27 and just diagnosed with Pancreatic Cancer

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27 and just diagnosed with Pancreatic Cancer

by gusbuster on Fri Dec 01, 2017 05:50 PM

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My 27-year-old step daughter was just diagnosed the first part of November. It's my understanding that this type of cancer is quite unusual for both a female and as young as my daughter is.

She started her first chemo treatment this past Friday after Thanksgiving.

She has no medical insurance, so I’ve been having to give her money for her meds while we wait for the emergency Medicaid to kick in. Talk about a financial burden. Also, what complicates things is Her mother and I live 2400 miles from her.

So, what I’m wondering is what kind of treatments she most likely will get from Medicaid. Obviously, she won’t get the same opportunities as somebody who has their own insurance.

What are the things I should expect to happen to her as the cancer progresses? What are the things we should be asking her doctor’s as I’m well aware of, sometimes you need to advocate for yourself?

RE: 27 and just diagnosed with Pancreatic Cancer

by denver88 on Sun Dec 03, 2017 02:11 AM

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first let me say that it is damn shame anyone in this country has to be concerned about an ability to pay for treatment, unfortunately over the last year we have a country that continues to try and keep quality medical care for the few

depending on the type of cancer/tumor she will receive different treatment.  for me, i had a neuroendocrine tumor removed from my pancreas, it was malignant, pancreas is now free but spread to liver but at this time via lanreotide injections that are specifically for neuroendcrine tumors my liver tumors have shrunk.  i was diagnosed in dec 2016, surgery in feb 2017, injections once each month since. some folks receive chemo and I can't comment on that

RE: 27 and just diagnosed with Pancreatic Cancer

by gusbuster on Sun Dec 03, 2017 03:43 PM

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On Dec 03, 2017 2:11 AM denver88 wrote:

first let me say that it is damn shame anyone in this country has to be concerned about an ability to pay for treatment, unfortunately over the last year we have a country that continues to try and keep quality medical care for the few

depending on the type of cancer/tumor she will receive different treatment.  for me, i had a neuroendocrine tumor removed from my pancreas, it was malignant, pancreas is now free but spread to liver but at this time via lanreotide injections that are specifically for neuroendcrine tumors my liver tumors have shrunk.  i was diagnosed in dec 2016, surgery in feb 2017, injections once each month since. some folks receive chemo and I can't comment on that

Thank you for giving me some idea of whats to come. It is very tough on my wife. Just seems our family health is taking one hit after another, specially when dealing with our eldest daughter. 

RE: 27 and just diagnosed with Pancreatic Cancer

by smyrnalover on Sun Dec 03, 2017 08:26 PM

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The "latest" treatments are very expensive. However, many of them, e.g., Abraxane, are just modifications of off patent drugs. So I would ask the oncologist about this, since the generic drug in most cases is almost as good. What stage is she? If she is resectable (operable), the surgery is very expensive, but will probably be paid by Medicaid. Also contact Pancan.org . They will definitely have some good ideas. 27! That's way too young. My wife has it but she's 70. Life is not fair.

RE: 27 and just diagnosed with Pancreatic Cancer

by gusbuster on Wed Dec 06, 2017 05:58 PM

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On Dec 03, 2017 8:26 PM smyrnalover wrote:

The "latest" treatments are very expensive. However, many of them, e.g., Abraxane, are just modifications of off patent drugs. So I would ask the oncologist about this, since the generic drug in most cases is almost as good. What stage is she? If she is resectable (operable), the surgery is very expensive, but will probably be paid by Medicaid. Also contact Pancan.org "" target="_blank" rel="nofollow">http://Pancan.org " target="_blank" rel="nofollow">Pancan.org . They will definitely have some good ideas. 27! That's way too young. My wife has it but she's 70. Life is not fair.

She just got a letter Saturday's mail that Medicaid will kick in on the 31rst of this month. So a couple more weeks of me paying out of pocket.

Maybe I’m being callused about it, but from what research I have done, her getting this disease is a direct result of her lifestyle that she has chosen. If it was up to me, the way and life choices she has chose these past 5 years, I would of put her out in the street, but my wife was adamant that no child of hers would end up homeless and hungry. Even though my wife went back to work and she shouldn’t work because of health reasons, she chose this route. My step daughter’s choices has caused so much hardships in my marriage and within our children, my other step daughter and my own biological children.

Besides being a heavy smoker, 2 years ago, my wife went back to where she’s from to get our step daughter off of “Opana” an opiate that is just as bad as fentanyl . my step daughter would inject directly into her veins to get the high. My wife who has some medical training, helped her detox (cold turkey) then we brought her to our home on the west coast to get away from the crowd. Against my wishes and common sense, she brought her looser boyfriend also. Well that lasted a whopping 2.5 weeks before they got his mom to supply tickets back to the east. Though she did stay off the opiates, she really hasn’t had a good lifestyle either.  

From what I have learned from research and support groups, the side effects of the abuse of this opiate, “oxymorphone” can lead to many types of cancer.

So yes 27 is too damn young,. As I said earlier, she should of ended up in the streets, but I knew that when you marry a spouse who has children from a previous marriage, you married the problems that go with it.  Heck, her own biological father won’t even give her money or any kind of support. All she has is her other sister, my wife and me.

Yesterday, my step daughter had a blood test. I’m guessing it was a CA19-9 blood test. My wife told me (I don’t know if she even understood the test) told me that the blood work showed it spread. However, what I understand when they do a blood test after a treatment (she just did chemo) its to see if the tumor-associated antigens in the blood is the same amount or increased, (not good) or there is less antigens present. So, so far, the prognosis is not good.

 My poor wife has lost so many loved ones this past couple years, first her father (memorial weekend) then her step father in October, and just before Christmas, her aunt, more like her sister since they were raised together passed in 2016. This past March, her mom, after not hearing from her for 4 days, the sheriff found her dead in her home. Her other sister just passed early November.  Now, only in a matter of time, her own daughter.  When will the pain stop?

 

 

 

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