Colon cancer with lymph and liver mets

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Colon cancer with lymph and liver mets

by Annie44 on Wed Jan 10, 2018 02:44 PM

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Hello everyone.

My mother, who is 52 years old got diagnosed with sigmoid cancer with liver metastases. 

The tumor was around 7.5 cm in diameter, and it penetrated the surrounding fat tissue around the colon. There were several lymph nodes on the CT scan, which were ~0.7 cm in diameter. 

Her CEA is 1660. She was in good health and didn't feel sick at all.

A few days after the diagnosis, her CRP levels started to rise. She underwent surgery on her colon, they did a Hartmann procedure and she has a colostomy now. Today is her 7th postoperative day, she is feeling good, goes to the bathroom alone, walks around the hospital alone.

They couldn't resect the liver mets, there are two of them, and they measure 7 cm and 11 cm in diameter and grow around the hepatic veins.

I know it doesn't look good, but reading your stories gave me hope. I feel like it's not her time yet. My heart hurts because she is my mother and my friend. I hate that she has to go through this. 

However, we are not going down without a fight. I feel positive and she does, too, but talking to the doctors makes me sick. Her oncologist and the intervention radiologist I consulted both said the treatment's only palliative. I cannot accept this. It seems that they do not believe in her, but she is in excellent physical condition. 

We are from Croatia and I don't know what to do and where to go. We want to fight, but the doctors seem like they don't. I hate this, I hate the fear we are living with now, and that it seems everywhere I turn, I hit a dead end. She will have chemotherapy when she recovers from the surgery, but both of the doctors said they don't believe the mets in her liver will shrink enough to become resectable. How can they know that for sure?

I'm a young doctor myself, and have seen a fair share of miracles. I have faith in my mom and in god and believe it will turn out okay. 

Do you have any suggestions for us, where to go in Europe, what supplements to take, which food to eat?

Thank you and good luck to everyone fighting this battle.

RE: Colon cancer with lymph and liver mets

by dianect on Thu Jan 11, 2018 03:25 PM

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Our son is now 38. He has been dealing with the same cancer for almost 3 years. He started with a CEA of 1675. We live in upstate South Carolina. He has a very good oncologist but she didn't expect him to respond so well. He's had infusions and interventional radiation on his liver. There is a new doctor and procedure available to him now. They're going to treat his omentum with some kind of "hot packing" procedure. I don't quite understand but while they're in there, they're going to remove the section of his colon where the cancer started. Don't ever give up! The doctors are not always right with their predictions.

RE: Colon cancer with lymph and liver mets

by saundrav on Thu Jan 11, 2018 10:00 PM

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I just saw your message and feel I need to reply.  I am a 71 year old mother and I was diagnosed in July 2011 with stage 4 colon cancer, metastases in my liver and some lymph nodes involved.  I had a colon resection surgery then I went to Cancer Treatment Centers of America in Tulsa, Oklahoma, for chemo treatments.  My oncologist said he had wonderful success with the chemo drug Oxaliplatin (FOLFOX4) on livers and colon cancer.  Yes, amazing success!  I had three lesions on my liver before the 6 chemo treatments of Oxaliplatin and my PET scan after the treatments, I had none.  Doctor said it was miraculous.  I agree.

I have had follow up chemo treatments since that time of different drugs, such as avastin and 5FU.  I had another surgery in 2014 for a small spot in the tip of my liver which was removed successfully and then I had 6 more follow up chemo treatments.  I have been cancer free since February 2015.

I was very active before the cancer, and continued to be active during my treatments and am very active now.  Stay positive and keep fighting!  

RE: Colon cancer with lymph and liver mets

by phils1950 on Thu Jan 11, 2018 10:07 PM

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i am currently working on my third year of remission from stage 4 colon cancer.  My cancer had spread to my paraortic lymph nodes and I wAas very fortunate that the chemo was all I needed to get into remission.  I had Folfox for 10 treatments and then 5FU with leukovorin from then on.  My PET scan has been clear since the 6th treatment.  I read some very good articles by Dr. Axel Grothby of the Mayo clinic.  His articles gave me the will to keep on when I thought all was lost.  My oncologist is thrilled with my progress.  I was never told my treatment was palliative.  When my 12the treatment was over my oncologist put me on maintenance therapy.  I receive 5FU and the Leukovorin every other week and will continues this as long as the cancer doesn't come back.  I don't like getting the medicine as I feel very tired for a couple of days but that is a small price to pay to not have cancer.  By the way there is a very strong history of cancer in my family .  Bot of my parents families have had a lot of cancer.  By the wY i WAS DIgnosed at the age of 70 and still very active.  Your mother needs to keep active and think positive.  I know how hard staying positive is.  Good luck.

RE: Colon cancer with lymph and liver mets

by lkile on Thu Jan 11, 2018 11:05 PM

Quote | Reply

On Jan 10, 2018 2:44 PM Annie44 wrote:

Hello everyone.

My mother, who is 52 years old got diagnosed with sigmoid cancer with liver metastases. 

The tumor was around 7.5 cm in diameter, and it penetrated the surrounding fat tissue around the colon. There were several lymph nodes on the CT scan, which were ~0.7 cm in diameter. 

Her CEA is 1660. She was in good health and didn't feel sick at all.

A few days after the diagnosis, her CRP levels started to rise. She underwent surgery on her colon, they did a Hartmann procedure and she has a colostomy now. Today is her 7th postoperative day, she is feeling good, goes to the bathroom alone, walks around the hospital alone.

They couldn't resect the liver mets, there are two of them, and they measure 7 cm and 11 cm in diameter and grow around the hepatic veins.

I know it doesn't look good, but reading your stories gave me hope. I feel like it's not her time yet. My heart hurts because she is my mother and my friend. I hate that she has to go through this. 

However, we are not going down without a fight. I feel positive and she does, too, but talking to the doctors makes me sick. Her oncologist and the intervention radiologist I consulted both said the treatment's only palliative. I cannot accept this. It seems that they do not believe in her, but she is in excellent physical condition. 

We are from Croatia and I don't know what to do and where to go. We want to fight, but the doctors seem like they don't. I hate this, I hate the fear we are living with now, and that it seems everywhere I turn, I hit a dead end. She will have chemotherapy when she recovers from the surgery, but both of the doctors said they don't believe the mets in her liver will shrink enough to become resectable. How can they know that for sure?

I'm a young doctor myself, and have seen a fair share of miracles. I have faith in my mom and in god and believe it will turn out okay. 

Do you have any suggestions for us, where to go in Europe, what supplements to take, which food to eat?

Thank you and good luck to everyone fighting this battle.

Fantastic books: “Natural Strategies for Cancer Patients” by Dr Russell Blaylock and “Everything You Need To Know To Help You Beat Cancer” by Chris Woollams. Me? Stage III colon cancer, diagnosed in September 2014. I’ve, basically, employed just about everything from those two books. Still “NED” today. Thank God.

RE: Colon cancer with lymph and liver mets

by Ronmor on Fri Jan 12, 2018 12:09 PM

Quote | Reply

On Jan 10, 2018 2:44 PM Annie44 wrote:

Hello everyone.

My mother, who is 52 years old got diagnosed with sigmoid cancer with liver metastases. 

The tumor was around 7.5 cm in diameter, and it penetrated the surrounding fat tissue around the colon. There were several lymph nodes on the CT scan, which were ~0.7 cm in diameter. 

Her CEA is 1660. She was in good health and didn't feel sick at all.

A few days after the diagnosis, her CRP levels started to rise. She underwent surgery on her colon, they did a Hartmann procedure and she has a colostomy now. Today is her 7th postoperative day, she is feeling good, goes to the bathroom alone, walks around the hospital alone.

They couldn't resect the liver mets, there are two of them, and they measure 7 cm and 11 cm in diameter and grow around the hepatic veins.

I know it doesn't look good, but reading your stories gave me hope. I feel like it's not her time yet. My heart hurts because she is my mother and my friend. I hate that she has to go through this. 

However, we are not going down without a fight. I feel positive and she does, too, but talking to the doctors makes me sick. Her oncologist and the intervention radiologist I consulted both said the treatment's only palliative. I cannot accept this. It seems that they do not believe in her, but she is in excellent physical condition. 

We are from Croatia and I don't know what to do and where to go. We want to fight, but the doctors seem like they don't. I hate this, I hate the fear we are living with now, and that it seems everywhere I turn, I hit a dead end. She will have chemotherapy when she recovers from the surgery, but both of the doctors said they don't believe the mets in her liver will shrink enough to become resectable. How can they know that for sure?

I'm a young doctor myself, and have seen a fair share of miracles. I have faith in my mom and in god and believe it will turn out okay. 

Do you have any suggestions for us, where to go in Europe, what supplements to take, which food to eat?

Thank you and good luck to everyone fighting this battle.

HI 

I was in a avery similar position to your Mum and was told palliative careonly in March 2015. 

Main problem for me like your mum was I had tumours around the hepatic vein as well as the mother tumour in the sigmoid. Thus the diagnosis.

After the initial shock I decided to get another opinion and went to  see a consultant who works at Q.E. in Birmingham. In view of the urgency I went privately for a consultation initially which by recollection cost me £175. This wonderful man said looking at the scan it is inoperable BUT! If chemotherapy can shrink even one of the tumours away from the hepatic veins I will operate and then if that is successful you can go back to your colorectal surgeon to have the mother tumour removed.

I underwent six cycles of oxalaplatin and 5FU and had a acan and lo and behold the tumour area had reduced dramatically enough to allow the operation which took place in October 2015 

I then had the colon tumour removed and lymph glands 6 of the 18 they removed were cancerous in Feb 2016 and followed with 8 more cycles of chemotherapy but this time because the oxilaplatin had left me with peripheral neuropathy in my lower legs and feet and to a small extent my hands I dropped the oxalaplatin and went with the 5 fu through a line in my chest .

My first scan was clear but the next scan shows a small group of tumours in my liver but in  a different location so I had an ablation procedure with an overnight stay. Next scan was clear but the foillowing one had toumours back so had a further abalation procedure in March 2017 I have since had three scans  all clear. Next one due in three months.

So fingers crossed.

Myself, wife family and friends ahve been very psoitive I have exercised from the word go walking and where possibly running a little but walking regulalrly at a good pace has helped my fitness and mind.

My diet has been full of Natures cancer fighters broccoli etc Very little if any red meat and  very little if any sugar unless you count Manuka honey!  I take B12 for the neuropathy lots of turmeric in my food and in capsules I am a big believer in this natural product. Milk Thistle for my liver and Wild reischi mushroom capsules for the anti cancer agents.  I also drink lots of white and green tea a good anti oxidant and possibly a cancer fighter too!

I pray the chemotherpy reduces the liver mets enough to resect for your MUM because then you are winning!!!  

She is young and deserves a longer life , never give up, there will be knockbacks but look on it as a bumpy road on the journey

Remember this you are not dying of cancer you are living with it!

best wishes

Ron Morgan

RE: Colon cancer with lymph and liver mets

by Annie44 on Fri Jan 26, 2018 01:16 PM

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Thank you eat2bwell, dianect, saundrav, phils1950, lkile, and Ronmor for your replies.

Ron, you especially have made me feel like there is hope. We have received some new info so now i know that the 11 cm met grows in the left lobe, while the 7 cm met is confined do the 8th liver segment, which means if it shrinks, it would no more be in contact with the left hepatic vein. Maybe then they could resect it (if it doesn't grow agressively in the following days)?

I sure hope so the chemo will work, my mother, too.

I think her oncologist will start her on Folfiri. She said she doesn't believe it will shrink enough to become resectable. I think she means to treat it to prolong her life the most she can. We are waiting for the RAS status tests, hopefully, she has a wild type or no mutation at all and can receive Erbitux. The onco told me that if they use Oxalyplatin first, the tumours don't respond so well on Irinotecan.

I'm not an oncologist, so there is nothing to do but to trust her. I consulted a surgeon also, whose wife is an onco, too, and he told me that Folfiri + Erbitux/Avastin is the first line of treatment here in Croatia. Chemo is due to start on February 5th. Fingers crossed.

Also, my mum takes Milk Thistle, Curcumin, sometimes Essiac tea and beta-glucans, vitamin D3 and Aspirin. Also, we supplement iron because of the iron-deficiency anemia. She has a healthy appetite, we take short, daily walks and do stuff around the house together. After all, the surgery was only 3 weeks ago so I'm trying not to pressure her too much, but am also trying to keep her a bit busy and active. We cook fresh food daily. Thank you again, so much.

May I ask, how are you doing now? I hope your next scan will be clear, as well as the rest of them.

This goes for all of you guys. 

Thank you again for your replies, you've helped a lot.

RE: Colon cancer with lymph and liver mets

by Redline on Fri Jan 26, 2018 02:41 PM

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On Jan 11, 2018 10:00 PM saundrav wrote:

I just saw your message and feel I need to reply.  I am a 71 year old mother and I was diagnosed in July 2011 with stage 4 colon cancer, metastases in my liver and some lymph nodes involved.  I had a colon resection surgery then I went to Cancer Treatment Centers of America in Tulsa, Oklahoma, for chemo treatments.  My oncologist said he had wonderful success with the chemo drug Oxaliplatin (FOLFOX4) on livers and colon cancer.  Yes, amazing success!  I had three lesions on my liver before the 6 chemo treatments of Oxaliplatin and my PET scan after the treatments, I had none.  Doctor said it was miraculous.  I agree.

I have had follow up chemo treatments since that time of different drugs, such as avastin and 5FU.  I had another surgery in 2014 for a small spot in the tip of my liver which was removed successfully and then I had 6 more follow up chemo treatments.  I have been cancer free since February 2015.

I was very active before the cancer, and continued to be active during my treatments and am very active now.  Stay positive and keep fighting!  

Good news and a great post. I am on Oxyplatin with Cetuximub. Here's hopin I get the same success with liver mts!

RE: Colon cancer with lymph and liver mets

by Ronmor on Fri Jan 26, 2018 03:08 PM

Quote | Reply

On Jan 26, 2018 2:41 PM Redline wrote:

On Jan 11, 2018 10:00 PM saundrav wrote:

I just saw your message and feel I need to reply.  I am a 71 year old mother and I was diagnosed in July 2011 with stage 4 colon cancer, metastases in my liver and some lymph nodes involved.  I had a colon resection surgery then I went to Cancer Treatment Centers of America in Tulsa, Oklahoma, for chemo treatments.  My oncologist said he had wonderful success with the chemo drug Oxaliplatin (FOLFOX4) on livers and colon cancer.  Yes, amazing success!  I had three lesions on my liver before the 6 chemo treatments of Oxaliplatin and my PET scan after the treatments, I had none.  Doctor said it was miraculous.  I agree.

I have had follow up chemo treatments since that time of different drugs, such as avastin and 5FU.  I had another surgery in 2014 for a small spot in the tip of my liver which was removed successfully and then I had 6 more follow up chemo treatments.  I have been cancer free since February 2015.

I was very active before the cancer, and continued to be active during my treatments and am very active now.  Stay positive and keep fighting!  

Good news and a great post. I am on Oxyplatin with Cetuximub. Here's hopin I get the same success with liver mts!

I wish you all the best of results from your chemo, which is tough in itself but when you have the opportunity of life you do whatever it takes. Like you Redline and Saundrav I had oxaliplatin and 5-fluorouracil through a line as I didnt cope with the oral quivalent very well.

After the liver operation which was made possible by this combination I developed a peripheral neuropathy which affects my legs and feet especially. I have seen neurologists and all concur it was the oxilaplatin that caused it. I am likely to have to live with it, but that is fine as the treatment gave me the chance of life, that and my fantastic surgeon.

After the colon operation which followed the liver operation I had another 7 cycles of chemo and this time after consultation with my oncologist who says at oxaliplatin would only add about 5% more effectiveness at that stage with the risk of more neuropathy so I decided to go with just 5-fluorouracil 

Almost two years after the tumour being removed from the colon, and a couple of ablations or recurring small tumours in the liver. I now run and go to the gym and live a fairly normal life. Of course we are all full of trepidation as each scan comes along, but we must enjoy every day!

I suggest you keep on with a healthy diet with no sugar or salt and none or little alcohol and lots of oily fish and green vegetables, cook with olive oil. Consider using flax seed oil and cottage cheese or quark mixed as per the Budwig diet.http://www.budwigcenter.com/budwig-recipes/#.WmtEMK5l-Uk With the turmeric try and get the capsules with piperine(black pepper as it helps the efficacy)

Exercise as much as you can.

Who knows what the future holds but all you can do is give yourself the best chance

Youre n our thoughts

all the best

RoN & Dianne

RE: Colon cancer with lymph and liver mets

by diane01 on Thu Apr 05, 2018 08:20 PM

Quote | Reply

On Jan 11, 2018 10:00 PM saundrav wrote:

I just saw your message and feel I need to reply.  I am a 71 year old mother and I was diagnosed in July 2011 with stage 4 colon cancer, metastases in my liver and some lymph nodes involved.  I had a colon resection surgery then I went to Cancer Treatment Centers of America in Tulsa, Oklahoma, for chemo treatments.  My oncologist said he had wonderful success with the chemo drug Oxaliplatin (FOLFOX4) on livers and colon cancer.  Yes, amazing success!  I had three lesions on my liver before the 6 chemo treatments of Oxaliplatin and my PET scan after the treatments, I had none.  Doctor said it was miraculous.  I agree.

I have had follow up chemo treatments since that time of different drugs, such as avastin and 5FU.  I had another surgery in 2014 for a small spot in the tip of my liver which was removed successfully and then I had 6 more follow up chemo treatments.  I have been cancer free since February 2015.

I was very active before the cancer, and continued to be active during my treatments and am very active now.  Stay positive and keep fighting!  

thank you for sharing.   How are you doing now?

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