slow I ate until his treatment when it would tire him out to eat a meal. He says some food just hangs around in his mouth if he doesn’t swish water to get it out. He says food all taste the same as before except for chocolate is a little weird. He weighs 124 pounds which is only 6 pounds less than when this started. No mucus issues. Usually wakes up once a night for a drink of water but thats all.

He never really stopped running. I think there may have been two months during chemo/radiation when he didn’t run but that’s it. He has run 10 5Ks and 5 Half Marathons since Feb. 1st. He runs an average of 40 miles a week. 

I must admit though that cancer has changed our lives forever. When we had been planning our retirement all these years, we never even considered an illness would be part of our lives. We always ate right, exercised, no smoking, etc. We got a rude awakening. It will be with us forever and the fear will probably never go away. However, I must say it has brought us closer than I ever thought possible. We hold hands just a little bit tighter and snuggle just a little bit closer because of this.

Thanks for listening and I still read all the posts and pray for all of you who are either starting the journey or are struggling to get through it. 

RE: We made it to the one-year mark!!!

by atcbugsy on Tue Oct 31, 2017 05:22 PM

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Hiya Ann,

So glad things are going well.  My wife and I feel the same way.

Keep up the good work.

Bugsy

RE: We made it to the one-year mark!!!

by augustus on Tue Oct 31, 2017 08:13 PM

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Congratulations! I am 3 years out and expect it to be normal from now on, but that first year is a very important milestone! 

RE: We made it to the one-year mark!!!

by Sdurnell on Wed Nov 01, 2017 07:17 AM

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Ann,

Congratulations to you both.  It's been a rough year, but it sounds as if he's doing very well.  Chocolate, along with wine and liquor, was about the last taste to come back for me.  Almost wish it hadn't, espcially on this chocolatey day!

About the fear.  I dealt with it by looking at upcoming scans and appointments as opportunities, rather than scary times.  When you get the results of a PET or CT there will be one of two outcomes.  Either it will be NED, in which case you can celebrate, or it will show something worrisome, giving you an early opportunity to address whatever it is right away.  Either way you are well off compared to not having had the scan.

You are right about the side effects of treatment--they will be with us always.  But nearly 7 days out I now can go days without even thinking about cancer, even though I have trouble eating some foods.  I may think about not being able to chew well, but not the cancer.  Otherwise my new normal is just that--normal.

All the best to you both!

Susan

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