Terrified I have pancreatic cancer?

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Terrified I have pancreatic cancer?

by kateb123 on Wed Apr 18, 2018 12:13 AM

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Hi everyone. I am a 20 year old female who is relatively healthy but the past 8 months I have been in constant discomfort. I have been having constant discomfort under my left rib cage and it has been radiating into my back. Here are the other symptoms I have been experiencing: -Pale, fatty stools -Extreme fatigue. I can never sleep enough and everything makes me tired. -Constant low grade fever -Appetite loss -Nausea I have been having this symptoms for about 6 months but some of them such as the fatigue have just appeared. I had a CT scan about 6 months ago and it came back completely clear. I even asked specifically about my pancreas and they said nothing was abnormal. I have been back to my GP many times since then complaining about pain. They keep telling me it’s indigestion issues or my health anxiety and turn me away. I am just terrified that I have pancreatic cancer and it is ruining my life. What tests can I do to completely 100% rule out pancreatic cancer so I can stop worrying about this? Does it sound like I have pancreatic cancer? Thanks everyone.

RE: Terrified I have pancreatic cancer?

by denver88 on Wed Apr 18, 2018 02:03 AM

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The gold star scan is a PET scan in my experience, I had X-rays and CT scans that showed nothing, then an MRI that showed an indication of a growth on the head of the pancreas, I subsequently had a Whipple operation and cleared my pancreas of the tumor but it had spread to the liver.  A PET scan after the operation was a head to foot scan with the latest technology and it will show all tumors, my pancreas remained free but the liver had two spots and i am now being treated with lanreotide for 15 months and the tumors are contained and this treatment appears to be very successful for many with many of us around for many many years but each case has its' own specifics.  I had a neuroendocrine tumore so it was quite treatable.  Do aggessive pursue analysis and I can tell you if i didn't demand an MRI after the X-ray and CT scan they would not have found my cancer at the earliest stage.  I also was told it was an indigestion problem but pursued the MRI (which should identify any tumors), do be persistent and demand further tests until you are satisfied.  If it is pancreatic cancer all is not gloom as each case if unique, I can testify to that and so can many other folks, the earlier you get resolution to your inquiry about your condition the better to treat and the better to either pursue or accept your problem is caused by other than cancer.  Keep in touch

RE: Terrified I have pancreatic cancer?

by merfwi on Wed Apr 18, 2018 08:22 AM

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Ca 19-9

RE: Terrified I have pancreatic cancer?

by Visschercrew on Wed Apr 25, 2018 05:54 PM

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Thank you for sharing your experience. I had a rare kidney cancer tumor in June of 2017 and had the right kidney removed. I had a follow-up MRI in January and they discovered a 6-7mm cyst or Side Branch IPMN???? As it turns out it was never reported but it was there on my June MRI and was 4-5mm at that time. So it is still very small but is growing. They tried to do a biopsy but could not locate it. They are recommending I wait until my July MRI to look at it again. I am freaking out that it is cancer although some say it is growing too slow to be pancreatic cancer. Any advice?

RE: Terrified I have pancreatic cancer?

by smyrnalover on Wed Apr 25, 2018 06:23 PM

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The problem with PC is that many of the associated symptoms are generic, like abdominal pain and nausea. However, if you had a negative CT scan, I doubt you have it. Plus you’re very young. PC is very slow growing, so most people don’t get diagnosed until 50. So if your gp says you’re ok, I wouldn’t think about it. Sounds like you need a thorough work up by a gastroenterologist. PC19-9, however, is not considered diagnostic.

RE: Terrified I have pancreatic cancer?

by StanToronto on Wed Apr 25, 2018 06:56 PM

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Smyranlover, the average of pancreatic diagnosis is acutually 70.

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