bone pain

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bone pain

by shellie12 on Sat Feb 17, 2018 09:40 AM

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morning was looking advice if any one has pain with metastatic Prostate Cancer.. sorry i know there pain but what trying to ask is does it be there all the time.. my uncle is complaining of a sore hip and sometimes limbs and sometimes not. he say the pain is there sometimes. ando ther times he does not feel it. and does not feel it when laying or anything.  hes not every active. and last bone test was very good ...5 weeks ago

RE: bone pain

by tomatoman on Sat Feb 17, 2018 12:23 PM

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I can tell you a bit about the pain, although mine is in different location from his.  Mine was once at my tailbone, (three years ago), a constant pain which was most noticeable when I sat on a hard chair.  I believe it was a tumor, a collection of growing cancer cells, that had attached to  the tailbone at the very tip. There  was a similar pain in my rectum, at the spot where I had a prostate biopsy about four years prior.i discovered that if I ate some tomato such as ragu or tomato soup, the pains subsided about 20 minutes after eating, for five or six hours.  It happened at the same time I began Lupron therapy, and after about two months on Lupron and taking tomato every six hours, it eventually disappeared and is gone to this day. So later, similar pains occurred in my back, apparently at lymph nodes or in the lymph system. 

I have been reducing the pain for them similarly, although now they seem to grow much faster than the first ones.  The pain subsides 20 minutes after I drink V8 juice (or other lycopene-rich food) with vegetable oil, for about two hours now.  i have increased the frequency as it seems necessary to control the pain.  To me, the pain seems to be caused when the tumors grow large enough to press on nerves in the area. The V8 or ragu or tomato soup seems to cause my body immune system t-cells to attack the tumors, and they stop growing temporarily.  

It's not necessarily something that everyone can do with success.  Everyone has a different immune system and mine works better with lycopenes, although only while the lycopenes are in my small intestine.  I have to admit it is difficult to get people to eat when they are sick or in pain, so that may be another problem.  All I can say is it works for me.

RE: bone pain

by tomatoman on Sat Feb 17, 2018 12:36 PM

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i forgot to mention that also, the pain subsides during the night, after there is nothing in my stomach or small intestine.  I think the tumor only grows while food is being digested.  So they actually starve and go to sleep until another meal.  Lately I stopped taking tomato during sleep hours because of that and it seems okay.  I am trying to lower my PSA by significant lycopene intake.  December tested 4.3, March I am hoping for a lower reading, and will post it on this board when I get it.  

His meds, also, might help to reduce tumor growth, if he is taking some kind of hormone-controlling drugs, since testosterone is believed to fuel growth of cancer cells.  But apparently that works in early stages but later the cancer learns to defeat that and grow without testosterone, and thus other means become necessary. 

In my opinion, and in my case, it seems that the hormone treatment simply delays tumor growth.  Tomato intake seems to actually kill the cells and therefore can eventually lead to elimination of the tumors completely, at least I hope so.  In the case of my tailbone tumor, I have to say it was both the hormone therapy AND the tomato therapy that eliminated the tumors.  Lately, many back (lymph) tumors seem to have come and gone, although not totally gone. 

Hope this helps your situation.

RE: bone pain

by CalBear1974 on Sat Feb 17, 2018 01:58 PM

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I was diagnosed with metastatic prostate cancer in 2012. Subsequently, I noticed aching bone pain consistent with the MRI results that pointed to two bone tumors in the pelvis. The drugs I was taking were and still are effective in reducing my PSA. Regardless, my wife kept prodding me to do my own research on complementary and alternative treatments for prostate cancers. As a result, in mid-2015 I read AKM Shamsuddin's (MD, PhD, Univ. of MD cancer researcher) text "IP6 & Inositol" (Amazon). I took very heavy doses of IP6 powder (two brands available OTC: Enzymatic Therapy's Cell Forte IP6 and IP6 Gold from Allstarhealth.com ). By heavy dose I mean 12 scoops in divided doses of 6, AM and PM). In two months the bone pain went away. My PSA number(0.1) in 2015 startled my urologist and he palpated my prostate and could not find any nodule. The number was lower than he would have predicted given normal disease progression. It is now 2018, I am not yet drug resistant. The last time I had my PSA measured it was 0.06. My new urologist (I relocated with my wife to Florida) was delighted with that result. He thinks it is the success of the Lupron. I think it is the massive dose daily of IP6. I take 16 scoops. I had a MRI study in June, 2017 that did not image any bone tumors anywhere. Needless to say, the aching bone pain disappeared and has never returned.

RE: bone pain

by shellie12 on Sun Feb 18, 2018 01:41 AM

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thank you very much for taking the time to reply  when you say tomato soup do you mean like heinz 

hes on zoladex  every 3 months .

RE: bone pain

by shellie12 on Sun Feb 18, 2018 01:49 AM

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hi thanks for replying  and sharing. am gonna check out the ip6  am in northern ireland but am sure i can find it over here

when you say that there was no bone tumors showning up  was there some before this

thanks

RE: bone pain

by CalBear1974 on Sun Feb 18, 2018 02:01 AM

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Tomatoman, yours is a remarkable story. Since first reading about your use of tomato sauce, paste, juice, I have added to my diet.

You mention in your response on bone pain, that you are bothered by hormone-independent cells. I recently read about milk thistle capsules containing isosylibin A and isosylibin B. These chemical agents affect both hormone dependent and independent cancer cells. The Life Extension European Milk Thistle contains these chemicals not found in all milk thistle at this concentration. Here is some additional information if you wanted to consider augmenting your regimen. Though this comes from a biased source, it is compelling reading:https://www.lifeextensionvitamins.com/newwetofiprc.html

Here is a discussion from NCI: https://www.cancer.gov/about-cancer/treatment/cam/hp/milk-th

One of the great cancer journals published this study: https://www.academic.oup.com/carcin/article/28/7/1533/252671

Good luck.

RE: bone pain

by tomatoman on Sun Feb 18, 2018 02:21 AM

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On Feb 18, 2018 1:41 AM shellie12 wrote:

thank you very much for taking the time to reply  when you say tomato soup do you mean like heinz 

hes on zoladex  every 3 months .

Yes any brand would be similar in effect, as long as it is made with tomatoes. You can also buy raw tomatoes and cook them to make soup.  Also some small amount of oil is needed because the lycopenes are not water soluble, but are oil soluble, to get into bloodstream. I usually put in some onions and garlic r other things fried in oil into the soup, which helps to make it more interesting in addition to adding oil.  And oil can be added by eating potato chips with the soup.  I usually look for the cheapest in the store.  I usually buy 12 oz canz which you mix with one can water. One half cup per serving, as frequently as needed to relieve pain. Pain relief requires one to carefully monitor it to sense effectiveness.  Only the patient can do that.

RE: bone pain

by CalBear1974 on Sun Feb 18, 2018 01:57 PM

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Tomatoman: I consume only Vegan soups from a company called Imagine. They have an extensive assortment of vegan recipe soups and more than one recipe for tomato soup. I am a vegan and stay entirely within the boundaries of Dr. Michael Greger's "Daily Dozen" app (free download). You want to go to his website nutritionfacts.org and look at these two short videos on prostate cancer, and there are others.nutritionfacts.org /video/treating-advanced-prostate-cancer-with-diet-part-1/" target="_blank" rel="nofollow">https://nutritionfacts.org /video/treating-advanced-prostate-

nutritionfacts.org /video/treating-advanced-prostate-cancer-with-diet-part-2/" target="_blank" rel="nofollow">https://nutritionfacts.org /video/treating-advanced-prostate-

RE: bone pain

by CalBear1974 on Sun Feb 18, 2018 02:17 PM

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There were two bone tumors imaged in Dec., 2012. The last time I was experiencing what I suspected was pelvic bone pain was summer, 2015. No bone tumors were imaged in June 2017. The medical oncologist (Moffitt Cancer Center consult) said it was attributable to the Lupron. I will grant that Lupron may have contributed, but the IP6, given the research reported by Dr. Shamsuddin in his text "IP6 and Inositol" (Amazon), was an important factor. Please keep in mind IP6 is dose-dependent and time-dependent. The more you take and the longer you take it, the better the results. I found out through trial and error what the minimum dose was for me to achieve efficacy. I had a Gleason score of 8 reported in 2012.

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