Getting taste back after treatments

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Getting taste back after treatments

by Bkwrm on Tue Mar 06, 2018 04:49 AM

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I have finished 6 weeks of chemo and radiation for tongue and lymph node cancer. It's been a week and I know it takes a while to heal. I was wondering how long before your taste starts to return. I still can't eat, I'm living on ensure and cream of wheat. I can't taste anything.

RE: Getting taste back after treatments

by Arman on Tue Mar 06, 2018 11:43 AM

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I finished 6 1/2 weeks of radiation for stage 3 tonsil cancer november 2014. Taste buds were back 95% about 6 months post radiation except for some sweet. it took another 6 months to have all taste back. EKeep in mind that everybody is different.

Thanks

RE: Getting taste back after treatments

by augustus on Tue Mar 06, 2018 12:41 PM

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I am a little over 3 years out. It is a lot better, but still not where it was before. Spicy foods, while a lot hotter than they were previously,  help stimulate my taste buds. 

RE: Getting taste back after treatments

by atcbugsy on Wed Mar 07, 2018 06:25 PM

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My experience is that you'll get some taste back, then plateau.  Then mine changed again, then plateaued again.  My last radiation treatment was 10/3/2014 and three years after, I still couldn't taste much fruit.  Bananas were fine, but melon, pineapple, apples, and citrus had flavor on the first bite, but the second bite was cardboard.  That is, until a few months ago when fruit began to taste good again.

I'm sure you've heard folks talk about your "new normal".  A lot of this new normal has to do with your taste changing.  Be patient and keep trying things.  It'll come back in stages, but it will come back.  I remember when I got my taste back for chocolate milk and grilled cheese sandwiches.  I think I had that everyday for lunch for a few months.  It was like latching on to "real food" instead of Ensure.

Your taste will come back and it will continue to evolve even years out of treatment.

Best of luck.

Bugsy

RE: Getting taste back after treatments

by NJM01 on Thu Mar 08, 2018 12:58 AM

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I’m about 6 months out from chemoradiation. The first few months were very hard for me - it took 3 months before I made any real progress on eating but persistence is key. At the moment, my taste is about 70% or thereabouts of what it was and my salivary function is about 50%. All in all, I’m not complaining and from what I gather, things are likely to continue to improve. Take it one week at a time and slowly but surely you should see progress.

RE: Getting taste back after treatments

by ligiap66 on Thu Mar 08, 2018 05:44 PM

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My hushband was diagnosed with HPV Base of tongue squamous cell carcinoma in July 2015. When we started at MD Anderson in Aug. 2015, they did all their own exam, tests & workup on him. He was a stage 4C when the began chemo in Sept. 2015. I won't sugr coat it , it was hell to go through, all of of it. Radiation, chemo, 2 surgeries, hospitalizations for pneumonia & bloodclots. But, he just got his 2 year scans back, all clear, and no goes from cancer care to cancer survivorship. Now he doesn't get scans for one year. So, although it was terribly difficult to get through it all, you can & you will. As his caretaker, wife & best friend, I was by his side through it every bit of the way. He always said he went through the physical difficulty par of treatment, and I went through the emotional part of it. He still tells me that he wouldn't be here without my care & support. You can & will get through it! It's a tough roller coaster ride, but I just want to say to anyone newly diagnosed, you CAN get through it, and continue to live! It gets better. But it's true, you'll have a "new normal" after it's all over. Baby steps, take good advice, take care of yourself, use any support system you have available to you. Everyone has a different experience with taste & loss of it, as well as the timing of when it might come back, and the percentage of taste that may come back. My husband finished chemo in Nov.2015, and had his final radiation treatment on Dec.31, 2015. He has not regained his taste, it's been 2 years & 3 months now. He'll sometimes get a glimpse of taste on a first bite, then he says it 's gone. He lost 30lbs. through treatment, and gained about 18lbs. He'll never be 160 again, he syays about 148 now, which is ok. He looks good. His scans are clean & he feels good. All he hopes for now is for his taste to come back, and cancer to stay gone. With his type cancer diagnosis, they said if it's going to return, it's usually within the 2 year mark, so we're thrilled to be past that & all is well. Good luck to you all, you can beat it & move forward with your life. Yes, things will be different, which is why they refer to it as your "new normal." 

RE: Getting taste back after treatments

by abottsy on Fri Mar 09, 2018 01:29 AM

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I finished up 33 doses of radiation in August for stage 4 throat cancer. I'm sitting here as I write this eating a big plate of Thai food. Just really got my taste back (not completely) about a month ago. It'll come back. Good luck.

RE: Getting taste back after treatments

by EDWARD123 on Fri Mar 09, 2018 01:44 AM

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i had  exactly everything u  had  [surgery and all ]  2 yrs ago  and i am still fighting to get taste buds back and  feeling in my lower part of jaw or neck ,,its still d e a d ...only thing my tounge is sensistive to is anything that is  even near spicey ..who  knows  how  much longer it will take ...having big problems speaking also/////

RE: Getting taste back after treatments

by EDWARD123 on Fri Mar 09, 2018 01:47 AM

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i wish u good luck ..

RE: Getting taste back after treatments

by EDWARD123 on Fri Mar 09, 2018 01:53 AM

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i  have been trying to get my salivery glands opened up for 2 yrs now ,, aeven with special treatments ,,  no  good at all on any and all of it ...

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