Hi Keith and all,
My 52 yr old husband KP has confirmed Dx this month with inoperable diffuse stage II wild type astroctyoma involving the right anterior and medial temporal lobe, inculding medulla, hippocampus and temporal operculum. We live in Indiana. His history was he had vauge sypmtoms for 6+ months that were being evaluated by GP as panic attack. For a couple months they went away altogether. When this sypmtom returned in Dec it included L arm/hand tingling so I took him to ER where he presented with a generalized seizure - CT/MRI performed showing tumor. Right now he's well controlled on Keppra and asymptomatic-no headach, no nausua, no altered motor function. Next week we are going to Ohio to consult about proton delivered radiation vs. traditional x-ray delivered. If he agrees to that he will do 6+ weeks proton radiaton plus TMZ, 4 weeks off, 6-12 cycles TMZ.
Week after next he consults with Precision Genomics for additional testing. When you all mention "Triple Negative" status, what markers are you talking about there?
My husband was off work up til this past week and is going to try and work when he's able through treatment. He is a data scientist for a pharmaceutical company so not sure if he will struggle with critical thinking and severe fatigue during or after radiation.
One thing I'm curious about is diet and drinking .... we are interested to know if anyone here doing keto diet and if anyone continues to drink alcohol? My husband has been told to stop drinking altogether and this has been a real struggle for him considering he's feeling well physically and quite frankly finds having a beer relaxing with the stress of diagnosis. My guess is this will abate once treatment starts and it will be easier to not drink.
Also curious if anyone is attending support groups or how they manage the stress with family. We have 3 daughters aged 16-24 - doing well at the moment but I image things will get more stressful over time. I'm struggling with the stress of work/family balance. I'm a manager at same Pharma company.
Sorry for so many questions this time! I'm just very intereseted in learning as much from everyone as possible.
My sincere wish is for health and happiness during everyone's journey!
Kind Regards Heather