Anyone have incidental finding of LGG?

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RE: Anyone have incidental finding of LGG?

by BLS2018 on Thu Sep 13, 2018 06:53 PM

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How old was your son? Has he had a recurrence?

RE: Anyone have incidental finding of LGG?

by MrsJahBless on Thu Sep 13, 2018 10:24 PM

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How is your son doing? 

RE: Anyone have incidental finding of LGG?

by suz222 on Thu Sep 13, 2018 11:00 PM

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He's super - thanks so much for asking!  No deficits after surgery almost 6 years ago.  No progression as of his last MRI in July.  If he can keep this up for another 60 or 70 years, I'm good.

We laughingly have a deal.  His job is to not have a recurrence.  My job is to worry.  So far, we're both holding up our ends of the bargain!

RE: Anyone have incidental finding of LGG?

by BLS2018 on Thu Sep 13, 2018 11:02 PM

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Hold old was he? After two years of watch/wait for an incidental finding I’m going to UCSF and dr.berger in October for a resection.

RE: Anyone have incidental finding of LGG?

by suz222 on Thu Sep 13, 2018 11:04 PM

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He was 19 when he was incidently diagnosed after a minor head bump while he was a swimming instructor at summer camp.  He was in the middle of nowhere but a young ER doctor at a regional hospital saw something she didn't like on his CT scan.  She was sensitized because her young daughter has a brain tumour.  She emailed his report to Princess Margaret, a leading Canadian cancer centre.  They recommended an MRI and hence caught his LGG.  And no, no recurrence.  Thank God!!!!

RE: Anyone have incidental finding of LGG?

by BLS2018 on Thu Sep 13, 2018 11:05 PM

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Size and location? Just wondering!

RE: Anyone have incidental finding of LGG?

by suz222 on Thu Sep 13, 2018 11:06 PM

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Dr. Berger was our doctor!!!!  He is the best best best best!! After much research, we chose him and will not regret that choice.  We actually left Canada and totally free health care to be treated at UCSF.  He AND his team are unbelievable.

RE: Anyone have incidental finding of LGG?

by suz222 on Thu Sep 13, 2018 11:08 PM

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Small.  His tumour was about 2.5 centimetres and left frontal lobe.

RE: Anyone have incidental finding of LGG?

by BLS2018 on Thu Sep 13, 2018 11:12 PM

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Mine is 2cm wide and around 5cm long. Roughly golf ball sized.

RE: Anyone have incidental finding of LGG?

by suz222 on Thu Sep 13, 2018 11:18 PM

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That sounds small to me.  Some of seen on MRIs - and yes, I've learned how to read brain scans - are much more intrusive.  My call?  I think you're going to be one of the lucky ones and have many many years ahead of you!

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