Getting taste back after treatments

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RE: Getting taste back after treatments

by Sdurnell on Sun Mar 11, 2018 05:28 AM

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I was unable to eat for most of the first year, but everything tasted horrible anyway.  By the time I had my throat dilated enough that I could begin to eat again, I could taste but only the first bite of foods.  Things improved slowly, until by two years out I was tasting almost everything correctly.  The only exceptions were alcohol, pop, and chocolate, all of which are vices anyway.  During the third year after treatment I got those tastes back too.

It's not fun, and not always pleasant to eat, but after surviving the radiation itself, "relearning" to eat is not all that hard.  I think that slowly-improving saliva production helps too.

Best of luck to you.

Susan   

RE: Getting taste back after treatments

by Bkwrm on Tue Mar 13, 2018 01:22 AM

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Thanks to everyone who posted me an answer. It's nice to have someone to talk to who understands what I'm going through. God bless all.

RE: Getting taste back after treatments

by rickm18 on Fri May 04, 2018 12:30 AM

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Be patient, it will come.  After 10 very frustrating weeks I fanally got to an acceptable level of taste.  Still not 100 percent and I cant say that I taste everything but, it is now tolerable.

Cream based soups such as broccoli cheddar work well and dont cause discomfort.

Dont push too hard and take what your body gives you.  I made the mistake of trying salsa soon after the treatment ended....NOT a good idea

Remember its a temporary situation and things will get better

RE: Getting taste back after treatments

by Cattastroficka on Sun Jun 24, 2018 03:05 PM

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Took me almost 6 months to get flavor back to where I could get my peg tube out. Chocolate was first, and easy to eat. Don’t fret. It’ll come back. I wasn’t able to eat spicy until 2 years out. Still can’t eat raw hot peppers like jalapeños, but I can cook with them.

RE: Getting taste back after treatments

by EDWARD123 on Mon Jun 25, 2018 01:32 AM

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JOIN  THE  CLUB ,,I AM STILL THAT WAY AFTER MORE THEN 2YRS....

RE: Getting taste back after treatments

by reissens on Sun Jul 01, 2018 03:07 PM

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On Mar 06, 2018 4:49 AM Bkwrm wrote:

I have finished 6 weeks of chemo and radiation for tongue and lymph node cancer. It's been a week and I know it takes a while to heal. I was wondering how long before your taste starts to return. I still can't eat, I'm living on ensure and cream of wheat. I can't taste anything.

i am 9 months post treatment, ( 33 rads/7 chemo )  I say I have about 50 % of my taste back,  sweets are a no go which is probably a good thing... chocolate taste like wax!!! but I get by.  I try everything... anything is better than ensure!!!!! When I got my tube out trying food was great. You don't realize what you take for granted until you get through treatment and can't do the things you once did,  but surviving is the most important,  I hope to one day get my taste back, but I am greatful to be here still

RE: Getting taste back after treatments

by EDWARD123 on Mon Jul 02, 2018 02:36 AM

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On Jul 01, 2018 3:07 PM reissens wrote:

On Mar 06, 2018 4:49 AM Bkwrm wrote:

I have finished 6 weeks of chemo and radiation for tongue and lymph node cancer. It's been a week and I know it takes a while to heal. I was wondering how long before your taste starts to return. I still can't eat, I'm living on ensure and cream of wheat. I can't taste anything.

i am 9 months post treatment, ( 33 rads/7 chemo )  I say I have about 50 % of my taste back,  sweets are a no go which is probably a good thing... chocolate taste like wax!!! but I get by.  I try everything... anything is better than ensure!!!!! When I got my tube out trying food was great. You don't realize what you take for granted until you get through treatment and can't do the things you once did,  but surviving is the most important,  I hope to one day get my taste back, but I am greatful to be here still

TRUST ME IF  U Get them back all the way ,,,u  are really  lucky  .

RE: Getting taste back after treatments

by Sdurnell on Tue Jul 03, 2018 02:52 AM

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On Jul 02, 2018 2:36 AM EDWARD123 wrote:

On Jul 01, 2018 3:07 PM reissens wrote:

On Mar 06, 2018 4:49 AM Bkwrm wrote:

I have finished 6 weeks of chemo and radiation for tongue and lymph node cancer. It's been a week and I know it takes a while to heal. I was wondering how long before your taste starts to return. I still can't eat, I'm living on ensure and cream of wheat. I can't taste anything.

i am 9 months post treatment, ( 33 rads/7 chemo )  I say I have about 50 % of my taste back,  sweets are a no go which is probably a good thing... chocolate taste like wax!!! but I get by.  I try everything... anything is better than ensure!!!!! When I got my tube out trying food was great. You don't realize what you take for granted until you get through treatment and can't do the things you once did,  but surviving is the most important,  I hope to one day get my taste back, but I am greatful to be here still

TRUST ME IF  U Get them back all the way ,,,u  are really  lucky  .

Maybe so, and I don't belittle the fact that not everyone can taste well after radiation.  But most of us do.

Susan

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