Survival Times with all the Pain and Hassle

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Survival Times with all the Pain and Hassle

by Jeffzz on Mon Jan 01, 2018 09:01 PM

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Where are the actuary tables for surviving different Pancreactic cancer diagnoses.....{ tumor type, location, etc. }.  Somewhere I got in my head even with Whipple and follow up chemo and radiation only 25% are alive after 2 years.....Isn`t there enough money pouring into cancer research so these statistics are available.....Jeff

RE: Survival Times with all the Pain and Hassle

by AliveInOldeTown on Mon Jan 01, 2018 09:56 PM

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The American Cancer Society provides information by type and stage.

https://www.cancer.org/cancer/pancreatic-cancer/detection-di

RE: Survival Times with all the Pain and Hassle

by Claity on Thu Jan 04, 2018 06:36 PM

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Hey Jeff, I know what you’re feeling cause I was there in 2008. All the information I could gather - from the surgeon, the oncologist, internet sites, books from the library - said to me 5 years of life after a successful whipple, and that was the very best you could expect. Mostly life expectancy was shorter. It didn’t seem like a good trade off to me so I just opted for living the life I had and dying early. Didn’t turn out that way, nobody knows why. I’m free of pancreatic cancer today in my pancreas but have pancreatic mets to my lungs. I’ve often wondered if not treating the cancer factored into my 10 year survival rate. I didn’t do alternative treatment either, just to be clear. I wanted a peaceful life, not one lived always concentrating on the cancer. It’s such a difficult decision, isn’t it? I don’t have any answers but know that there are many people out there holding space for you, praying for you and all the others who face this. The only thing I know that helped me was to face my death and accept it, since that’s what pancreatic cancer’s message seemed to be. Once that happened, I wasn’t in fear anymore and felt at peace and able to make decisions calmly and rationally. Wishing you peace and healing.

RE: Survival Times with all the Pain and Hassle

by barjaffe on Fri Jan 05, 2018 04:44 PM

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Hi, Jeff.  Have you looked at the information provided by PDQ (Physician Data Query) NCI Comprehensive Cancer Database?  Use the internet to access it.  Then search prognosis, pancreatic cancer.  And also search clinical trials' interim reports for pancreatic cancer.  According to the National Cancer Center, this is the most up-to-date statistical information on "outcome studies" of different trreatments. 

RE: Survival Times with all the Pain and Hassle

by Jeffzz on Sat Jan 06, 2018 01:27 AM

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Thank you Barjaffe.....

RE: Survival Times with all the Pain and Hassle

by WonderWoman1 on Mon Jan 08, 2018 09:13 PM

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hi claity! so happy to hear that! after losing my mom i gt so sick of hearing bad results and the expectancies linked to PC, diagnosis and prognosis are tw different things, i think the second is also a mental fight. How did u get your pancreatic tumor to dissolve if i might ask?

RE: Survival Times with all the Pain and Hassle

by Claity on Tue Jan 09, 2018 02:07 AM

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On Jan 08, 2018 9:13 PM WonderWoman1 wrote:

hi claity! so happy to hear that! after losing my mom i gt so sick of hearing bad results and the expectancies linked to PC, diagnosis and prognosis are tw different things, i think the second is also a mental fight. How did u get your pancreatic tumor to dissolve if i might ask?

Sorry about your Mom. It’s a terrible time, things can go so fast and you don’t know whether what you’re choosing to do is the right path. And it is so maddening, watching your loved one and finding no real good answers.I feel for you going through it and the grief that follows, and all the others out there who are trying to find a way through this diagnosis. I think you’re right, prognosis is different from diagnosis. I thought of it not as a fight because I- well, it’s a long story. Suffice it to say, I just made peace with the cancer and really thought I would die within a year. I can’t answer your question about the tumor dissolving, which is as good a word as any. I don’t know why, doctors don’t know why. For a while we thought I was in remission but I guess I can’t say that anymore since I have pc mets in my lungs. I wrote my heart out that second year, blogging about everything I did in hopes that something might help someone, something I did might be an answer. There is a book coming out on remission soon by Dr. Jeffrey Rediger that you might check out if you’re interested in this. He’s looking for the same answer and we talked a lot about what might be happening. There are many people out there trying to find an answer to this at the physical level and the mind/spirit level. I hope there’s something good and healing found soon..... Peace to you. I wish you healing too, we can all use it.
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