Is it normal to be this tired

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Is it normal to be this tired

by Fleming on Mon Apr 23, 2018 10:22 PM

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Daughter is one year post surgery for 2 oligodendroglioma.. ??Radiation and 4 months out of chemo And is experiencing major fatigue. She has tried to resume normal activities but is getting headaches, major fatigue. Feels weird sensations where she had surgery. Is it normal To be this tired? Her family thinks she should be back in the swing of things 100%.

RE: Is it normal to be this tired

by modesta on Tue Apr 24, 2018 07:54 PM

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yes! it is very normal - think until she is done with radation/chemo

RE: Is it normal to be this tired

by BillyRay on Wed Apr 25, 2018 02:01 PM

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Think of the surgery and the treatment as two major surgeries back to back..

RE: Is it normal to be this tired

by Buster00 on Wed Apr 25, 2018 05:16 PM

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yes its very normal and it may carry on indefinately mine has even with 17 diff vitamins a day to hit the nasty things we have in our heads ,keep laughing and strong do things you love we all can beat this promise x

RE: Is it normal to be this tired

by BTMom on Wed Apr 25, 2018 06:16 PM

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My son finished chemo in February following brain surgery/proton radiation and experienced major fatigue and significant memory issues.  He is starting to come out of it, so I am hoping he will be able to go back to school in the fall.  I hope that your daughter feels better soon but can certainly understand that she is not yet 100% back in the swing of things.  I am sorry for what you are going through - it is very hard.

RE: Is it normal to be this tired

by Mack1994 on Wed Apr 25, 2018 08:35 PM

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On Apr 23, 2018 10:22 PM Fleming wrote:

Daughter is one year post surgery for 2 oligodendroglioma.. ??Radiation and 4 months out of chemo And is experiencing major fatigue. She has tried to resume normal activities but is getting headaches, major fatigue. Feels weird sensations where she had surgery. Is it normal To be this tired? Her family thinks she should be back in the swing of things 100%.

I have been dealing with oligodendroglioma for 26 years, have gone through chemo and radiation and chemo more than once, clinically it is supossedly that the side effects , which fatigue is a big one will clear up in about 6 to 8 mos, but I and many others have found it's more like a year

Major fatigue above and beyond what has been experienced should be investigated and perhaps she is pushing herself just a little too much and her parents expectations a little unrealistic.

Only my opinion as apatient but I think the fatigue should be worked up and perhaps a sit down with her doc/docs to receive a very clear explnation as to how life for her going forward is going to be. Some effects from chemo and radiation have life long implications, I still experience fatigue everyday which requires me to have a nap every day and I also have parathesia in one had and the toes of one foot and it is permanent. I also experience what's known as thunder clapp headache, where the area in my brain that had surgery I will suddenly experience a sharp shooting pain, and it is quite painful, it is reffered to as a phenomenom as it is not known as to what causes it.

At four months out she may need a bit more recuperative time, I was out of work from between 6 to 12 weeks, the time varying with each surgery and treatment received. This is a desiease with life long ramifications, most which can be successfully dealt with, it takes a while to learn to live with this and for most life will never be the same.

I wish you the best going forward.

Mack1994 

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