New to this..

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New to this..

by marlene65 on Sun Nov 12, 2017 08:56 PM

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Hello, Three months ago I was diagnosed with stage 4 colon cancer.  I am a 52 year old female and am a 16 year breast cancer survivor.  This is a new cancer and not related to the breast cancer.  Pretty bad luck I'd say.  Yep, I was angry at first but i am going to fight the fight again!

I am currently on my 6th round of 5-FU, Irinotecan, and Vectibix.   My onc says I have two more rounds to complete then i should be in remission and will stay on the Vectibix.  (for how long I don't know)  I have had my first scan and it showed significant shrinkage of the tumors on my liver.

Each round of chemo (every 14 days) is completely different.  Some have been bad and some have been not as bad.  

Right now my biggest burden is the skin rash on my face and neck from the Vectibix.  It is not painful anymore, but my face feels like sandpaper. 

I was wondering if anyone had any experience with the vectibix rash and if is eventually goes away.  My onc does not seem too concerned with the rash and actually said that the rash is a good sign that it is working well. 

RE: New to this..

by CaregiverPete on Wed Nov 15, 2017 11:44 AM

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Hi Marlene.

My wife had lung cancer in 2015. She had some facial skin rash/dryness/breakout  side effects from one of her treatments: (Rx) Tarceva. We were told by her oncologist to use ELIDEL cream 1%.  It worked very well for her. Maybe it's possible that ELIDEL cream could work against the side effects of Victibix. Please consult your oncologist about the ELIDEL cream. 

------------------------------------------------------

Your post gave me hope and positive strength.  My wife is battling distant recurrence of breast cancer that reared its ugly head a few months ago. 

Words of your breast cancer survivorship gives me so much hope for my wife. It is clear to me that your fight against colon cancer will soon be a victory as well.  You posted your feelings in time for me to read and get posiive mental strength from it. 

Thank you for your endless strength and courage. Thank you for getting me through yet another day to be hopeful.

Be well

Take care

Pete....

RE: New to this..

by PunkyD on Thu Nov 16, 2017 06:37 AM

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Dear Marlene,

I'm sorry to hear about your diagnosis.  You are not alone.  This site is a good place to hang out. You sound very positive and strong, and I'm sure that has helped you be a survivor. 

We are all rooting for you here. Hang in there as you travel the difficult road to recovery. 

Punky

RE: New to this..

by phils1950 on Thu Nov 16, 2017 03:47 PM

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Hi  I am a stage 4 colon cancer survivor.  In remission for 2 years now.  My oncologist has me on the 5Fu for maintenance and I can stay on it as long as my body tolerates it.  I am scared to quit taking it.  The odds of surviving stage 4 colon cancer are not too good.  My scans and colonoscopy were clear and I see the oncologist tomorrow when I get my 5Fu.  3 lymphnodes in my back were the reason  I was staged at 4.  They were gone with my first PET scan  after 6 treatments.  I had Folfox for my treatment.  Hang in there .  The way I feel about maintenance is that if receiving the med every 14 days is going to keep me around then I will do this for as long as I have too.  If it is for the rest of my life so be it.  I want to be here for a long while and I am not ready to leave this world.

RE: New to this..

by marlene65 on Thu Nov 16, 2017 05:43 PM

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Amen to that!  I feel the same way and will fight the fight to the bitter end.  Best wishes to you!

RE: New to this..

by marlene65 on Thu Nov 16, 2017 05:45 PM

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Thank you.  

RE: New to this..

by Rozeya on Fri Nov 17, 2017 03:45 AM

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Hi Phils and Marlene! I'm not new to this, I've been fighting colon cancer since February 2013. First diagnosed at stage III colon cancer with two out of fourteen lymph nodes infected. Had a colectomy resection and twelve rounds of chemo. I was in remission for thirteen months and the cancer came back in my pelvic area in January 2015. I was then restaged to IV colon cancer, again I went through twelve more rounds of chemo. After four months and a CT scan the cancer came back in my ovaries in 2016. I had a complete hysterectomy in March and twelve more rounds of chemo. My oncologist put me on Xeloda pills immediately after the chemo treatments as a maintenance treatment. I went to MD Anderson in Texas in May 2017 for a second opinion and was told that I was getting the best possible treatment for my situation, but to stop the xeloda pills because of the severe side effects I was experiencing. My oncologist then put me on Avastin and 5FU. My last CT and PET scan revealed a spot on my lungs but too small to biopsy. I pray you all live a very long time and enjoy every moment of a happy life!? Does anyone get sick (nausea, fatigue, salivating) when disconnecting from the 5FU pump??? I have been on avastin and 5FU since

RE: New to this..

by duygu on Sun Nov 19, 2017 09:06 PM

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please check the site chrisbeatcancer, also ann cameron´s story with carrot juice. Also important: 10000 IU vitamin D / day + Mg + green smoothies .Best!

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