Hello,New member aa3

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Hello,New member aa3

by Marenyia on Thu Jan 11, 2018 11:50 AM

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Hello. I was diagnosed with aa3 october 2017.

mri showed a low grade glioma. well-defined and did not charge with contrast ..
The pathology after a gross total restriction shows an aa3 idh positiv and mgmt methylated. was 2.7cm large / small.
is anyone here who can explain why it is not charged with contrast? what does it mean idh and mgmt? is there any more I should ask the doctor? 

RE: Hello,New member aa3

by Dodgerblue on Thu Jan 11, 2018 03:39 PM

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Welcome,

  It sounds like your case was similiar to mine.  I'm assuming your going to undergo radiation and 6-12 month of Chemotherapy?  That is standard treatment anyway.  Your prognosis should be quite good, despite whatever statisitics you may come across.  I'm 4 years out since DX and have been recurrence free thus far.  Not sure why your contrast in MRI didn't light up...  As far as IDH1 and mgmt methalyatation these are biomarkers that each tumor has or doesn't have.  They can indicate how effective chemo will be.  Any other questions feel free to ask, best of luck,

Dodger

RE: Hello,New member aa3

by Marenyia on Thu Jan 11, 2018 05:07 PM

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Thank you for the reply. 

Im 32 years,this was right frontal lobe. 

Im done with 33 rounds of radiation today.( 1,8gy ×33) going om temodal in feb.

What is youre story? (Sorry for my bad English hope u understad)

RE: Hello,New member aa3

by Dodgerblue on Sat Jan 13, 2018 05:23 PM

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I was diagnosed at 38, tumor was 5x6 cm in RT. parietal lobe.  Got to retire after diagnosis, just enjoying life now.

Dodger

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